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Posts by Clare Fuller

Video

🎯New podcast alert!
I talk with Dr Jude Partridge about #SharedDecisionMaking & #RealisticChoice
✔️Why this approach is better for patients
✔️What the evidence tells us
✔️The difference it makes to patients
🎧 speakforme.co.uk/podcast-epis...
#AdvanceCarePlanning @drkathrynmannix.bsky.social

1 week ago 1 1 0 0
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What We’ve Forgotten About “Ordinary Dying” | Dr. Kathryn Mannix | End Well 2025 For most of human history, dying was something people witnessed, understood, and supported at home. Today, many of us reach the end of life without ever having seen it. In this talk from End Well 2025, Dr. Kathryn Mannix explores how advances in medicine - while lifesaving - have also shaped a widespread misunderstanding of dying. When the only stories we hear are the hardest ones, it distorts what we expect. Through vivid examples and reflections from her decades in palliative care, she makes a case for something simple and urgent: we need to reclaim the stories of ordinary dying. Because storytelling is how we make sense of what we live through, and how we help others do the same. Subscribe to our channel: https://www.youtube.com/channel/UCfm6c70gpUVNvG_1AOE2d1Q?sub_confirmation=1 Share End Well videos on Facebook: https://www.facebook.com/endwellproject/ View End Well videos on Instagram: http://www.instagram.com/endwellproject Tweet End Well videos on Twitter: http://www.twitter.com/endwellproject Follow End Well on Linkedin: https://www.linkedin.com/company/18095550

Are we getting a skewed understanding of dying from the stories that gain media attention?
I was delighted and honoured to be invited to close the day at End Well 2025. Here's my take.
bit.ly/EndWellStory...

2 weeks ago 9 5 0 1
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Read Mark's remarkable story, interspersed with clinical commentary by his palliative physician, at share.google/jACRqNhnzOOzAR…

Humans are astonishing.
We can't know anyone else's mind.
We need their view.
Start those conversations, everyone.

2 weeks ago 4 4 0 0
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Mark's #ACP records use the Northern Cancer Alliance #DecidingRight suite of documents. I haven't seen any better than these.
Deciding right Regional Forms - Northern Cancer Alliance Northern Cancer Alliance share.google/ghuShNbuJtLxeG…
This is a statement by his palliative physician.
⬇️

2 weeks ago 2 2 1 0
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As guest editor of an EoL & palliative care special edition of @futurehealthj.bsky.social from @rcphysicians.bsky.social, it was important to me that a patient voice was given space.
Mark has #MND (ALS).
He wrote his entire article using eye-gaze technology.

Read on ⬇️

2 weeks ago 16 10 1 0
Video

I'm delighted to open the new season with Professor Jugdeep Dhesi.

We explore the
▶️changing demographics of dying
▶️dementia trajectory &
▶️vital role geriatricians play joining the dots in
#AdvanceCarePlanning

speakforme.co.uk/podcast-epis...
@drkathrynmannix.bsky.social

2 weeks ago 2 1 0 0
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Thank you to Jeremy Sassoon ...what an incredible CD. A super closing session at #PCC2026

2 weeks ago 1 0 0 0
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a man in a white shirt and tie is driving a car with the word max on the bottom ALT: a man in a white shirt and tie is driving a car with the word max on the bottom

Buckle up, folks, I have big news.
I was invited to guest edit this month's
@futurehealthj.bsky.social from @rcphysicians.bsky.social *

Yes, a dedicated #PallCall & #EoLCare issue!

It's open access, so here's the full contents with links.
This may require more than a single pot of tea.
1/

3 weeks ago 22 9 2 2
Video

BIG NEWS: The UK's National Advance Care Planning day will return in 2026...

📅 1st July (save the date)
🤔 Think about how you & your organisation will be
involved
💡 Let us know how ACPDay can be improved in 2026

advancecareplanday.org

#AdvanceCarePlanning #WhatMattersMost #ACPDay2026

7 months ago 2 2 0 0
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TY @syjameel.bsky.social for a fabulous presentation on virtue ethics at #PCC2026 It gave me hope & inspiration. Will follow love research with interest.
@pccongress.bsky.social

3 weeks ago 4 2 1 0

Fabulous session, thank you all! #PCC2026

3 weeks ago 4 0 0 0

Looking forward to the next couple of days at @pccongress.bsky.social

#PCC2026

3 weeks ago 3 0 1 0
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Podcast Index — Speak For Me LPA Welcome to the index of Advance Care Planning podcasts. At the time of writing, 155 [i] po dcasts have been produced covering a diverse range of the mes, in this blog you will find these grouped for...

