www.kidney.org.uk/7-million-lives-at-risk-whats-the-plan
Our next and final listening event will take place in Bristol on 29th April at the Holiday Inn Bristol City Centre. If you would like to attend, please register your interest using the link above.
A big thank you to everyone who attended the virtual Voices to Vision listening event yesterday.
Whether you are living with kidney disease, supporting someone who does, or working in renal, you can help shape the future of kidney care. If you would like to share your views, please visit:
Yesterday, Linda headed to the Renal Patient Education Fair. It was a fantastic opportunity to meet patients and renal healthcare teams, share information about treatment options, healthy living, and highlight the importance of being actively involved in your own care.
living with chronic kidney disease stages 3b to 5 or heart failure and the new guidance will ultimately lead to some patients accessing medication earlier to manage their condition better.
Find out more here: www.nice.org.uk/ 2/2
The National Kidney Federation welcomes improved access to medication for persistent Hyperkalaemia (high levels of potassium in the blood), following new draft guidance from NICE. Sodium zirconium cyclosilicate is a treatment option for adults who have persistent Hyperkalaemia... 1/2
Happy Easter from everyone at the National Kidney Federation.
2/2 To support this review, the National Kidney Federation is seeking individuals with experience of IgA Nephropathy.
If you would like to share your experience, please email nkf@kidney.org.uk by Tuesday 7th April.
1/2 Are you a patient or carer in Scotland with lived experience of IgA Nephropathy? Would you be willing to attend a Patient and Clinical Engagement (PACE) meeting to discuss the medicine, sparsentan (Filspari), and share your perspective on its added value?
Our Foot Care with CKD Webinar took place last night, a big thank you to our fantastic guest speakers for sharing their expertise, and to everyone who attended. The webinar recording is now available on our website:
www.kidney.org.uk/Event/nkf-webinar-series
2/2 for acquired hypothalamic obesity in people aged 4 years and over.
To support the review, the National Kidney Federation is gathering experiences from those affected by hypothalamic obesity.
If you’d like to talk about your experience, please email nkf@kidney.org.uk by Friday 8 May.
1/2 Are you a patient or carer that have lived experience of acquired hypothalamic obesity?
NICE (National Institute for Health and Clinical Excellence) are currently reviewing the clinical and cost effectiveness of the drug setmelanotide, which they are appraising for treatment
Join Joanne Casey (Podiatrist & Senior Research Assistant) and Dr. Ljubisa Paden (Nurse & Senior Lecturer) as they discuss the importance of maintaining healthy feet for those living with kidney disease. If you haven't already, register your place today: www.kidney.org.uk/Event/nkf-webinar-series
The NKF Best Foot Forward Challenge kicks off in April, inviting people to take on 72,208 steps during the month while raising funds to support kidney patients and their families.
Raise over £10 or more and get your FREE pair of exclusive challenge socks! 🧦
www.kidney.org.uk/bff2026
Thanks for supporting World Kidney Day! You're all brilliant – our inspiring patients, their supportive friends and family and the fantastic healthcare workers. You've made a huge difference with busting the myths around kidney disease! #WorldKidneyDay #KidneysMatter
Thank you to everyone who joined us to #ShineALight on kidney disease at 7pm last night.
#KidneysMatter #DontKidYourself #KidneyCharitiesTogether
Thank you to all of the wonderful healthcare professionals and researchers who we met at #UKKW26 in Harrogate this week. Your support for #WorldKidneyDay was fantastic and we wanted to share some of our favourite #DontKidYourself moments this morning.
It's time for us all to shine a light on kidney disease, the amazing patients and supporters, and remember those we've lost. Share your photos to help us raise awareness 💛
#WorldKidneyDay #KidneysMatter
Over 1000 people aged under 18 have kidney disease in the UK. It's not just an older person's disease – that's a myth! People of all ages are living with it.
Get clued up on the facts here: www.worldkidneyday.co.uk/check/
#WorldKidneyDay #KidneysMatter
This is a myth! Here are the facts:
Kidney disease can affect anyone (even fit people!) and be caused by a variety of reasons – genetics, infections, overuse of drugs like Ibuprofen, autoimmune conditions...
Check the facts> www.worldkidneyday.co.uk/check
#KidneysMatter
What is dialysis?
If you or someone you care about has been told they need dialysis, it’s completely normal to have questions.
Our short video explains:
• What dialysis is
• Why it’s needed
• The main ways it can be done
Watch the video and learn more here: www.kidney.org.uk/what-is-dial...
The facts don't lie ❌
Share this post with your friends and family so they know just how big a deal kidney disease is. We want as many people as possible to hear this message.
#WorldKidneyDay #KidneysMatter
What's the truth behind this myth? A transplant can be life-changing, offering hope. But it’s important to remember it’s not a cure. Patients need lifelong monitoring and medication. Learn more and check the symptoms here> www.worldkidneyday.co.uk/check #KidneysMatter
Let's bust this myth! The truth is:
Kidney disease is the 9th biggest killer worldwide. If it goes undetected or is not managed well, it can progress to kidney failure, which is fatal without treatment. There is no cure.
Check symptoms> www.worldkidneyday.co.uk/check
World Kidney Day 2026 is here! Share this post to spread the word to your followers. What are you doing to support #WorldKidneyDay this year? Share why it's important to you below ⬇️
#KidneysMatter
Think kidney disease is rare? Don't Kid Yourself.
It's serious and lifelong. And more than 1 million people in the UK have kidney disease but don’t know it.
Discover the symptoms here > www.worldkidneyday.co.uk/check #WorldKidneyDay
Early detection is key! 🔑
While this type of kidney disease can't be prevented, early detection and treatment can help to slow down the disease and protect the kidneys for longer.
Share this fact to spread the word this #WorldKidneyDay!
#KidneysMatter
It's a busy one at UK Kidney Week in Harrogate! We're on stand C5, if you're attending, come and say hello and grab some of our information leaflets. #UKKW26
Are you putting on an event tomorrow for #WorldKidneyDay? Or maybe you're supporting us in other ways?
We'd love to hear what you're doing to help us spread awareness of kidney disease.
Share this post and tell your followers your plans.
#KidneysMatter
Imagine this 💭
Every day you're waiting. For the call to come into hospital. The stress of waiting for so long. The hope of that phone call. Show your support for patients going through this by sharing our posts and helping spread awareness of kidney disease #WorldKidneyDay
Want to make a photo like this and do your bit? Go to our tool to create yours, then share with your mythbusting Don't Kid Yourself story – what myths did you believe about kidney disease before your diagnosis? www.worldkidneyday.co.uk/the-big-pict...
#KidneysMatter
