Read and share our research on #LongCOVID Eyes from our Instagram and Facebook platform:
www.instagram.com/p/DXWyP6SkTfL/
www.facebook.com/share/p/18hS...

"Long COVID eyes may be a leading sign of Long COVID," highlighting the critical need for more inclusive diagnostic criteria and personalized, comprehensive care. Protecting our health from #LongCOVID requires a layered approach to prevention.  #MaskTogetherAmerica #CleanAir

👁️✨ Additionally, research suggests COVID-19 can be contracted through the ocular surface via direct contact, tear-mediated transmission, or aerosol exposure. Read the review (Viruses, Jan 5, 2025) 
www.mdpi.com/1999-4915/17...

⚠️ Long Haulers with eye symptoms reported greater financial difficulties, housing instability, & higher rates of new-onset dysautonomia, GI Issues, ME/CFS, & migraines. Key differentiating #LongCOVID symptoms include dizziness, cold intolerance, pressure at the base of the head, tinnitus, tremors.

Ocular symptoms in long COVID | OPTH | Dove Medical Press To compare individuals experiencing long COVID with and without ocular symptoms to determine if these symptoms indicate a more severe long COVID phenotype.

In the survey of a #LongCOVID cohort (conducted May 2022 – Oct 2023), 57% of participants self-reported new-onset ocular symptoms, including blurred vision, dry eyes, or floaters/flashes of light. doi.org/10.2147/OPTH...

Ocular symptoms in long COVID | OPTH | Dove Medical Press To compare individuals experiencing long COVID with and without ocular symptoms to determine if these symptoms indicate a more severe long COVID phenotype.

👁️✨A @YaleMed study reveals that #LongCOVID eye symptoms are associated with a more severe phenotype. Patients often experience greater health declines and face significant socioeconomic challenges.
Read the study (Clinical Ophthalmology, Oct 22, 2025): doi.org/10.2147/OPTH...

New research from Northwestern Medicine reveals link between long COVID and eye health Retinal imaging could offer new perspectives on long COVID’s impact

Lead author Dr. Manjot K. Gill noted that the findings bridge the gaps between ophthalmology, neurology, and COVID-19, helping us see how inflammation affects organs like the brain, potentially contributing to memory loss, brain fog... and fatigue. news.nm.org/new-research...
🧵

👁️✨@NorthwesternMed retinal imaging study of non-hospitalized LC patients shows a decrease in blood flow in the smallest vessels of the deeper retinal layers— may indicate reduced blood circulation in the brain, potentially leading to neurologic symptoms.
www.mdpi.com/2313-433X/11...

Visual: The author’s eye Headline: EYES: The Window to Long COVlD
Subhead: Highlighting two key studies on ocular health and Long COVlD Non-Hospitalized Long COVlD Patients Exhibit Reduced Retinal Capillary Perfusion: A Prospective Cohort Study (Journal of Imaging, Feb 16, 2025)  Ocular Symptoms in Long COVlD: A Cross-Sectional Study (Clinical Ophthalmology, Oct 22, 2025)

EYES: The Window to #LongCOVID
Sharing Two 2025 studies:
Non-Hospitalized LC Patients Exhibit Reduced Retinal Capillary Perfusion: A Prospective Cohort Study (Journal of Imaging, Feb 16)
Ocular Symptoms in LC: A Cross-Sectional Study (Clinical Ophthalmology, Oct 22)
www.instagram.com/p/DXWyP6SkTfL/

Urge Senators to sign the Letter to support $210M in LC research for the FY27 appropriations bill.
Call: win.newmode.net/longcovidcam...
Email: win.newmode.net/longcovidcam...

MaskTogetherAmerica on Instagram: "“Something like 50% of COVlD cases are asymptomatic now, so it’s impossible to know who’s contagious. Wearing a mask is just plain common sense.”—Behind the Facemoon... 124 likes, 2 comments - masktogetheramerica on April 18, 2026: "“Something like 50% of COVlD cases are asymptomatic now, so it’s impossible to know who’s contagious. Wearing a mask is just plain commo...

Read interview of Erin Ahrens @erin7696.bsky.social by @msjulieslam.bsky.social on IG and FB to learn about #LongCOVID
www.instagram.com/p/DXSDq8ckczx/

www.facebook.com/share/p/18cU...

Erin, suffering from Long COVlD eyes, made a selfie wearing a black Facemoon KN95 respirator with a matching black T-shirt, while sitting inside a car.

