As a 12 year out KTR my attempts to find a nephrologist to see me between my once a year clinic visits have been futile. I appreciate this article.

RKDF Events: Join Upcoming Rare Kidney Disease Events Discover Rare Kidney Disease Foundation events! Learn about ADTKD, find event details, and join our community.

Autosomal Dominant Tubulointerstitial Kidney Disease (ADTKD) is a group of rare, inherited disorders that cause progressive kidney failure. It is diagnosed through genetic testing. Find out more at a free virtual summit. Details here rarekidney.org/events

Look them up: “Asian jumping worms (Amynthas spp.) are an invasive species from East Asia … They rapidly consume leaf litter, changing soil structure to a grainy, coffee-ground-like texture, which harms native plants, fungi, and animals that rely on the forest floor's organic layer.”

Not if they’re the jumping worms 😬

Thank you for running this article. It is believed that the incidence of ADTKD is much higher than previously thought. More info for patients and physicians at rarekidney.org

Review Gives Insight Into ADTKD | Docwire News A review described the clinical characteristics and subtypes of autosomal dominant tubulointerstitial kidney disease (ADTKD), a common monogenic cause of kidney failure.

What should clinicians know about ADTKD? A recent review details disease subtypes, genetic testing, and practical management considerations. #nephrology #ADTKD #nephsky #kidneydisease www.docwirenews.com/post/review-...

It hardly matters if the policy regarding kidney disease has been improved if people are losing their healthcare, their ability to be housed, their ability to eat, their feeling of safety, etc. To be so myopic seems like a grave disservice to kidney patients and all Americans.

Really?

Thank you for sharing this. As an ADTKD patient/family our hope is for a treatment. As work progresses towards a clinical trial more patients need to be identified and added to the registry. Rarekidney.org

Thank you for spreading the word!

Inherited Kidney Diseases Inherited kidney diseases are genetic conditions that can run in families. They include ADPKD, Alport syndrome, and more. Genetic testing helps in diagnosis and management.

Inherited Kidney Diseases www.kidney.org/kidney-topic... via @NKF

NKF—Don’t forget about us ADTKD patients! Please add ADTKD/UMOD and ADTKD/MUC1 to your list of genetic kidney diseases.

Did You Miss The Broadcast Tonight With DR SHARON M. MCGRODER -- ADTKD patient, author, and EXECUTIVE DIRECTOR OF THE RARE KIDNEY DISEASE FOUNDATION. RDKF is dedicated to stopping ADTKD & finding a cure! Catch The Instant Replay Here! PLEASE LIKE AND SHARE!
www.youtube.com/live/_HdPuS3...

Wonderful presentation by Sharon McGroder explaining why a rare kidney disease (ADTKD) is not so rare as once thought.

Patient-Led Innovations Summit Points to a Bright Future for Kidney Care | Docwire News The 7th Annual Global Summit on Kidney Disease Innovations included sessions on rare kidney diseases, biomarkers, human organ alternatives, and more.

The 7th Annual Global Summit on Kidney Disease Innovations highlighted the past and exciting future of kidney care. #kidneydisease #nephrology #nephsky #GlobalKidney2025 www.docwirenews.com/post/patient...