Doddie Aid hits two million again | My Name'5 Doddie Foundation

You can read more details here 👇
www.myname5doddie.co.uk/news-and-sto...

📢 Calling all researchers! Applications open on 8 May for our 2026 Advancing Treatments Award, which will support the early-stage development of new treatments designed to slow, stop or reverse the progression of MND.

See here for more details & how to apply: www.myname5doddie.co.uk/for-research...

Over £2 million has been raised for MND research through Doddie Aid 2026 and Doddie’s Triple Crown cycle! 👏

We can’t thank you enough for your support and efforts. You’re all still turning up, still giving, still pushing - and that means everything 💙💛

Same time, same place next year? 👀

Doddie's Triple Crown 2026 Doddie's Triple Crown is the 2026 edition of Rob Wainwright's epic annual cycling challenge to raise funds for My Name'5 Doddie Foundation. The challenge will take place from Tuesday 10th - Friday 13...

A truly phenomenal effort, we couldn’t be more proud. Well done one and all!

Thanks so much to everyone for their overwhelming support of this week’s ride. You can still show your support and donate here 👇
www.justgiving.com/campaign/tri...

After four gruelling days, pedalling over 700 miles, this is the emotional moment our cyclists finally crossed the finish line at Blackrock RFC in Dublin last night.

They’ve persevered through brutal weather conditions all to raise over £1.3 million and counting for MND research.

They've made it 🏁🚴‍♂️ Yesterday’s finish line might have changed, but our finish line hasn't: a world free of MND.

Make those final miles and the journey to get here all the more worthwhile. Keep supporting, donate to Doddie’s Triple Crown now: www.justgiving.com/campaign/tri...

What Rob said.

“We’ve set ourselves a task, and I’m not talking about riding to Dublin, I’m talking about finding a solution to MND.”

Kathy, Rob and the 40+ teams of cyclists need your support more than ever. Donate to Kathy’s fundraising page here: www.justgiving.com/page/fivehea...

This is why we do it.

So incredible to be joined by Lewis Moody, Ed Slater and our patron Jill Douglas this morning as the cyclists departed Gloucester.

The weather is not on our side today. Show the cyclists your support by donating now: www.justgiving.com/campaign/tri...

“We can’t give them much to look forward to but we can give them hope. We are pedalling hope.”

This is why these rides are so important. When you donate to Doddie’s Triple Crown, you’re helping fund vital MND research.

Show your support and donate now: www.justgiving.com/campaign/tri...

New MND drug selected for EXPERTS-ALS platform Raya Therapeutic's smilagenin has been selected for EXPERTS-ALS. Read how this new drug could accelerate the search for MND treatments.

For more information, see here 👇
ukmndri.org/2026/03/10/n...

In case you missed it, Raya Therapeutic Inc.'s drug smilagenin (RT1999) has been selected for the EXPERTS-ALS trial platform. Here, Professor Chris McDermott, co-lead for the EXPERTS-ALS trial, tells us more about why EXPERTS-ALS and this news is so novel and important.

💙💛

A huge thank you to PureGym Leeds for opening their doors and giving our cyclists a place to rest for the night - even turning the gym floor into a bed for the teams after a long first day

A class act and brilliant partner🤝

Day 2 - let's go! Donate here: www.justgiving.com/campaign/tri...

About yesterday...what a day! 180 miles covered and £1 million already raised for MND research - but there’s still a long way to go 🚴

Your support means everything this week as the teams make their way to Dublin 💙💛

Donate now: www.justgiving.com/campaign/tri...

Here we go! Four days, 750 miles, one mission: a world free of MND.

Doddie's Triple Crown has officially kicked off. Donate now: www.justgiving.com/campaign/tri...

There’s continued discussion about a perceived link between rugby and MND, but some commentary can miss key points from existing studies & data.

MND research is complex & this is no exception. That's why we’re resharing this article to provide more clarity: www.myname5doddie.co.uk/whats-on/art...

MND‑SMART have confirmed amantadine is being removed from the trial as interim analysis shows it doesn't slow MND progression.

Whilst disappointing, this allows MND-SMART to move on to test other treatments. Recruitment for tacrolimus continues

Details here: www.myname5doddie.co.uk/whats-on/art...

It’s great to see positive news for potential new MND treatments, this week the US biotech QurAlis have provided an interim update from their early-stage clinical trial of a gene therapy.

More details here: www.myname5doddie.co.uk/whats-on/art...

We’ve been looking urgently into how we can help improve access to tofersen for people living with SOD1-MND across the UK. Too many are still prevented from accessing this life-extending treatment, and that must change.

Read what we’re doing to help fix this: www.myname5doddie.co.uk/whats-on/art...

Our Translational Research Review Committee is essential in ensuring we fund the very best MND research, and we’re excited to introduce you to our new Chair of the Committee, Professor Paul Matthews.

More details here 👇
www.myname5doddie.co.uk/whats-on/art...

He’s done it! Davy Żyw has made history as the first person with MND to compete in snowsports at the Winter Paralympics! 🏂

Huge congratulations from all of us here, Davy – you're a legend! 🔥

We spoke to scientifyRESEARCH recently about our Catalyst Awards and why they're so important. If you're thinking of applying, make sure to get your application in by Friday 27 February at midday.

Application details here: www.myname5doddie.co.uk/research/fun...

Doddie's Triple Crown 2026 Doddie's Triple Crown is the 2026 edition of Rob Wainwright's epic annual cycling challenge to raise funds for My Name'5 Doddie Foundation. The challenge will take place from Tuesday 10th - Friday 13...

For more details and to donate, click below 👇
justgiving.com/campaign/triplecrown26

“Now is a time to step up and try and help keep the awareness out there, and hopefully raise a lot of money to help research.”

Yesterday Kathy Weir spoke to BBC Reporting Scotland about her involvement in ‘Doddie’s Triple Crown’ - a 750-mile cycle to raise funds for MND research.

Rob Wainwright is back, leading hundreds of cyclists on a 750-mile ride for us, and this year he’s joined by Kathy Weir 💙💛

Kathy says it’s the first time since Doddie’s death that she’s felt mentally ready for a challenge of this scale.

Donate now 👉 www.justgiving.com/campaign/tri...

🚨There's only 2 weeks left to submit your application for our Catalyst Award! We want to help MND researchers bring bold, innovative and early-stage ideas to life.

Applications close 27 February at midday.

More details here 👉 www.myname5doddie.co.uk/whats-on/art...

📣 Featured funding of the week!
💡 Catalyst Award (motor neuron disease | UK) by @mndoddie5.bsky.social
🗓️ Deadline: Feb 27, 2026
🌍 Location: United Kingdom
💰 Amount: 100,000 GBP per one year
 
🔗 Learn more: www.scientifyresearch.org/grant/cataly...
 
#UKResearch #ResearchFunding #NeuronResearch

Congratulations Emma, 515 miles is a superb effort! Thank you so much for taking part in Doddie Aid and for all of your support 💙💛

It is completely unacceptable that the drug, tofersen, is only being given to some of those who are eligible to receive it. Read our statement to find out more.

www.myname5doddie.co.uk/whats-on/art...

As proud funders of the UK MND Research Institute, it's great to see all they have accomplished in their first three years 👏