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Posts by IPAG Scotland

20 April 2026
Dear Foysol,
Thank you for your email of 7 April 2026 on behalf of one of your constituents with their concerns about
funding for diabetes technologies.
The Scottish Government remains committed to supporting access to clinically appropriate, safe and
effective diabetes care, including the use of technology where this is in line with clinical guidance and
individual need. This commitment is set out in the Scottish Government’s Diabetes Improvement Plan,
published in 2021 and concluded in March this year. It included a specific focus on expanding access
to diabetes technologies.
This is reflected in sustained investment since 2016. In total, the Scottish Government has invested
over £50 million to support access to diabetes technologies, including £29.6 million between 2016 and
2022, £8.8 million in 2024-25 to expand access to closed loop systems, and £14.6 million in 2025 -26
to support onboarding and to meet the recurring costs of consumables for people using this
technology.
Current position on Closed Loop Systems
Closed Loop Systems are now an established part of diabetes care for people with Type 1 diabetes in
Scotland. National clinical guidance, including NICE and SIGN, sets out the expectation that this
technology should be offered to people who are likely to benefit from it based on clinical assessment.
The Scottish Government funding has supported the expansion of access to closed loop systems over
recent years, and funding has now been baselined within NHS Boards’ allocations to ensure that the ongoing costs of consumables for people currently using a closed loop system will continue to be met.
In line with this approach, the Scottish Government is not providing further centrally held funding
specifically for expansion and is instead focusing on working with NHS Boards to embed closed loop
systems as a business as usual part of Type 1 diabetes care.

20 April 2026 Dear Foysol, Thank you for your email of 7 April 2026 on behalf of one of your constituents with their concerns about funding for diabetes technologies. The Scottish Government remains committed to supporting access to clinically appropriate, safe and effective diabetes care, including the use of technology where this is in line with clinical guidance and individual need. This commitment is set out in the Scottish Government’s Diabetes Improvement Plan, published in 2021 and concluded in March this year. It included a specific focus on expanding access to diabetes technologies. This is reflected in sustained investment since 2016. In total, the Scottish Government has invested over £50 million to support access to diabetes technologies, including £29.6 million between 2016 and 2022, £8.8 million in 2024-25 to expand access to closed loop systems, and £14.6 million in 2025 -26 to support onboarding and to meet the recurring costs of consumables for people using this technology. Current position on Closed Loop Systems Closed Loop Systems are now an established part of diabetes care for people with Type 1 diabetes in Scotland. National clinical guidance, including NICE and SIGN, sets out the expectation that this technology should be offered to people who are likely to benefit from it based on clinical assessment. The Scottish Government funding has supported the expansion of access to closed loop systems over recent years, and funding has now been baselined within NHS Boards’ allocations to ensure that the ongoing costs of consumables for people currently using a closed loop system will continue to be met. In line with this approach, the Scottish Government is not providing further centrally held funding specifically for expansion and is instead focusing on working with NHS Boards to embed closed loop systems as a business as usual part of Type 1 diabetes care.

This includes commissioning a rapid
value case to support consideration of future decisions through established NHS Scotland governance
arrangements.
NHS funding arrangements and accountability
Funding for NHS services, including diabetes care and associated technologies, is agreed through the
annual budget process and allocated to NHS Boards through established funding mechanisms. Where
time limited, targeted funding has been provided in previous years to support national expansion or
capacity, this has at times been accompanied by specific announcements. Where funding is
incorporated within Boards’ overall allocations, it is managed through routine financial processes and
does not typically involve separate ministerial announcements.
Decisions on how funding is deployed locally are taken by NHS Boards, working within national policy
frameworks, clinical guidance, and professional standards. Boards are expected to ensure that
decisions are clinically led and based on individual patient need, rather than cost alone, and to work to
minimise unwarranted variation in access across Scotland.
Supporting equitable access
The Scottish Government continues to work with NHS Boards and national partners to support equitable
access to diabetes technologies and to reduce unwarranted variation where possible, including through
national clinical networks and support arrangements designed to improve consistency of delivery.
Existing users of approved diabetes technologies should continue to receive care based on clinical
assessment and need. The Scottish Government recognises ongoing concerns about variation in
access and continues to work within available resources and established NHS structures to support
people living with diabetes across Scotland.
I hope this response addresses the points raised by your constituent and helps clarify the current
arrangements for funding and access to diabetes technologies.
Yours sincerely,
JENNI MINTO

This includes commissioning a rapid value case to support consideration of future decisions through established NHS Scotland governance arrangements. NHS funding arrangements and accountability Funding for NHS services, including diabetes care and associated technologies, is agreed through the annual budget process and allocated to NHS Boards through established funding mechanisms. Where time limited, targeted funding has been provided in previous years to support national expansion or capacity, this has at times been accompanied by specific announcements. Where funding is incorporated within Boards’ overall allocations, it is managed through routine financial processes and does not typically involve separate ministerial announcements. Decisions on how funding is deployed locally are taken by NHS Boards, working within national policy frameworks, clinical guidance, and professional standards. Boards are expected to ensure that decisions are clinically led and based on individual patient need, rather than cost alone, and to work to minimise unwarranted variation in access across Scotland. Supporting equitable access The Scottish Government continues to work with NHS Boards and national partners to support equitable access to diabetes technologies and to reduce unwarranted variation where possible, including through national clinical networks and support arrangements designed to improve consistency of delivery. Existing users of approved diabetes technologies should continue to receive care based on clinical assessment and need. The Scottish Government recognises ongoing concerns about variation in access and continues to work within available resources and established NHS structures to support people living with diabetes across Scotland. I hope this response addresses the points raised by your constituent and helps clarify the current arrangements for funding and access to diabetes technologies. Yours sincerely, JENNI MINTO

