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Posts by MamaRae

Bouquet of spring flowers: pink, yellow, lavender colors

Bouquet of spring flowers: pink, yellow, lavender colors

Beautiful flowers from one of my daughters last week for my birthday.

2 weeks ago 0 0 0 0

Do not insult the ducks! lol

3 months ago 3 0 0 0

understandable

11 months ago 1 0 0 0

Thanks for the laugh! I would love to this in a DW episode

11 months ago 4 0 0 0

My children introduced me to your son and his show and the very talented contestants on there. It always brings a smile to us.

11 months ago 4 0 0 0
Professionals | Willkie Farr & Gallagher LLP

This is sad and angers me

www.willkie.com/professional...

1 year ago 0 0 0 0

Grandpa pants

1 year ago 0 0 0 0
Crochet blanket with hook and small bit of yarn left.

Crochet blanket with hook and small bit of yarn left.

The last titch with just the right amount of yarn left to finish the crochet row

The last titch with just the right amount of yarn left to finish the crochet row

I have been playing a game of Yarn Chicken. This was a perfect game and I won. #crochet #mosaiccrochet #yarnchicken

1 year ago 5 0 0 0
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Most days I fear for my and my daughter’s life.

1 year ago 0 0 0 0

She’s out of school now; she can not be left alone. I am grateful for the IEPs and programs that helped us through the schooling years. I am not sure where she/we would be without those. And now I am not sure what will happen to us if I can’t work. The Medicaid waiver covered the cost of a caregiver

1 year ago 2 0 0 0

I did not vote for this. I have a daughter w/a neurological disease & she has lost her Medicaid, therefore her caregiver. I’m likely going to have to quit my job if I can’t find someone or a way to pay them before my medical leave is up (just had to evict my gallbladder).

1 year ago 1 0 2 0

I want to visit Scotland, and stay. It’s been a dream of mine most of my life. I have a child with a neurological disease and I want us out of the States.

1 year ago 3 0 0 0

🎶”There’s an axolotl on the pink stairs..”🎶

1 year ago 0 0 0 0

I want to move to Canada and buy Canadian too

1 year ago 8 0 0 0

Well for the past two weeks it’s been not having the time. I have spent every moment after getting off work daily on phone calls and filing form packets (15+ pages each) to try to restore daughter’s ssi and Medicaid to continue feeding tube care and her caregiver. Or I have to quit work.

1 year ago 1 0 1 0
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This has been my thinking too

1 year ago 1 0 0 0

He won’t share the title. It will only have his name

1 year ago 0 0 0 0

His nephew has a son with special needs. My daughter has FOXG1 Syndrome. She’s ambulatory, speaks well with a large vocabulary but she is dependent on a feeding tube. She has just lost her SSI and Medicaid with no changes to her/my income

1 year ago 4 1 2 0

This should not surprise anyone. It is his version of weeding out the most vulnerable and he’s fine if they die. He said to his own nephew that people with special medical needs are a drain on society and they should die.

1 year ago 2 1 1 0

But… but… but chaos is part of their goal

1 year ago 0 0 0 0

Yes it’s the paying them thing. Eww
But I am beginning to wonder if there is anywhere to go. Ghost looks good though

1 year ago 0 0 1 0

Me too. I am struggling with the balance of it all.

1 year ago 0 0 0 0

Nope. I left after seeing the Substack owners are pro Musk and Zuckerberg et al.

1 year ago 2 0 1 0

Forcing myself not to “doom scroll” but balancing that with the need to be informed. How are you coping? Balancing?

1 year ago 1 0 1 0

Healthcare for all NOT tied to a job. Non-profiting healthcare for sure.

1 year ago 0 0 0 0
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My daughter just lost her SSI and is about to lose her Medicaid. With that loss she will lose the coverage for her feeding tube supplies and formula. I’m scared and I did NOT vote for this.

1 year ago 9 0 2 0
Preview
The fight for free speech in 2025 and beyond On Substack’s ongoing commitment to freedom of the press

Substack comes out in favor of Elon. read.substack.com/p/the-fight-...

1 year ago 515 294 88 563

What’s the saying? If 10 people are at a table and one nazi joins them, if they stay then there are 11 nazi’s at the table

1 year ago 4 0 2 0

Many followed him there. I followed others there and it’s got me sad. I am an insignificant dot in these times simply trying to hold my shit together for my children (esp my daughter with foxg1) I will be unsubscribing from all of them and sending them a note why.

1 year ago 2 0 1 0

Same!

1 year ago 0 0 0 0