When is a blog not a blog?

In the latest blog I theme all podcasts to date. I'm incredibly proud of this work & honoured to have spoken with such fabulous guests.

Theming makes it super easy 2 find relevant episodes!

TY to every guest on the podcast journey

speakforme.co.uk/blog/podcast...

3 weeks ago 1 1 0 0
Delicious carrot cake, one slice cut

Delicious carrot cake, one slice cut

When your Mum arrives unexpectedly mid on-line meeting with a cake.

1 month ago 2 0 0 0
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In our final episode of this season Dani & I talk about words used when someone may be approaching the last days of life.

speakforme.co.uk/podcast-epis...

@drkathrynmannix.bsky.social #AdvanceCarePlanning #PEoLC #EoLC #OrdinaryDying

1 month ago 2 1 0 0
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Video

From Pathways to Personalised Care: Rethinking Language at the End of Life

In our penultimate myth busting series, we explore the word “pathway”. Listen in & share the conversations

speakforme.co.uk/podcast-epis...

@drkathrynmannix.bsky.social
#OrdinaryDying #AdvanceCarePlanning #PEOLC #EOLC

1 month ago 3 1 0 0

Oh very good!

1 month ago 0 0 0 0
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Patricia's fundraiser for NHS Lothian Charity Help Patricia Elliott raise money to support NHS Lothian Charity

It’s two weeks to go until the Supernova Run at The Kelpies and I’m stunned at how generous so many of you have been in supporting my fundraising efforts for the @nhslothcharity.bsky.social.

Thank you all!

For anyone who’s missed it, here’s the link again:

www.justgiving.com/page/patrici...

1 month ago 2 1 0 0

Great to see this work & looking forward to learning more!
#AdvanceCarePlanning

1 month ago 2 0 0 0
Video

🚨New podcast alert

CPR: when does it save a life & when does it spoil a death?

Listen in to hear Dani & I share commonly held myths & misconceptions & share valuable resource.

🎧https://speakforme.co.uk/podcast-episode-153

@drkathrynmannix.bsky.social #DNACPR #AdvanceCarePlanning #PEoLC #EoLC

1 month ago 4 2 0 0

Impressed

2 months ago 0 0 0 0
Video

In episode 7 of our words & myth busting series we talk about medication & syringe pumps in the last days of life.

🎧 speakforme.co.uk/podcast-epis...

@drkathrynmannix.bsky.social
#AdvanceCarePlanning
#PEOLC
#EOLC

2 months ago 1 1 0 0
Video

🚨Eating & drinking in last days of life

An emotive subject, important to explore & the focus of latest episode.

🎧https://speakforme.co.uk/podcast-episode-151

@drkathrynmannix.bsky.social
#OrdinaryDying
#AdvanceCarePlanning
#PEoLC
#EoLC

2 months ago 3 3 0 0
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Stunning pictures!

2 months ago 1 0 0 0
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#39 ReSPECT and Advance Care Planning with Dr Zoe Fritz Podcast Episode · Conversations About Advance Care Planning · 11/21/2022 · 38m

....& it was great to hear the origins of ReSPECT from Dr Zoe Fritz

podcasts.apple.com/us/podcast/3...

2 months ago 2 0 0 0
RESPECT form - how to write an Advance Plan
RESPECT form - how to write an Advance Plan YouTube video by Compassionate Communities

That is great to hear & lovely connecting in the space to share info. This is excellent to support ReSPECT if you haven't already seen: www.youtube.com/watch?v=1juK...

2 months ago 1 0 0 0
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149 Care doesn't stop, it simply changes focus. In discussion with Dani & Clare Podcast Episode · Conversations About Advance Care Planning · 01/26/2026 · 17m

Forgive me jumping in, but it's such an important point. It's a valuable discussion & the focus of this recent episode:
podcasts.apple.com/us/podcast/1...
@shaiuk.bsky.social

Great to share these conversations & power of language.

2 months ago 1 1 1 0

No words.

2 months ago 0 0 1 0

One of the worst articles I have read on assisted dying, and exemplifies why I am against the Bill currently going through parliament. Miscomprehension and oversimplified opinion on what others' lives are like to live, are rife.

7 months ago 12 6 1 0
Video

🚨Navigating Choice and Autonomy in End-of-Life Care with Dani & Clare
In episode 5 we talk about choice & autonomy - listen in & share the conversation
🎧https://speakforme.co.uk/podcast-episode-150

@drkathrynmannix.bsky.social
#PEoLC
#EoLC

2 months ago 2 1 0 0