Patient, Family and Donor Research Forum 2026 The Canadian Donation and Transplantation Research Program (CDTRP) will host the 7th edition of the Patient, Family and Donor Research Forum from June 8-10, 2026. Each year, the PFD Research Forum pro...

Patient, Family and Donor Research Forum 2026 – Canadian Donation and Transplantation Research Program cdtrp.ca/en/patient-f...

Hand in Glove: Health Equity and Learning Health Systems e-space.mmu.ac.uk/644315/1/Lea...

A critical reflective analysis of patient and public involvement in a programme of heart failure with preserved ejection fraction research - Research Involvement and Engagement Introduction There are very few reports of patient and public involvement (PPI) initiatives in cardiovascular disease research and even fewer in heart failure, the eventual end point of many cardiovas...

A critical reflective analysis of patient and public involvement in a programme of heart failure with preserved ejection fraction research | Research Involvement and Engagement | Springer Nature Link link.springer.com/article/10.1...

Frontiers | Stimulating co-production in healthcare quality improvement Enhancing the willingness Raising the interest of health professionals to collaborate with patients There is ample evidence that patients contribute substantially to quality improvement, i.a. by offering perspectives and opportunities for improvement not ne...

Frontiers | Stimulating co-production in healthcare quality improvement Enhancing the willingness Raising the interest of health professionals to collaborate with patients www.frontiersin.org/journals/hea...

An examination of how patient and public involvement is used and valued in the clinical research approval process www.magonlinelibrary.com/doi/pdf/10.1...

Empowering Communities, Educating Researchers: Reflections on Researcher Training Through the 'Be the Voice of Your Community' Public and Patient Involvement (PPI) Event | Research Square www.researchsquare.com/article/rs-9...

Co-creating discovery in basic science: Challenges and opportunities in patient-partnered research for rare liver disease utppublishing.com/doi/pdf/10.3...

Development of the RIPPLES framework for patient and public involvement in rapid evidence syntheses - Research Involvement and Engagement Background Patient and public involvement (PPI) is an expectation and requirement of health and social care research within the United Kingdom. Although there is available guidance on how to practice ...

Development of the RIPPLES framework for patient and public involvement in rapid evidence syntheses | Research Involvement and Engagement | Springer Nature Link link.springer.com/article/10.1...

Independent Cancer Patients' Voice - Home  UA-18949293-3

Independent Cancer Patients' Voice - Home www.independentcancerpatientsvoice.org.uk

Independent Cancer Patients' Voice - About Us Find out more about who we are and what we do at Independent Cancer Patients' Voice

Independent Cancer Patients' Voice - About Us www.independentcancerpatientsvoice.org.uk/about-us/

Assistant Manager/Senior Executive, Office of Patient Engagement [LKCMedicine] The Office of Patient Engagement (OPEN) brings patient and public voices into medical research and education in LKCMedicine. OPEN works with researchers and educators to integrate patient and public i...

Create Account ntu.wd3.myworkdayjobs.com/en-US/Career...

Independent Cancer Patients' Voice - About Us Find out more about who we are and what we do at Independent Cancer Patients' Voice

Independent Cancer Patients' Voice - About Us www.independentcancerpatientsvoice.org.uk/about-us/

Strategic Science Fund ised-isde.canada.ca/site/strateg...

Towards a Justice-Based Reimagination of Digital Health Research and Innovation: Actionable Considerations for Learning Health Systems

Towards a Justice-Based Reimagination of Digital Health Research and Innovation: Actionable Considerations for Learning Health Systems - University of Southern Denmark portal.findresearcher.sdu.dk/en/publicati...

Strengthening Rural and Remote Health Equity Across the Interior through Indigenous and Community Leadership IHRW 2026 Agenda ihrw2026agenda.my.canva.site

Public and patient involvement: exploring public partnership in pathogen whole-genome sequencing research and its data visualisation Pathogen genomics is increasingly used in publicly funded studies and has important implications for understanding infectious diseases and their spread. However, unlike many other research areas, it h...

