Donate to MEAction UK here: givi.ng/14uh
Posts by #MEAction Scotland
You can use the hashtags #BlueSunday2026 and #TeaPartyForME2026
- Connect with others online who are doing the same, by commenting on their posts
- Donate the price youโd pay in a cafรฉ to an M.E. charity, and/or
- Invite others to enjoy tea and cake with you in-person, via video call, or by sharing photos, and/or
- Post a photo of your tea party set-up to social media, and/or
- Bake or buy your favourite cake, and/or
- Dig out your best cups and saucers, and/or
- Wear something blue (pyjamas count!), and/or
๐๐ฑ๐ฒ๐ฎ๐ ๐ผ๐ป ๐ต๐ผ๐ ๐๐ผ ๐ท๐ผ๐ถ๐ป ๐ถ๐ป ๐ผ๐ป ๐ฆ๐๐ป๐ฑ๐ฎ๐ ๐ญ๐ณ๐๐ต ๐ ๐ฎ๐ ๐ฎ๐ฌ๐ฎ๐ฒ:
Others may be able to host or attend an in-person Tea Party For M.E. either at home, in the garden, or in a hired venue.
For most, this involves being in bed but for the occasion they might be wearing blue pyjamas, have a blue duvet set, have had their bedroom decorated with blue bunting or even balloons; anything to make the day feel that bit different from the everyday.
Blue Sunday centres around the online Tea Party For M.E., where the ME/CFS community takes to social media to chat and share photos of their tea party set-up.
Created in 2013 by the wonderful Anna Redshaw, the aim was to mould an inclusive fundraising event around her ill health and the restrictions that ME/CFS placed upon her life and the lives of the ME/CFS community.
Anna Redshaw a white women with long brown hair wearing glasses and a blue and white checked dress sits on a teal sofa holding a tea cup and saucer.
๐๐'๐ ๐๐ถ๐บ๐ฒ ๐๐ผ ๐ด๐ฒ๐ ๐ฟ๐ฒ๐ฎ๐ฑ๐ ๐ณ๐ผ๐ฟ ๐๐น๐๐ฒ ๐ฆ๐๐ป๐ฑ๐ฎ๐ ๐ฎ๐ฌ๐ฎ๐ฒ
BBC Radio 4 Feedback full segment. Listeners share their concerns about Dr Suzanne OโSullivanโs claim that #LongCOVID is psychosomatic. Includes an interview with @NickyProctor (11 mins)
youtu.be/Du4devaRH5w?...
Despite the fact that the DHSC's own final delivery plan (published July 2025) highlighted the URGENT need for specialist services for those with very severe ME
#MyalgicEncephalomyelitis #VerySevereME #HealthEquality
Ask your MP to put a health quesiton down on why the DHSC have paused action on commissioning a specialised service for very severe ME/CFS until April 2027 at the earliest.
The DHSC paused action on commissioning a specialised service for very severe ME/CFS until April 2027 at earliest. This isnโt acceptable @rthonwesstreeting.bsky.social!
Sign up for our mailing list meaction.org.uk/sign-up for more news.
#MyalgicEncephalomyelitis #VerySevereME
Another heartbreaking case of a very severe ME sufferer. Tomos is in Wales but there is nowhere treating the very severe anywhere in the UK.
www.bbc.co.uk/news/article...
#MyalgicEncephalomyelitis #VerySevereME
Blue background with dark blue and lilac text reading Don't Assume I'm ok. Change can be a kind of grief. There is a graphic of two people comforting each other on the right-hand side of the image. The logos of the Scottish Neurological Alliance, Northern Ireland Neurological Charities Alliance and the Welsh Neurological Alliance are in the bottom right-hand corner.
Children and young people
may grieve changed abilities, missed
milestones, friendships that slip, and a โbeforeโ life.
Want to know how to help?
Download this toolkit โก๏ธ
bit.ly/4qCMCkL
Montage of three photographs on a red background. Each of the photographs shows a female M E Action Scotland volunteer and a prospective parliamentary candidate for the SNP. Two of the candidates are female and one is male. All the people in the picture are white, facing the camera and smiling.
