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Posts by Amy 🌤️

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Study links long COVID in kids to worse grades and attention problems A large NIH-funded RECOVER-Pediatrics study found that children and adolescents meeting the long COVID research threshold were more likely to have caregiver-reported worsening grades, attention diffic...

Study links long COVID in kids to worse grades and attention problems.

"A major U.S. cohort study suggests long COVID in children may reach far beyond lingering symptoms, affecting how they learn, focus, and connect with friends at school."

1 day ago 177 86 4 2

Back when my child was looking at colleges, I was so tempted to post articles in the intense parent Facebook groups focused on ensuring your child got the most merit/financial aid when applying to college/university. In the end I did not.

17 hours ago 2 0 0 0

Continually in awe of this community 👏👏👏

18 hours ago 4 3 1 0

Amazing advocacy and a Herculean effort to get this done. 💜💜💜💜

17 hours ago 1 0 0 0

600!!! Incredible! Please keep spreading to word for people to call if they are able to help get LC appropriations funding. Details below and on LCC’s timeline.

2 days ago 7 3 0 0

I have ADHD so I have grappled with memory issues my whole life... But nothing like what covid did to me.

I've been bouncing back physically in so many ways over the past few years, but it only makes my mental situation more stark.

Starting stimulants got me 25-50% back but my brain got cooked.

2 days ago 109 27 5 0

Repeated COVID (infections) are ruining education.

People like to attribute kids failing to do the work to the few months they spent at home in 2020. Choosing to ignore that Covid causes measurable brain impairment and cumulative cognitive deficits in not only adults, but children too.

2 days ago 127 58 3 8
School Difficulties and Long COVID in Children and Adolescents — Harrison T. Reeder et al
"These findings also provide evidence of a key disruption of functional status at critical points in the life course, which have profound implications both for the future health of this generation and for public policy."

School Difficulties and Long COVID in Children and Adolescents — Harrison T. Reeder et al "These findings also provide evidence of a key disruption of functional status at critical points in the life course, which have profound implications both for the future health of this generation and for public policy."

From the US

School Difficulties and Long COVID in Children and Adolescents

www.academicpedsjnl.net/article/S187...

Screenshot from latest Science for ME weekly update

#LongCovid #LongCovidKids

2 days ago 12 7 0 0
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We printed 2,000 flyers this week for a know your rights neighborhood canvassing event and prepped 1200 mini flyers for another event tomorrow. Others in my group make whistles and zines.

3 days ago 1 0 0 0
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Paul Revere’s Ride Listen, my children, and you shall hear

There are definitely moments when I feel very Bostonian, but perhaps the most Bostonian I have felt was in the big crowd outside the Paul Revere House last year on the 250th anniversary of the midnight ride while everyone chanted "Paul! Paul! Paul!" in unison.

4 days ago 12 5 0 1

#pwLC #pwME #POTS #NEISVoid LAST DAY to call! Easy tool with script that routes to your Senators tinyurl.com/LongCOVIDCall Info in thread about appropriations ask here. Please call, like, and reshare. Email tool in next post (if needed)

5 days ago 5 4 1 0

@lccampaign.bsky.social
Is moving mountains to fund Long Covid FY27.

Can you make the call?

5 days ago 2 0 0 0
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CALL CAMPAIGN: Sign On, Senators! #FundLongCOVID in FY27

Help us support the cause. share.nwmd.social/s/drt3Wkz7

This is the easiest tool to use to call your Senators, took less than 5 minutes.

#FundLongCOVID
#LongCovidKids
#pwLC

5 days ago 4 1 0 1

Please call your senators today!
win.newmode.net/longcovidcam...

This funding would benefit Long Covid, Dysautonomia, AND ME patients 🩵

Calls help the most but if you can’t call, please email:
win.newmode.net/longcovidcam...

5 days ago 16 10 0 0

📣GREAT NEWS📣 Just spoke to Hill champions: your hundreds of calls & emails are making such a difference, they've extended deadline for Senator sign-on to #FundLongCOVID Dear Colleague letter to MONDAY APRIL 20 10am ET! More @lccampaign.bsky.social details incoming, senators now signed: 1/x

5 days ago 28 19 2 3

Feels important to uplift Rep Pressley's leadership. She puts in a lot of work on issues that others often don't see as a priority. I've appreciated her anti-criminalization work over the years. She's a worker.