Public and patient involvement: exploring public partnership in pathogen whole-genome sequencing research and its data visualisation | Microbiology Society www.microbiologyresearch.org/content/jour...

Human-centered design of an exercise intervention for adolescent cancer patients: findings from a patient involvement workshop to inform intervention development | Trials | Springer Nature Link link.springer.com/article/10.1...

Training Adolescents and Young Adults to be Partners in Research: Co-Creating the Young Patients' Autoimmune Research and Empowerment Alliance - PubMed All Project Team Members and Council Members identify as patients with autoimmune conditions. Young patients co-designed all the activities included in this manuscript unless otherwise stated, co-conducted the evaluation, and co-authored this manuscript.

Training Adolescents and Young Adults to be Partners in Research: Co-Creating the Young Patients' Autoimmune Research and Empowerment Alliance - PubMed pubmed.ncbi.nlm.nih.gov/41937452/

Measuring the impact of lived experience and caregiver engagement in research on the research conducted: development and pilot testing of an assessment tool Background. People with lived/living experience of health conditions, as well as caregivers, are increasingly engaged in research. This study aimed to develop and pilot test a new tool measuring the i...

Measuring the impact of lived experience and caregiver engagement in research on the research conducted: development and pilot testing of an assessment tool | medRxiv www.medrxiv.org/content/10.6...

Involvement of African patient populations in clinical trials on leprosy: a scoping review | Tropical Medicine and Health | Springer Nature Link link.springer.com/article/10.1...

Abstract 6359: Lineberger Excellence in Advocacy Program (LEAP): Implementation and evaluation of a comprehensive patient and community engagement program at the University of North Carolina to improve patient centered researchAmerican Association for Cancer Research aacrjournals.org/cancerres/ar...

Scope and Prospects of Social Media for Patient Education and Engagement in Medical Practice Social media has fundamentally altered the landscape of health communication, creating new opportunities for patient education, peer support, and clinical engagement in medical practice. Platforms suc...

Scope and Prospects of Social Media for Patient Education and Engagement in Medical Practice | Cureus www.cureus.com/articles/477...

Abstract 6361: Patient and patient engagement in cancer clinical trials in low- and middle-income countries | Cancer Research | American Association for Cancer Research aacrjournals.org/cancerres/ar...

Promoting reconciliation through research [See related article at www.cmaj.ca/lookup/doi/10.1503/cmaj.251824][1] Key points In this issue of CMAJ , Geboe and colleagues present the results of a qualitative community-based participatory study...

Promoting reconciliation through research | CMAJ www.cmaj.ca/content/198/...

Designing for Patient Voice in Interactive Health arxiv.org/pdf/2604.01558

Integrating patient and public involvement into
a study on orthodontic white spot lesions

How can young people’s views improve
orthodontic research? We examine how
PPI informed study design, highlighted
lived experiences of WSLs...
publishing.rcseng.ac.uk/doi/pdf/10.1...

The use of Experience-based Co-design with Patients and Health Care Professionals in Development of an Intervention for Integrated HIV and NCDs Care in Health Care Settings: A Systematic Review openpublichealthjournal.com/VOLUME/19/EL...

Co-designing interventions for patients with inflammatory arthritis: a systematic review | Systematic Reviews | Springer Nature Link link.springer.com/article/10.1...

Improvement of a BCI-enabled Boccia ramp through a patient engagement strategy Aims: The right to play is a basic human right. However, sport participation is often limited for children with complex motor disabilities. We developed a brain-computer interface (BCI)-enabled Boccia...

#Patientengagement - Improvement of a BCI-enabled Boccia ramp through a patient engagement strategy www.sciexplor.com/articles/ec....

(PDF) Gender relations, prostate cancer and diet: Re-inscribing hetero-normative food practices PDF | Although diet might be a valuable adjunct to prostate cancer care, men typically have poorer diets than women and are less likely to change the... | Find, read and cite all the research you need...

15th anniversary of my article: Gender relations, prostate cancer and diet: Re-inscribing hetero-normative food practices

www.researchgate.net/publication/...