Researcher Richard Edwards from University of Wolverhampton is currently looking for participants to take part in his study focusing on time to MS diagnosis. Participants can take part remotely. If this sounds of interest to you, please contact Richard for more information: r.c.edwards@wlv.ac.uk
The team are in Sheffield today at the EuroQol UK & Ireland Regional Meeting 2026.
UK MS Register clinical lead, Dr Richard Nicholas, is presenting the work we have been doing on the EQ-5D questionnaires.
A member of the Register team presents their work on stage in front of an audience.
Members of the MS Register and MS Pregnancy Register team stand smiling behind a table covered in merchandise and leaflets.
A member of the UK MS Register team stands beside a research poster.
A member of the UK MS Register team stands beside a research poster.
The Register team have just returned from the Multiple Sclerosis Trust conference; we were proud to showcase our research though our posters and presentations, and welcomed so many engaged visitors to our stand. 👋
Thank you MS Trust team for another great conference! 🎉
UK MS Register senior analyst Dr Jeff Rodgers stands next to his poster in a conference hall.
Congratulations to UK MS Register senior analyst Dr Jeff Rodgers who is today showcasing his work at Brain Conference 2026 in London🙌 Jeff has been studying Register data and is presenting a poster titled 'Emulating a pseudo-trial of Baclofen and Sativex for MS spasticity using the UK MS Register'.
Did you know that the UK MS Register host the expression of interest for the Octopus trial? This is a revolutionary trial that will transform the way we test treatments for Progressive Multiple Sclerosis (MS).
You can read the latest update from the trial here:
blog.msregister.org/octopus-upda...
🌸 Our Spring questionnaires are now live on the UK MS Register!
If you’re living with MS, your experiences matter. By taking part, you’re helping to shape research, improve understanding, and make a real difference to the MS community. Log into your account here: ukmsregister.org/Account/Login
This International Day of Women and Girls in Science we celebrate the women and girls shaping the future of science. 🔬✨
At The Register, we’re committed to highlighting the groundbreaking work being carried out by women, and supporting the next generation of female researchers 🙌
#IDWGS2026
Help shape the future of MS research in the UK.
Join the UK MS Register if you:
✅ Live in the UK
✅ Are 18 or over
✅ Have a confirmed MS diagnosis
Find out more: ukmsregister.org/Account/Regi...
New study from researchers at University of Birmingham looking into the experiences of pregnant women with MS.
More details below 👇
In December 2025, the UK MS Register hosted a Campus Research Day at Swansea University which brought together researchers and supporters of the MS Society UK.
blog.msregister.org/campus-resea...
The @ukmsregister.bsky.social hosted a Campus Research Day in December, @swanseauni.bsky.social, bringing together researchers and supporters of the @mssocietyuk.bsky.social, to see how their fundraising activities support important MS research in Wales.
👉 popdatasci.swan.ac.uk/uk-ms-regist...
📣 We are pleased to share that the Register are now part of the NIHR (National Institute for Health and Care Research) Associate PI Scheme 🎉
Read more about the scheme, and how to be involved, in our blog:
lnkd.in/e5tBExBJ
blog.msregister.org/nihr-associa... @nihr.bsky.social
Congrats to Jess Smith and the team at Convey Law for raising over £6k for the MS Society 👏 🙌 We were delighted to welcome Jess and her father Mike to Swansea University back in August as part of an MS research visit, in partnership with the MS Society Cymru.
businessnewswales.com/law-firm-rai...
There's a fantastic new blog post available on the MS Society website written by volunteer Susan Crane. Susan is a participant on the UK MS Register, and a valued member of our Patient and Public Involvement group - the Brainstormers. Read Susan's blog here 👇
www.mssociety.org.uk/support-and-...
PhD researcher Hannah Hollinger, from the University of Highlands and Islands, is currently recruiting to her study.
If you have RRMS and currently use a method of cooling yourself please contact hannah.hollinger@uhi.ac.uk directly if you would like more information. Please also feel free to share.
Register PI Dr Rod Middleton is in London today at the National meeting of the ACORD Collaboration.
The ACORD Collaboration consists of a variety of groups currently developing, running and reporting MAMS platform trials in neurodegenerative conditions : lnkd.in/geKi-Kpu
Earlier this month Rod from the Register joined MS-UK @ms-uk.bsky.social for an online information session. You can read more about the event, or sign up to watch the recording, by following the link below.
Thank you MS-UK for inviting us along!
www.ms-uk.org/ms-register-...
In our most recent blog we hear from Professor Klaus Schmierer at Queen Mary University of London about the AttackMS trial which has recently reopened.
This trial is the first study to treat individuals with suspected MS at the first demyelinating event.
blog.msregister.org/attack-is-ba...
The MS Society 2026 grant rounds are now open for applications! 📣
Did you know that you can apply for any of these Awards with a research project that's using the UK MS Register?
Find out more here: www.mssociety.org.uk/research/res...
Want to take your research to the next level?🚀
Sign up for the @ukmsregister.bsky.social's free one-day workshop and learn how to manipulate and analyse synthetic data from the MS Register using the R statistical programming environment.
👉popdatasci.swan.ac.uk/uk-ms-register-data-work...
Great to hear that Chiara! It certainly seems to be going from strength to strength!
📣 Today we’re at ECTRIMS Patient Day in Barcelona! The Register are proud to be a supporting partners of this important event, which brings people affected by MS together with researchers, clinicians, and organisations from across the world 🌍
The Register is at #ECTRIMS in Barcelona this week. Our team has been busy presenting research highlighting the importance of real-world data.
Special congratulations to Imogen Collier, who won a prize for her poster on menopause and MS based on data collected through the Register 🏆
🎉 What a whirlwind first day at #ECTRIMS2025 in Barcelona!
The Register team has been incredibly busy – sharing our research, connecting with global MS experts, and showcasing how patient-powered data is driving real change.
📊 Huge thank you to everyone who has stopped by our stand (N14) so far!
🎉 We're exhibiting at #ECTRIMS2025 24th - 26th September!
Visit us at Stand N14, NPO Village, to learn more about how we're driving forward MS research through real-world data and collaboration.
Could a citrus extract improve Cognition and Fatigue in Multiple Sclerosis? A team from Swansea Uni are conducting research on the effects of citrus extract supplementation on people with RRMS. Register your interest to take part in this study:
research.sc/participant/...
Largest study of cognition in MS highlights often-overlooked group🔎
New study from @ukmsregister.bsky.social has revealed that many people with multiple sclerosis (MS) experience problems with thinking and memory despite having little physical disability.
👉 popdatasci.swan.ac.uk/largest-stud...
Did you know the UK MS Register host the MS Pregnancy Register. The Pregnancy Register launched in 2021 to learn more about the experiences of women in the UK with #MS, and their fertility journeys. Read the latest update from the Pregnancy Register 👇
blog.msregister.org/ms-pregnancy...
The Refuel MS clinical trial has started🎉 We’re testing how effective the Refuel MS intervention is vs usual care🔎
Recruitment is now by invite via @ukmsregister.bsky.social📝 Thank you to all who helped us get here🧡
@ronamoss-morris.bsky.social
#multiplesclerosis#msresearch#digitalintervention