6 days ago 2781 575 13 0
Screenshot of a 4/15/26 post from @ahandvanish
on X.com:

Study of neuro #LongCovid patients found pTau-181 (marker of Alzheimer's/brain injury) increased by 59% after COVID.

Interestingly, levels increased more AFTER 1.5 years from infection (only 15% increased in the before-1.5 year time period).

thelancet.com/journals/ebiom... 1/

Increased phosphorylated tau
(pTau-181) is associated with neurologi...
thelancet.com

Screenshot of a 4/15/26 post from @ahandvanish on X.com: Study of neuro #LongCovid patients found pTau-181 (marker of Alzheimer's/brain injury) increased by 59% after COVID. Interestingly, levels increased more AFTER 1.5 years from infection (only 15% increased in the before-1.5 year time period). thelancet.com/journals/ebiom... 1/ Increased phosphorylated tau (pTau-181) is associated with neurologi... thelancet.com

But sure, let’s infect kids with a virus that does this over & over every year for their entire lifespans

www.thelancet.com/journals/ebi...

5 days ago 72 31 4 2
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Praise God, 🙏

5 days ago 0 0 0 0
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In Pursuit of Understanding the Crash What Post-Exertional Physiology Tells Us About ME/CFS

Excellent overview of post exertional malaise by Todd Davenport. Strong recommendation from me to read and discuss. We can’t get ME/CFS right until we get PEM right.

5 days ago 43 17 2 3

I did not know Todd had a Substack. I will definitely read this. He has been so helpful with families struggling with children with PEM.

5 days ago 2 0 1 0

#pwLC #pwME #POTS #NEISVoid Please call your senators by COB tomorrow/Friday for this LC funding appropriations ask. Easy call tool here tinyurl.com/LongCOVIDCall
Calling/leaving a message is best but here’s an email tool if needed tinyurl.com/LongCOVIDEmail

5 days ago 5 5 0 0

I'm not sure how much longer we can continue to ignore Covid for.

It's a driver of the societal decline we're living through. Most parents I know with small kids are sick multiple times a year, some every month. Repeat infections ⬆️ long covid risk & can cause immune dysfunction & organ damage

6 days ago 112 20 7 0

Definitely a huge sigh. 😔

6 days ago 0 0 0 0

Fantastic.

@mollycrabapple.bsky.social and @karenattiah.bsky.social had an amazing discussion at tonight’s @resistanceschool.bsky.social salon.

I learned so much and can’t wait to read the book.

6 days ago 7 2 0 1

Superb 🧵 from here down unpacking the role of illness in driving growth of school absenteeism, and the role of COVID *infection* - not prevention 🤦‍♀️- in driving that illness.

1 week ago 18 9 0 0

Thank you @markey.senate.gov - I am grateful for your ongoing support. As a constituent, you consistently champion our community and it is so appreciated.

6 days ago 2 0 0 0

Please take a few minutes to contact your senators.

We need to #FundLongCOVID
#LongCovidKids

6 days ago 10 4 0 0
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Drawn image of the U.S. Capitol dome, with the words underneath: Long COVID patients have waited too long for TESTS, TRIALS & TREATMENTS. #FundLongCOVID

Drawn image of the U.S. Capitol dome, with the words underneath: Long COVID patients have waited too long for TESTS, TRIALS & TREATMENTS. #FundLongCOVID

📣U.S. Action Item: #pwLC #POTS #pwME #NEISVoid we need your help! Will you contact your Senators & ask them to sign on to the FY27 Senate “Dear Colleague” Letter for over $210 million to #FundLongCOVID in 2027 Appropriations using our EASY low-spoons call/email tool?🧵

6 days ago 44 33 4 13
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School Difficulties and Long COVID in Children and Adolescents Pediatric Long COVID (LC) is an infection-associated chronic condition following SARS-CoV-2 infection. While research has begun to elucidate clinical phenotypes, functional impacts are not well descri...

School Difficulties and Long COVID in Children and Adolescents

Published: April 2, 2026

A new study shows Long COVID in kids is linked to school struggles—attention, learning and social issues. It highlights the need for early recognition and better school-based support to help affected children.

1 week ago 74 34 1 2

This. Over and over and over.

"If your parental values include a desire for your child to die from a vaccine preventable disease, your values need an adjustment."

1 week ago 33 9 0 0