Autism Scientists Form Independent Committee to Counter RFK Jr. Group aims to respond quickly to autism recommendations not supported by science

"What we did not expect was that, in every single respect, this new federal IACC would be radically different from anything we have seen since its inception 20 years ago." -- @htagerf.bsky.social
www.medpagetoday.com/neurology/au...

FDA Removes Warning Page About Dangerous Autism Treatments Autism researchers question motivations for latest HHS changes, including the new IACC

Cause we should all aim to hurt the most vulnerable of our population?
Dang! Humans need to be nice to humans. Humans should care for and about other humans.

First: DO NO HARM!

www.medpagetoday.com/neurology/au...

Opinion | The Evolutionary Brilliance of the Baby Giggle

www.nytimes.com/2026/02/04/o...
Fun article to remind us of the best things in life!

I was delighted to be featured in this charming podcast hosted by the brilliant poet Jack Underwood

The NIH has lost its scientific integrity. So we left “We can no longer lend our credibility to an organization that has lost its integrity,” write four scientists and administrators who recently resigned from the NIH.

Powerful piece in STAT this morning from some NIH staff members who have resigned

www.statnews.com/2026/01/10/n...

1/3

onlinelibrary.wiley.com/share/author...

A summary of my activities in 2025...let's hope 2026 is less damaging to the research and autism communities

🆓🔓 @htagerf.bsky.social (2025). Debate: Standing up for science - how to combat misinformation in child mental health: protecting the integrity of #autism research & practice in the 🇺🇸US. Child & adolescent mental health, 10.1111 doi.org/10.1111/camh...

Congress is currently considering a piece of legislation that would effectively sever all scientific ties between the US and China. Unbelievable.

You can read the AAU response here:
www.aau.edu/key-issues/a...

We are former CDC officials. RFK Jr.'s change to vaccine guidance is propaganda. Under Secretary Kennedy, CDC materials can no longer be assumed to reflect scientific authority.

“The rewriting of CDC’s guidance is not a routine update. It is a warning. If scientific consensus can be erased with a keystroke & replaced with politically curated doubt, institutions meant to safeguard national health are at risk.“
By @drdebhoury.bsky.social @drdemetre.bsky.social & Dan Jernigan

What enables human language? A biocultural framework Explaining the origins of language is a key challenge in understanding ourselves as a species. We present an empirical framework that draws on synergies across fields to facilitate robust studies of l...

Origins of language, one of humanity’s most distinctive traits, may be best explained as a unique convergence of multiple capacities each with its own evolutionary history, involving intertwined roles of biology & culture. This framing can expand research horizons. A 🧵 on our @science.org paper.🧪1/n

The Coalition of Autism Scientists does not support new information published by the U.S. Centers for Disease Control on November 19, 2025 linking vaccination and autism as it is misleading and not evidence-based.

Agree, but I think it goes beyond sunk costs - there's something about autism that is a magnet for research on hot topics - the hot topic being one where you can always find *something* and which sounds exciting. In this case microbiome. I reckon the life cycle of these things is at least 25 years.

lots of invigorating discussion this year at #BUCLD2025. Unsurprisingly, LLMs as models & as tools made many appearances w/a wide range of views/claims/caveats ab what they can(not) tell us ab language development
I'm still chewing on a few things that seemed to get short shrift 1/4 🐦🐦

Opinion | A Journal Promised to Retract a Flawed Autism Study. It's Still Online. Junk science leaves an indelible mark

hopeless autism study still up in J Pers Med despite
promise to retract it www.medpagetoday.com/opinion/seco...
This is how @mdpiopenaccess.bsky.social pollutes the literature with junk

Genomic Investigations of Spoken and Written Language Abilities: A Guide to Advances in Approaches, Technologies, and Discovery Purpose: The aim of this tutorial is to show how the rise of molecular technologies and analytical methods in human genetics yields exciting new ...

If you're interested in how advances in human genomics are transforming our understanding of the biology of spoken & written language abilities, please do check out my new peer-reviewed "tutorial" article, just published.
🗣️🧬🧪
[Will also make a Bsky explainer 🧵 on it next week when I get some time🙂.]

Social Context Matters for Turn‐Taking Dynamics: A Comparative Study of Autistic and Typically Developing Children Engaging in fluent conversation is a surprisingly complex task that requires interlocutors to promptly respond to each other in a way that is appropriate to the social context. In this study, we dise...

