Great to bring together 70+ researchers & partners at the LifeArc Centre for Rare Mitochondrial Diseases Annual Meeting in Cambridge last week!
From scientific updates and flash talks to patient voice discussions it was a day full of insight and collaboration!
Great to see such a strong turnout, and a continued emphasis on collaboration - with patient organisations as well as across clinical and scientific disciplines
Looking forward to seeing how these conversations shape future research and, ultimately, improve outcomes for people living with mito
We’re thrilled to announce the incredible Bryan Redpath as our celebrity guest speaker for this year’s Lily South West Golf Day at Cumberwell Park Golf Club ⛳✨
Spaces fill quickly, so be sure to secure your spot as soon as possible!⬇️
https://ow.ly/Njgb50YNmTX
We Need YOU!🩷
There's not long left to get our final votes in for the Smiley Film Awards Finals!
For a chance for us to win we need you to vote for us. It's completely free to do and could help us to win!
Thanks in advance - The Lily Team x
Vote for us ⬇️
https://ow.ly/CbcR50YMsTF
What does it take to make a difference for people affected by mitochondrial disease?
One leap. One decision. One brave moment!✈️
Join us at one of five UK locations:
Durham | Nottingham | Old Sarum (Salisbury) | Peterborough | Whitchurch
https://ow.ly/y2Mn50YES3j
After a hugely successful night in 2025, we’re thrilled to announce that the laughter is heading back up north!!
🎟️ Grab your tickets and join us for a night of laughter that makes a difference.
www.thelilyfoundation.org.uk/charity/get-involved/eve...
Meet Albi 🐶 - Tom’s incredible guide dog.
We thought it would be a great idea to let Albi do the talking… and show just how special these companions really are 🩷
Send lots of love to Albi, and celebrate your own amazing pets by sharing their photos in the comments! 📸🐕🐈 #NationalPetDay
Recent recognition for Prof Bobby McFarland in the TIME100 Most Influential People in Health 2026 highlights the growing impact of mitochondrial research worldwide.
We spoke to him about what this means for patients and the future of mitochondrial research.
Read more 👇
https://ow.ly/Bowj50YFvke
Take the leap for Lily ✈️
What does it take to make a difference for people affected by mitochondrial disease?
One leap. One decision. One brave moment!
Ready for the ultimate adrenaline rush?
Sign up today and be part of something incredible.
https://ow.ly/kHh550YES4n
After a hugely successful night in 2025, we’re thrilled to announce that the laughter is heading back up north!!
Wednesday 1st July 2026 we return to the legendary Frog & Bucket Comedy Club in Manchester for another unforgettable evening of stand-up.
https://ow.ly/BU3850Yosg5
We've worked really hard to create a easy accessible guide for those who are facing a new diagnosis of mitochondrial disease. 📖🩷
It's perfect for reading through for yourself or to send to a loved one to help keep them informed. Check out our fabulous new guide to mito.⬇️
https://ow.ly/391g50Yoxyj
🎉 The Big Lily Quiz is here! 🎉
This is your chance to host your own quiz night and raise funds to fight mitochondrial disease.
Getting started is easy:
👉 Sign up
👉 Pick a date
👉 Send out your invites
👉 Let the quiz begin!
Sign up today 👇
https://ow.ly/JKtC50YB5bG
✨ We raised £100,000! ✨
Our Burlesque Ball was a night of glamour, sparkle and real impact, helping drive mitochondrial research forward.
Thank you to everyone who made it possible 💫
Read more 👇
https://ow.ly/ivEt50YACsF
#MitochondrialDisease #Fundraising #Hope
We’re a Smiley Film Awards finalist for our short film “What It Takes.” 🏆
Voting has reopened now that the finalists have been announced, which means you can vote for our film again if you’ve already voted before!
Thank you so much for supporting us! 🙌
https://ow.ly/Qrvn50Yrlq1
Epilepsy is common in mitochondrial disease and recognising the link improves diagnosis and management.
On our Research Zone, you can hear from Paediatric Neurology Registrar Dr Thiloka Ratnaike on why awareness matters.
https://ow.ly/THT950Ytorp
#PurpleDay #EpilepsyAwareness
We’re a Smiley Film Awards finalist for our short film “What It Takes.” 🏆
Voting has reopened now that the finalists have been announced, which means you can vote for our film again if you’ve already voted before!
Thank you so much for supporting us! 🙌
https://ow.ly/BH4i50Yrl0j
We went to Parliament this week to launch LifeArc's newest report ✨
We are grateful to have been included in this important moment.🩷
Click here to read the report - https://ow.ly/Rrju50YwJ6o
✨ Lily Adult Support Weekend 2026 ✨
We’re delighted to share that our Lily Adult Support Weekend will take place on 14th-16th August 2026 at Chesford Grange Hotel, Kenilworth.
Read more:
www.thelilyfoundation.org.uk/affected-by-mito/here-to...
✨ Don’t forget to grab your tickets! ✨
Hosted by award-winning comic, author, actor and broadcaster Dominic Holland! 🎤🌟
You won’t want to miss it! 🙌
www.thelilyfoundation.org.uk/charity/get-involved/eve...
After a hugely successful night in 2025, we’re thrilled to announce that the laughter is heading back up north!!
Wednesday 1st July 2026 we return to the legendary Frog & Bucket Comedy Club in Manchester for another unforgettable evening of stand-up.
https://ow.ly/BU3850Yosg5
Lizzy's spent years, and thousands of pounds, travelling the world in search of answers to daughter Mathilde’s health problems.
Today, that journey's come full circle thanks to our Precision Diagnostics project.
Read their story:
https://ow.ly/TxgM50YqgK9
#MitochondrialDisease
See how you helped to make a real difference last year 🤩🙌
Read The Lily Foundation Impact Report for 2024/25.
Read it here -
www.thelilyfoundation.org.uk/media//the_lily_foundati...
Our Fundraising Teams come together in honour of someone special 🩷
And we have some exciting news… our brand new leaflets and banners have arrived and they look absolutely amazing! ✨ We couldn’t be more proud – check them out!
Join us at Cumberwell Park Golf Club in the beautiful Wiltshire countryside for a fantastic day of golf, food and fundraising in support of The Lily Foundation.
If you're interested check out our website — this event sells out fast, so don’t miss your chance to be part of it!🔥
Rare Disease Day is TOMORROW!
This year, we're shining a light on mitochondrial disease — a rare genetic condition that affects the body’s ability to produce energy. Mitochondrial disease is just one of around 7,000 rare diseases recognised worldwide.
#RareDiseaseDay2026
This Saturday is Rare Disease Day 🩷
We’re raising awareness of mitochondrial disease...
The Lily Foundation are working tirelessly, week in, week out, to fund research, support families, and fight for better outcomes for those affected.
This Saturday is #RareDiseaseDay2026 !
Did you know there’s still no cure for mitochondrial disease? The Lily Foundation are fighting to change this and have invested over £3 million in pioneering research since 2007!
Share to show you care 🩷
This Saturday is Rare Disease Day 🩷
Rare diseases aren’t as rare as you think – over 300 million people worldwide are living with one...
Join with us to break the stigma and help spread the word on #RareDiseaseDay2026
Ahead of #RareDiseaseDay, please join us to educate and increase awareness
about rare mitochondrial diseases
Show you care and share, let's shout about mitochondrial disease and raise awareness around it!🩷 #MitochondrialDisease #Awareness
#RareDiseaseDay is one day each year dedicated to increasing awareness of the
3.5 million people living with a rare disease.
Please help to raise awareness and help The Lily Foundation put mito on the map 🗺️ this rare disease day!
