Please, please sign and share this petition for funding for desperately needed thyroid clinics 🙏🙏🙏
petition.parliament.uk/petitions/73...
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stay humble biologists. impossible to know even a fraction of things biology is doing
Join us tomorrow for our next online event with Dr Georgina Conway & Nicole Goode!
Get tickets here: www.eventbrite.co.uk/e/taking-a-h...
Well done to the BTF for amending the wording on their 'Myths and Misconceptions' page following correspondence about DIO2 genetic testing. There's more work to be done on this and other information on this webpage, but at least it's a start.
In 2008 my hypothyroid diagnosis would have been missed with a TSH only test, b/c it was low normal at 2.9. But my FT4 was below the ref. range minimum 🤦 Luckily for me T4 tests were routinely ordered to check thyroid status then. Even T3 was checked. Highly likely my diagnosis would be missed today
Thank you so much for your support! Hopefully raising awareness will lead to change 🙏
Outstanding reply, Mary!! Very professional and well-stated.
I hope it does some good. You did a GREAT job with this!! 😀
The British Thyroid Foundation recently wrote in response to my article in Nature Reviews Endocrinology (published in May) defending their position against thyroid patients using private testing for blood and genetic tests 🤷 My reply to the BTF is here: rdcu.be/eHYv3
This is everything that's wrong with treating hypothyroidism in 2025 🤦https://pubmed.ncbi.nlm.nih.gov/40785434/ 'Most respondents [treating physicians] attributed persistent symptoms in LT4-treated patients to psychosocial factors, comorbidities, or unrealistic expectations'.
Congratulations 👏 However I do wish the extremely common, chronic condition, Hypothyroidism, which is not being accurately or promptly diagnosed or treated, could be included as one of the conditions receiving your attention. Many patients, mainly women are suffering because of this. Can you help?
I am constantly frustrated by the claim that patients are not compliant with their Levothyroxine to explain continuing, unresolved symptoms. Yet how often do Drs only focus on the TSH, rather than THs and fail to test patients at the optimal time for accurate blood test status?
Please share my post if you would like to see better hypothyroid care for patients. We need prompt, accurate diagnosis and appropriate treatment, including access to liothyronine, T3 for those who need it. Or send your own story to Patient Safety Learning
🆕Removing barriers to vital thyroid hormone (L-T3) could improve outcomes🆕
A new blog by Mary Saunders, a patient with hypothyroidism, featured on the hub today. pslhub.org/learn/commis... @mary-saunders.bsky.social @thyroiduk.bsky.social
We have two types of collection boxes, not only do they help to raise vital funds, they also create awareness of Thyroid UK’s important work. See them both here thyroiduk.org/support-us/m....
Best advice I got. The male doc I’d seen for 2 yrs kept telling me I had allergies & an unhealthy gut biome. Switched to a female doc & diagnosed with hypothyroidism, perimenopause, & and a fibroid cyst that caused heavy periods within the first two visits. She saved my sanity and life.
Preview: Thyroid hormones are members of the large family of iodothyronines and the even larger family of thyronine derivatives, which includes iodothyroacetates and thyronamines as well.
My GP told me, 'the thyroid is simple. A daily pill for life [T4 only] and you'll be fine.'
Yeah right 🤦
Wanna know something weird? I have Graves Disease AND Hashimoto's Thyroiditis at the SAME TIME. One gives you hyperthyroidism (Graves) and one gives you hypothyroidism (Hashimoto's). Right now the Graves antibodies are leaving me alone pretty much so I get to have hypothyroidism.
Very interesting article that suggests lower T3 is associated with increased risk of mortality and dementia:
academic.oup.com/jcem/advance...
Help to support and raise awareness of Thyroid UK by purchasing a wristband, ribbon or pin badge. We have many awareness products available in our online shop thyroiduk.org/product-cate....
New on the hub today: Liothyronine treatment for hypothyroidism — a patient’s view. @mary-saunders.bsky.social shares her experience as a patient living with hypothyroidism for 16 years (via @natrevendo.nature.com). www.pslhub.org/learn/commis...
As part of a thyroid patient group that approached the GMC about inadequate, outdated training of physicians on hypothyroidism, the GMC said they couldn't help us! Who are they helping?
@thyroiduk.bsky.social @thethyroidtrust.bsky.social
Please share to raise awareness 🙏
My article's been accepted by
@ptsafetylearn
It seems to be resonating with many hypothyroid pts sadly. Please share to raise awareness of the need for improved diagnosis and treatment of this chronic poorly treated illness. You can read in full here rdcu.be/el9CM
A stack with several printed books, "Hypothyroidism – A Paradigm Shift" by Rudolf Hoermann and Johannes W. Dietrich.
Flyer for the book "Hypothyroidism – A Paradigm Shift" by Rudolf Hoermann and Johannes W. Dietrich. Use the code SPRAUT to get a discount of 20% at Springer Nature.
Our book is now available in printed form. Use the code SPRAUT to get a discount of 20% at Springer Nature.
link.springer.com/book/9789819...
It is the usual, nay - universal, claim.
Instance that timing makes no difference - neither circadian, nor relative to taking medicines incl. thyroid hormones, food, etc.
100% agree. Your example re blood test timing is just one 'small' thing that can lead to misdiagnosis or inappropriate treatment. Recently on 2 separate occasions, I've been told by medical professionals that timing of the blood draw is immaterial for both diagnosis and treatment maintenance 🤦🤷
Very much appreciate.
Thyroid management has so many points of failure.
One seemingly utterly trivial issue is when a blood draw is done. Time of day alone can make the difference between being diagnosed and being dismissed.
And it just gets worse.
Image of a desk featuring the Society for Endocrinology logo and circular graphic with text "Clinical Practice Guideline for Evaluation of Androgen Excess in Women".
The Society for Endocrinology's Clinical Committee has commissioned a new guideline to support clinicians in the investigation and management of patients with androgen excess. 📄
Explore the new guideline and enhance your clinical practice with expert-backed recommendations 👉 bit.ly/4dKF0aR