Conversational turn-taking feels effortless, but it's a complex dance. We find social context—who you're talking to and what you're talking about—fundamentally changes conversational dynamics in both autistic & TD children. 1/

onlinelibrary.wiley.com/doi/10.1111/... w @chrismmcox.bsky.social

What Using Our Hands While Speaking Reveals About Our Brains Researchers now have fascinating insights into how our brains function while we communicate — and our hand gestures hold the key.

Happy with this popular science article about our work (with @lindadrijvers.bsky.social and @judithholler.bsky.social), showing that listeners use co-speech hand gestures to predict upcoming meaning ✋ www.medscape.com/viewarticle/...

SETBP1 variants outside the degron disrupt DNA-binding, transcription and neuronal differentiation capacity to cause a heterogeneous neurodevelopmental disorder - Nature Communications Different types of SETBP1 variants cause variable developmental syndromes with only partial clinical and functional overlaps. Here, the authors report that SETBP1 variants outside the degron region impair DNA-binding, transcription, and neuronal differentiation capacity and morphologies.

New paper alert! Rare DNA changes in the SETBP1 gene are linked to speech problems & diverse syndromes affecting brain development. Work led by ace postdoc @maggiemkwong.bsky.social uncovered impact of different gene variants, coupling clinical/speech evaluation to molecular & cellular readouts.🧬🗣️🔬🧪

A rewarding start to my day!

RFK Jr. Is Targeting Vaccines And Tylenol. Are Prozac And Ozempic Next? Tylenol maker Kenvue is reeling after unsupported claims that its popular drug causes autism. Kennedy is unlikely to stop there.

Tylenol maker Kenvue is reeling after unsupported claims that its popular drug causes autism. Kennedy is unlikely to stop there.

Baccarelli was paid $700/hour for his work on a case against Tylenol. I will charge $0/hour to tell courts, FDA, and everyone else that correlations can arise from latent variables in the absence of a direct causal relationship.

www.thecrimson.com/article/2025...

Opinion | ‘This May Be the Most Difficult Day in My Career’: Experts React to Trump’s Autism Remarks

Gift article for any uniformed friends or family: experts overwhelmingly agree that the apparent increase in autism in USA is due to broader inclusion criteria and diagnoses. It is NOT caused by tylenol or vaccines
www.nytimes.com/2025/09/23/o...

Nice to see organizations like the @autismsciencefd.bsky.social and @defendpublichealth.bsky.social getting ahead of these potential forthcoming claims in RFK Jr.'s eventual autism report. More of this needed and in other forums too. 🛟😷🧪 sociology

Here's Autism Science Foundation's statement...

How Robert F. Kennedy, Jr.,’s Anti-Vax Agenda Is Infecting America

Week 32 Aug 23-29, 2025 - on persistence vs consistence

Each Friday, I write up the impacts to science 🧪& higher ed. This was Week 32:

+ Chaos & courage as CDC Director Monarez fired & 4 top leaders resign
+ FDA limits COVID vax eligibility, pharmacies restricting access
+ pocket rescission, sad research shut downs & more

buttondown.com/liminalcreat...

I have initial confirmation of a CDC walkout happening - will be looking for news coverage & more details.

RFK Jr. Vowed to Find the Environmental Causes of Autism. Then He Shut Down Research Trying to Do Just That. While touting a $50 million initiative to identify the causes of autism, Robert F. Kennedy Jr. is helping lead an administration that is rolling back protections against pollution and toxic chemicals,...

www.propublica.org/article/rfk-...
Excellent and disturbing article. Pleased to have contributed some background.

De novo protein-coding gene variants in developmental stuttering - Molecular Psychiatry Molecular Psychiatry - De novo protein-coding gene variants in developmental stuttering

Developmental stuttering involves speech disfluencies (blocks, prolongations, repetitions). We sequenced all protein-coding genes of 85 parent-child trios in which the child stuttered, & found (likely) pathogenic DNA variants in 4 genes also implicated in neurodevelopmental disorders. New paper:👇🗣️🧬🧪

Really amazing work that challenges some long-held beliefs about cortical plasticity.

"We show adult sensory body maps are unaltered after amputation, suggesting deprivation-driven plasticity is even more marginal than argued by the strongest opponents of cortical reorganization."