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Posts by Ilene Ruhoy MD PhD

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Long COVID Treatment Guide An evidence-supported guide covering treatments addressing multiple Long COVID symptoms & mechanisms — focused on prescription medication, with a limited set of supplements, OTC medications, procedure...

We're thrilled to release the #LongCovid Treatment Guide! This is a collaboration with @rthm.bsky.social to help patients & providers explore treatment options together.

The guide focuses on 24 medications, but includes a few other interventions for breadth /1

1 month ago 313 188 8 29

I’ve ordered it for a patient. I’ll let you know.

2 months ago 2 0 0 1

We should all be this angry.

2 months ago 3 0 0 0

The gaslighting by government officials elected to protect our democracy and our lives terrifies me. When will this lunacy end and at what cost?

3 months ago 0 0 1 0
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www.mdpi.com/books/reprin...

5 months ago 4 1 0 0
ME/CFS, Long Covid, and Rapamycin
ME/CFS, Long Covid, and Rapamycin YouTube video by Unraveled: Understanding Complex Illness

Just a reminder that our Unraveled episode discussing Rapamycin, Long Covid, ME/CFS is now online:

www.youtube.com/watch?v=W_aw...

7 months ago 20 11 2 0

@ruhoy.bsky.social just found you from the Bendy Bodies podcast! Wow, mind blown, I learned so much!! Thank you, ordering your book now!!

9 months ago 4 1 1 0
Misunderstood and Misdiagnosed: A New Look at ME/CFS
Misunderstood and Misdiagnosed: A New Look at ME/CFS YouTube video by National Headache Foundation

Talk with @ruhoy.bsky.social Do Not miss that!
Misunderstood and Misdiagnosed: A new Look at ME/CFS
#Septad #MCAS #Dysautonomia #POTS #OI #ConnectiveTissue #EDS #hEDS #CCI #SmallFiberNeuropathy #Autoimmunity #Infections #Sibo #LongCovid #LongLyme #LongSomething

youtu.be/kmrUpXZel9A?...

10 months ago 15 6 0 0
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And a forever neurodegenerative problem

10 months ago 2 0 0 0

Maybe you could share this, I would appreciate it: #documentary #ChronicallyIgnored
@kaufmanmd.bsky.social @ruhoy.bsky.social @cortjohnson.bsky.social @davetuller1.bsky.social @owasow.bsky.social @ahandvanish.bsky.social @irishmecfsassoc.bsky.social @meactnet.bsky.social @remissionbiome.bsky.social

10 months ago 8 9 0 0

Ditto what David said!!

10 months ago 3 0 0 0
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Post from Unraveled: Understanding Complex Illness - YouTube NEXT LIVE (Ask Us Anything) DATE: MAY 10th, 11 am PDT Link: https://us06web.zoom.us/j/88560709706?pwd=QPz5YjGQTHI9hXmyzmZ49rZjp9HlIG.1 Bring your questions, ...

youtube.com/post/UgkxSZf...

Our next Ask Us Anything! May 10th.
@kaufmanmd.bsky.social

11 months ago 8 1 0 1
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New: A 64-page HHS restructuring proposal outlines sweeping cuts to US public health. Here it is, in its entirety.

Kiss research goodbye for CFS, Covid, other emerging infections and the rapidly expanding (and devastating) world of Infection Associated Fatiguing Illnesses.
More murder. RFK and Trump have blood on their hands, not that they give a shit.

insidemedicine.substack.com/p/new-a-64-p...

11 months ago 10 4 0 1
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The Spike Protein, the Extracellular Matrix (ECM) and the Gut Barrier: Recruiting an Army of Pathogens The Spike/ECM interaction disrupts the intestinal barrier allowing in an army of pathogens: Further evidence that COVID may, ultimately, be a connective tissue disease.

Long Covid is a connective tissue disease.

open.substack.com/pub/wmcresea...

1 year ago 7 2 1 0

I have so much fun chatting with David about every topic under the sun related to complex disease. We laugh, we cry, we pontificate. Subscribe today!!

