These experiences raise important questions:
1️⃣ Should we be more honest about challenges attorneys may face?
2️⃣ What more can be done to support them in this important role?
We want to see more support for attorneys when they're not listened to so donors’ wishes are respected when it matters most.
On #PowerofAttorneyDay, we reflect on what the people we support tell us about LPAs.
Attorneys speak to us about:
👉not being recognised as decision maker
👉 not being included in best interests meetings
👉losing confidence to speak up for their loved one
compassionindying.org.uk/blog-post/im...
With 25 years of nursing experience, Sarah shares personal reflections on palliative care – why it matters so deeply and why it deserves better recognition and resources. We invite you to reflect alongside Sarah on what care, dignity and honesty can look like at the end of life.
In our latest blog Sarah White, our new Clinical Lead, explores the complex realities of dying, and shares why honest conversations about the limits of palliative care are so important if we are to ensure people can make informed choices about what matters to them most at the end of life.
We hope this content will help foster open conversations because everyone has the right to understand the options available to them now, and potentially in the future, so they can make informed decisions.
compassionindying.org.uk/how-we-can-h...
There are questions we can’t answer because assisted dying is not currently legal in the UK. But we have answered the questions we can, and have been honest about the ones we can’t.
Research shows that the public have questions. They want clarity on what an assisted death is, they want to know about the eligibility criteria and safeguards proposed in current legislation and the timeframe for potential law change.
compassionindying.org.uk/blog-post/as...
We work to put people in control of decisions about the end of their life and as assisted dying is debated in parliaments across the UK, it’s important that people feel able to talk about it in a straightforward way if they want to, as with any end-of-life topic.
This month we have published new user-led information on assisted dying for our website.
Here’s why (a thread) ⬇️
compassionindying.org.uk/blog-post/ne...
We're looking for two part-time nurses (3 days/week). We would greatly appreciate it if you could share this with your networks.
You'll be part of a team that makes a difference to people at difficult times in their lives
This is an exciting opportunity for a nurse with experience in palliative care and excellent communication skills to contribute to the growth of an expanding information service that delivers direct support and drives improvements in practice.
Our information line is a unique service which sits at the heart of our organisation. We support people to make informed decisions, start honest conversations about death and dying with loved ones, and record and revisit their wishes whenever they want to.
🚨 We're Hiring! 🚨
We're excited to announce we're expanding our clinical team.
We're looking for two dedicated and motivated nurses who'll help provide clear and practical support to people to help them make informed decisions about the end of their life.
None of this work would be possible without the people who share their experiences and expertise with us - thank you, your voices are an important force for change.
As 2025 draws to a close, here at Compassion in Dying we’ve been reflecting on a significant year for personalisation and patient power in end-of-life care.
Our latest blog explores some of the activities and moments we are proud of from the last 12 months.
Dying people’s voices must be at the centre of design and delivery.
Our latest blog responds to the government’s prioritisation and commitment to improve Palliative and End of Life Care through a new Modern Service Framework.
compassionindying.org.uk/blog-post/tu...
Ultimately, to ensure we are empowering people to make and record decisions about their treatment and care at the end of life, we must ensure digital systems are set up to enable preferences to be shared seamlessly.
The next stages of the SPR must incorporate people in the last year of life and include the option to complete advance care planning within the delivery of the NHS App.
As we look towards plans for developing the Single Patient Record (SPR) and the NHS App, we are working hard to ensure that the voices of people experiencing end of life care are not forgotten.
People continue to tell us that a lack of adequate digital systems to share end-of-life wishes causes anxiety and poor experiences at the end of life.
People tell us when their wishes are not known about, they face treatments and admissions to hospital that they did not want.
It’s been almost two years since the HSJ published our piece highlighting how dying people are being failed by the NHS’s approach to sharing information.
Unfortunately, from what we hear through the people we support, not much has changed.
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New blog post - 90-year-old woman and her advance decision to refuse treatment
openjusticecourtofprotection.org/2025/11/05/p...
Several or our staff members pictured at the conference
We're delighted to be at the @helplinesuk.bsky.social Annual Conference & Helpline Awards today.
We're thrilled to be nominated for Helpline of the Year 2025 alongside AgeUK Nacoa UK Safeline UK Self Injury Support SWGfL.
At @compassionindying.bsky.social we decided to FOI NHS Trusts to see their advance decision / MCA policies.
Here's our thinking about why that might help us diagnose some problems and help the people we support when they have trouble at hospitals.
Thank you to the @nursingstandard.bsky.social for having me to write this piece. Happy to connect with any fellow nurses thinking about transitioning to work within the charity sector.
“We provide a human connection in a disconnected system”
In this latest article from RCNi, specialist nurse Amber reflects on joining our clinical team and how prioritising people through phone-based support acts as a crucial safety net in end-of-life care.
rcni.com/nursing-stan...
Our latest blog explores how we can meet people’s needs and why the third sector should be leading the way.
If you are interested in exploring collaborative solutions to support the people you work with, we would love to hear from you.
Providing accessible and clear information to the public about options available to them as they approach the end of life is crucial. If we are to ensure people are supported if the law changes, we need to start thinking now about what people need.
People tell us that they want to be able to make informed decisions about their end-of-life treatment and care. But, despite there being information they would like to know about the proposed change in law, currently they are not able to find what they need.