🎯New podcast alert!
I talk with Dr Jude Partridge about #SharedDecisionMaking & #RealisticChoice
✔️Why this approach is better for patients
✔️What the evidence tells us
✔️The difference it makes to patients
🎧 speakforme.co.uk/podcast-epis...
#AdvanceCarePlanning @drkathrynmannix.bsky.social
Posts by Clare Fuller
Are we getting a skewed understanding of dying from the stories that gain media attention?
I was delighted and honoured to be invited to close the day at End Well 2025. Here's my take.
bit.ly/EndWellStory...
Read Mark's remarkable story, interspersed with clinical commentary by his palliative physician, at share.google/jACRqNhnzOOzAR…
Humans are astonishing.
We can't know anyone else's mind.
We need their view.
Start those conversations, everyone.
Mark's #ACP records use the Northern Cancer Alliance #DecidingRight suite of documents. I haven't seen any better than these.
Deciding right Regional Forms - Northern Cancer Alliance Northern Cancer Alliance share.google/ghuShNbuJtLxeG…
This is a statement by his palliative physician.
⬇️
As guest editor of an EoL & palliative care special edition of @futurehealthj.bsky.social from @rcphysicians.bsky.social, it was important to me that a patient voice was given space.
Mark has #MND (ALS).
He wrote his entire article using eye-gaze technology.
Read on ⬇️
I'm delighted to open the new season with Professor Jugdeep Dhesi.
We explore the
▶️changing demographics of dying
▶️dementia trajectory &
▶️vital role geriatricians play joining the dots in
#AdvanceCarePlanning
speakforme.co.uk/podcast-epis...
@drkathrynmannix.bsky.social
Thank you to Jeremy Sassoon ...what an incredible CD. A super closing session at #PCC2026
Buckle up, folks, I have big news.
I was invited to guest edit this month's
@futurehealthj.bsky.social from @rcphysicians.bsky.social *
Yes, a dedicated #PallCall & #EoLCare issue!
It's open access, so here's the full contents with links.
This may require more than a single pot of tea.
1/
BIG NEWS: The UK's National Advance Care Planning day will return in 2026...
📅 1st July (save the date)
🤔 Think about how you & your organisation will be
involved
💡 Let us know how ACPDay can be improved in 2026
advancecareplanday.org
#AdvanceCarePlanning #WhatMattersMost #ACPDay2026
TY @syjameel.bsky.social for a fabulous presentation on virtue ethics at #PCC2026 It gave me hope & inspiration. Will follow love research with interest.
@pccongress.bsky.social
Fabulous session, thank you all! #PCC2026
Looking forward to the next couple of days at @pccongress.bsky.social
#PCC2026
When is a blog not a blog?
In the latest blog I theme all podcasts to date. I'm incredibly proud of this work & honoured to have spoken with such fabulous guests.
Theming makes it super easy 2 find relevant episodes!
TY to every guest on the podcast journey
speakforme.co.uk/blog/podcast...
Delicious carrot cake, one slice cut
When your Mum arrives unexpectedly mid on-line meeting with a cake.
In our final episode of this season Dani & I talk about words used when someone may be approaching the last days of life.
speakforme.co.uk/podcast-epis...
@drkathrynmannix.bsky.social #AdvanceCarePlanning #PEoLC #EoLC #OrdinaryDying
From Pathways to Personalised Care: Rethinking Language at the End of Life
In our penultimate myth busting series, we explore the word “pathway”. Listen in & share the conversations
speakforme.co.uk/podcast-epis...
@drkathrynmannix.bsky.social
#OrdinaryDying #AdvanceCarePlanning #PEOLC #EOLC
Oh very good!
It’s two weeks to go until the Supernova Run at The Kelpies and I’m stunned at how generous so many of you have been in supporting my fundraising efforts for the @nhslothcharity.bsky.social.
Thank you all!
For anyone who’s missed it, here’s the link again:
www.justgiving.com/page/patrici...
Great to see this work & looking forward to learning more!
#AdvanceCarePlanning
🚨New podcast alert
CPR: when does it save a life & when does it spoil a death?
Listen in to hear Dani & I share commonly held myths & misconceptions & share valuable resource.
🎧https://speakforme.co.uk/podcast-episode-153
@drkathrynmannix.bsky.social #DNACPR #AdvanceCarePlanning #PEoLC #EoLC
Impressed
In episode 7 of our words & myth busting series we talk about medication & syringe pumps in the last days of life.
🎧 speakforme.co.uk/podcast-epis...
@drkathrynmannix.bsky.social
#AdvanceCarePlanning
#PEOLC
#EOLC
🚨Eating & drinking in last days of life
An emotive subject, important to explore & the focus of latest episode.
🎧https://speakforme.co.uk/podcast-episode-151
@drkathrynmannix.bsky.social
#OrdinaryDying
#AdvanceCarePlanning
#PEoLC
#EoLC
Stunning pictures!
....& it was great to hear the origins of ReSPECT from Dr Zoe Fritz
podcasts.apple.com/us/podcast/3...
That is great to hear & lovely connecting in the space to share info. This is excellent to support ReSPECT if you haven't already seen: www.youtube.com/watch?v=1juK...
Forgive me jumping in, but it's such an important point. It's a valuable discussion & the focus of this recent episode:
podcasts.apple.com/us/podcast/1...
@shaiuk.bsky.social
Great to share these conversations & power of language.
No words.
One of the worst articles I have read on assisted dying, and exemplifies why I am against the Bill currently going through parliament. Miscomprehension and oversimplified opinion on what others' lives are like to live, are rife.
🚨Navigating Choice and Autonomy in End-of-Life Care with Dani & Clare
In episode 5 we talk about choice & autonomy - listen in & share the conversation
🎧https://speakforme.co.uk/podcast-episode-150
@drkathrynmannix.bsky.social
#PEoLC
#EoLC