1 year ago 8 3 1 0
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Post from Unraveled: Understanding Complex Illness - YouTube RESCHEDULED!!!!!! We are sorry about having to cancel the last LIVE. But we have rescheduled for Sunday, March 23rd at 11 am PACIFIC (PST). Here is the link:...

youtube.com/post/UgkxlGf...

@kaufmanmd.bsky.social

1 year ago 2 0 0 0
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Post from Unraveled: Understanding Complex Illness - YouTube We've scheduled our next "Ask Us Anything" on March 15th for one hour at 11 am PST. We love to interact with subscribers and patients and loved ones of patie...

@kaufmanmd.bsky.social and I scheduled our next live Q&A session.

youtube.com/post/UgkxplE...

1 year ago 13 6 0 0

My patients have a far greater chance of central causes of their sleep apnea than obstructive airways.

1 year ago 5 0 1 0

Also transforming mast cell reactivity in those with MCAS. Not yet clear if it’s direct effect on mast cells or indirect from its effect on glucose regulation.

1 year ago 19 7 4 0

Had so much fun chatting with Dr. Bluestein on her podcast!! @hypermobilitymd @humancontentpods

drive.google.com/file/d/1nfGw...

1 year ago 6 0 0 0
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Venous Congestion with EDS Webinar YouTube video by Venous Congestion Committee

#JugularVenousCongestion #Neurology #Neurosurgery #LeadingExperts #CTD #EDS #MCAS
I thank those who crowdsourced to make this happen. Thank you to these passionate souls for your research and dedication. #Neurologists needs to see this.
@ruhoy.bsky.social
@kaufmanmd.bsky.social
#Medical#Webinar

1 year ago 7 2 1 0

Still time to register.

1 year ago 3 0 0 0
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Clinical Approach to Post-acute Sequelae After COVID-19 Infection and Vaccination The spike protein of SARS-CoV-2 has been found to exhibit pathogenic characteristics and be a possible cause of post-acute sequelae after SARS-CoV-2 infection or COVID-19 vaccination. COVID-19 vaccine...

Spike persistence

pmc.ncbi.nlm.nih.gov/articles/PMC...

1 year ago 5 2 0 0
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“…spike protein is a highly persistent, potentially pathogenic substance that may incite inflammation and tissue damage in almost all organ systems…”

1 year ago 8 1 0 0
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Air pollution and brain damage: what the science says Epidemiological studies have linked dirty air to dementia and other brain disorders. Now researchers are trying to determine how pollutants do their damage, and how much harm they cause.

www.nature.com/articles/d41...

1 year ago 12 6 0 0
Small Intestine Bacterial Overgrowth
Small Intestine Bacterial Overgrowth YouTube video by Unraveled: Understanding Complex Illness

Podcast we recorded on SIBO just posted. Subscribe today.
youtu.be/x12FV7DdR7w?...

1 year ago 8 2 0 0

Great episode. I love listening to @kaufmanmd.bsky.social & Dr Ruhoy, not always because they always have great info, but their style of communicating is so fun!

1 year ago 12 4 1 0
TICK BORNE DISEASE
TICK BORNE DISEASE YouTube video by Unraveled: Understanding Complex Illness

New video on tick borne disease posted. Subscribe today to our YouTube channel #Unraveled www.youtube.com/@Unraveledpod. @kaufmanmd.bsky.social

youtu.be/kUdt4-jkBRM?...

1 year ago 9 2 0 1
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Frontiers | Comorbidities and neurosurgical interventions in a cohort with connective tissue disorders

www.frontiersin.org/journals/neu...

1 year ago 12 2 1 1
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Welcome! You are invited to join a webinar: Venous Congestion with EDS Webinar. After registering, you will receive a confirmation email about joining the webinar. Join us on February 2nd at 6 pm pm ET on Zoom for a webinar about venous congestion with a focus on EDS. This event will include a presentation from Dr. Ferdinand Hui, a panel discussion with some of ...

Venous congestion and #EDS webinar February 6th at 6 pm EST . Register here: bit.ly/vcweds

1 year ago 10 1 1 2