“Something like 50% of COVlD cases are asymptomatic now, so it's impossible to know who’s contagious. Masking is just plain common sense.”—Erin Ahrens @erin7696.bsky.social is devastated by #LongCOVID eyes, in addition to a serious C19-exacerbated chronic condition.
www.instagram.com/p/DXSDq8ckczx/

You are welcome! 🙏🏻😷💕

Thank you for spreading the word and for giving visibility to #LongCovid 💪😷🫂❤️

Long COVID Defense Series III featuring 6 Virtual Q&A Sessions — Mask Together America March 4, 2026, 4:30pm - 9:00pm EST Join Long COVID Defense Series III to honor patients and their allies who are tirelessly advocating for health justice in this historical struggle. On March 4, 2026....

Support Long Haulers 🩵🤍🖤❤️‍🩹🫂😷masktogetheramerica.org/blog/long-covid-defense-...

“Nothing about us without us.” Delphine Crespo, President of Association of Long COVID Aragon @longcovidaragon.bsky.social explains what the Global Long COVID Declaration stands for. Watch #MaskTogetherAmerica LC Defense Series III. Support Long Haulers 🩵🤍🖤❤️‍🩹😷
masktogetheramerica.org/blog/long-co...

💐 Thank you to both you and Betsy!!! 💐💐💐

✨Meet Leticia Urieta, @leticiaasu.bsky.social join us to cheer for our talented masked poet. ✨ Thank you for your love and support on this pandemic documentary story project by @msjulieslam.bsky.social!
www.instagram.com/p/DXMioucEZPf/
www.facebook.com/share/p/18rC...

Wearing a light purple KF94 respirator, Leticia is reading her poetry chapbook, Offerings to a Tumbled Temple, at a poetry workshop with Gemini Ink, San Antonio’s Writing Arts Center. 

“I wear a mask, encourage better ventilation, air filtration, and other actions to protect myself… because all of us are vulnerable to damage from COVID and we deserve care.” —Leticia Urieta @leticiaasu.bsky.social author of ‘Offerings to a Tumbled Temple’, takes reality & community care seriously.

Strangely Optimistic - 2026 Easterseals Disability Film Challenge Entry YouTube video by Easterseals Disability Film Challenge

We are asking everyone to support two Long Haulers: our Julie Lam @msjulieslam.bsky.social and @ninastorey.bsky.social!
Watch + 👍

👉 www.youtube.com/watch?v=aaVm...

👉 fb.watch/Gj_jvwH4Ga/

They work super hard on this film for the Disability Film Challenge to raise awareness for #LongCOVID.

For Disability Film Chall, Long Haulers @ninastorey.bsky.social & @msjulieslam.bsky.social present Strangely Optimistic—a Dramedy that follows a day in the life of Nina in early 2021, as she navigates devastating chronic symptoms, medical gaslighting & abandonment, with a dark sense of humor & grit.

We want answers and this is one! We need to educate the physicians!

We want answers and this is one! We need to educate the physicians!

We want answers and this is one! We need to educate the physicians!

I had dysautonomia before COVID.
So, COVID made it worse?

"Doctors call it Ondine’s curse—a catastrophic failure of the brain stem in which breathing no longer happens automatically, especially during sleep."

Hmmm might explain why when I was always masking but literally no one would and I initially got infected, how I dealt with insomnia and hypnogogic hallucinations and would wake up gasping for breath like I just ran track.

“Are Long COVID patients haunted by the Ondine’s Curse?”—Sharing an article: “How COVlD Quietly Rewires The Brain” By Jason Gale, published in The Journal of Advanced Practice Nursing. (Nursing Journals: American Society of Registered Nurses) https://www.asrn.org/journal-advanced-practice-nursing/3449-how-covid-quietly-rewires-the-brain.html Visual: an illustration of a brain 🧠 partially highlighted in green.

COVID can damage the brain stem & leads to "Ondine’s Curse" signs: failures in automatic breathing, dysautonomia, cognitive decline, even death. The brain doesn’t always bounce back. Protect your health. 😷 Jason Gale's report: www.asrn.org/journal-adva...
ANN: www.instagram.com/p/DXIdZTOEei...

Support #MaskTogetherAmerica. Read and share our work.
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www.instagram.com/p/DXFc5ecEcvD/

Melissa Mazur, wearing a black BNX N95 respirator, a beanie, a “Philadelphia Eagles” hoodie on South Broad Street in front of City Hall in Philly.

“I #MaskUp because I don’t want to become further disabled by another infection.”—Melissa Mazur @phillyphile215.bsky.social, a first wave COVID long hauler who got sick in March 2020 and never got better. Read Interview by @MsJulieSLam.bsky.social

www.instagram.com/p/DXFc5ecEcvD/