In an election year, speaking to prospective parliamentary candidates is more important than ever. Last weekend, our volunteers spoke to three PPCs @snp.org Spring conference - @thewliss.bsky.social Kate Campbell and Steven Bonnar
#MyalgicEncephalomyelitis #HealthEquality #MyalgicE
Green background with white and purple text reading Don't assume I'm ok I carry more responsibility than you know. There is a graphic of a young girl, looking sad, on the right hand side of the image. The logos of the Scottish Neurological Alliance, Northern Ireland Neurological Charities Alliance and the Welsh Neurological Alliance are in the bottom right-hand corner.
Many children and young people take on caring roles without identifying as a young carer. This can mean key support they are entitled to is missed.
Help make sure theyโre supported effectively.
Check out this toolkit
bit.ly/4qCMCkL
#BrainAwarenessWeek
#DontAssumeImOK
Dark green background with white text reading Don't assume I'm ok and a speech bubble containing the following quote 'That's the one thing I found really, really hard to come to terms with, people being like "but you look fine"' The logos of the Scottish Neurological Alliance, Northern Ireland Neurological Charities Alliance and the Welsh Neurological Alliance are in the bottom right-hand corner.
Children and young people affected by neurological conditions can hide the impact. This is known as โmaskingโ and can delay support.
Do you work with children and young people? Check out this toolkit
โก๏ธ bit.ly/4qCMCkL
#BrainAwarenessWeek
#DontAssumeImOK
Two photographs of a female M E Action volunteer with two SNP MSPs. The captions beside the photos read Thank you Ben MacPherson, MSP for all your past support and welcome Paul McLennan, MSP our new SNP Champion
#MEAction Scotland thank @BenMacpherson for his tireless support since our launch in 2018. Due to his recent appointment as a Minister, Ben is stepping down as our official parliamentary champion. We look forward to working with our new SNP champion, @PaulMcLennan7
#MyalgicE
Dark blue background with white and light blue text reading Don't assume I'm ok. I have a lot to cope with. The logos of the Scottish Neurological Alliance, Northern Ireland Neurological Charities Alliance and the Welsh Neurological Alliance are in the bottom right-hand corner.
Neurological conditions can co-occur with anxiety, depression, behavioural change and more.
Read our toolkit on how to support children and young people impacted by neurological conditions โก๏ธ
bit.ly/4qCMCkL
#BrainAwarenessWeek
#DontAssumeImOK
Dark blue background with white and green text reading Don't assume I'm OK. 1 in 6 people lives with a neurological condition. There is a graphic of a group of people on the right-hand side of the image. The logos of the Scottish Neurological Alliance, Northern Ireland Neurological Charities Alliance and the Welsh Neurological Alliance are in the bottom right-hand corner.
At least 1 in 6 people lives with a neurological condition, including children and young people. The mental health impact of these conditions can often be hidden or misunderstood.
Do you work with young people? Check out this toolkit
@neuroalscotland.bsky.social
bit.ly/4qCMCkL
#BrainAwarenessWeek
The Long Covid grey and blue ribbon on a blue background. Text reads Long Covid Awareness Day, March 15th, 2026
Today is Long Covid Awareness Day.
Now in its 4th year, this year's Long Covid Awareness Day focuses on the heart problems which can affect people living with Long Covid
#LongCovid #ChronicIllness #LongCovidAwareness
Photo montage of various members of the Scottish Parliament and M E Action Scotland volunteers at the Scottish National Party Spring conference.
During a busy day @theSNP Spring conference, #MEAction Scotland engaged with many MSPs, including Cabinet Secretary for Health and Social Care, Neil Gray, Minister for Public Health and Women's Health, @jennimintomsp.bsky.social and First Minister, @johnswinney.bsky.social
#MyalgicE #HealthEquality
Dark blue background with green and light blue text which reads Coming soon Brain Awareness Week 2026 (16-22 March) The logos of the Scottish Neurological Alliance, Northern Ireland Neurological Charities Alliance and the Welsh Neurological Alliance are in the bottom right-hand corner.
Brain Awareness Week is coming soon.
This year, we are raising awareness of the impact of neurological conditions on the mental health of children and young people.
Watch out for our posts throughout the week.
neuroalscotland.bsky.social
#BrainAwarenessWeek
#DontAssumeImOk