Our college got their MSP @foysolchoudhury.bsky.social to ask about the withdrawal of funding for Diabetes tech this is the shocking response from @jennimintomsp.bsky.social

1 day ago 5 1 1 2
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Fears diabetes tech rollout is about to stall A move to end central funding for life changing diabetes technologies, adding it instead to the annual budgets of Scotland

Article from @healthandcare.scot discussing the changes to the funding for Diabetes Tech in Scotland www.healthandcare.scot/mobile_defau...

1 week ago 2 2 0 0
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Access to life-changing diabetes technology risks stalling in Scotland Access to life-changing diabetes technology risks stalling in Scotland

Statement from The Royal College of Physicians of Edinburgh with a comment from Professor Mark Strachan a diabetes consultant.

www.rcpe.ac.uk/news/access-...

2 weeks ago 2 1 0 1
Urgent Alert: Changes to Diabetes Technology Funding in Scotland

The Scottish Government has announced a significant change in how diabetes technology is funded. As of April 2026, the current model, whereby the money for insulin pumps and sensors is allocated to a central fund, will cease, with the funding instead being devolved to individual Health Board budgets. 

This will effectively remove its "ring-fenced" status, abandoning the commitment, made as recently as January 2025, to provide this life-changing technology to those with Type 1 Diabetes. Decentralising  the funding for diabetes technologies will create a postcode lottery, and put at risk the  recent progress in T1D care.

What Are The Risks? 
Reduced Access - We anticipate a sharp decline in new pump starts. 
Increased Inequality - Patients in different Health Board areas will face vastly different levels of care.
Long-term Health Costs -  By limiting access to closed-loop technology, the NHS is effectively choosing to pay in the future for  for the treatment of preventable long term complications (eye, heart, kidney, and limb issues) rather than investing in the technology that would prevent them.

Scotland cannot afford to fall behind the rest of the UK. While NHS England is moving forward with a 5-year implementation plan for Diabetes technologies,  Scotland is dismantling its own infrastructure.

Our Demand.
We are calling for formal legislation to ensure that “SIGN 170” is fully adhered to. Access to diabetes technology must be a right, not a discretionary budget item. 

We are contacting the Scottish Government and national charities to demand accountability. We urge you to use your voice! Contact your local representatives today to voice your opposition to this change in funding.

Urgent Alert: Changes to Diabetes Technology Funding in Scotland The Scottish Government has announced a significant change in how diabetes technology is funded. As of April 2026, the current model, whereby the money for insulin pumps and sensors is allocated to a central fund, will cease, with the funding instead being devolved to individual Health Board budgets. This will effectively remove its "ring-fenced" status, abandoning the commitment, made as recently as January 2025, to provide this life-changing technology to those with Type 1 Diabetes. Decentralising the funding for diabetes technologies will create a postcode lottery, and put at risk the recent progress in T1D care. What Are The Risks? Reduced Access - We anticipate a sharp decline in new pump starts. Increased Inequality - Patients in different Health Board areas will face vastly different levels of care. Long-term Health Costs - By limiting access to closed-loop technology, the NHS is effectively choosing to pay in the future for for the treatment of preventable long term complications (eye, heart, kidney, and limb issues) rather than investing in the technology that would prevent them. Scotland cannot afford to fall behind the rest of the UK. While NHS England is moving forward with a 5-year implementation plan for Diabetes technologies, Scotland is dismantling its own infrastructure. Our Demand. We are calling for formal legislation to ensure that “SIGN 170” is fully adhered to. Access to diabetes technology must be a right, not a discretionary budget item. We are contacting the Scottish Government and national charities to demand accountability. We urge you to use your voice! Contact your local representatives today to voice your opposition to this change in funding.

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We made such progress in Diabetes Care but now funding is being changed. This will result in fewer patients receiving tech and create another postcode lottery.

#T1D #GBDoc #DiabetesTechCantWait

2 weeks ago 3 1 0 1
Early age of type 1 diabetes diagnosis linked to greater heart risks and shorter life expectancy, compared to later diagnosis Life-expectancy for individuals with younger-onset disease is on average 16 years shorter compared to people without diabetes, and 10 years shorter for those diagnosed at an older age, according to ne...

increase even more if you are female.

www.gla.ac.uk/news/archive...

This is why we need access to Diabetes Tech that suits the patient as per the guidance of SIGN 170. 2/2

www.sign.ac.uk/guidelines/o...

3 weeks ago 1 2 0 0
Excess risks were particularly pronounced in women, with those diagnosed before age 10 facing a 60-fold higher risk of heart disease (0.48 cases per 100,000 person years for participants with diabetes vs 0.02 cases in every 100,000 person-years for controls) and 90-times increased risk of heart attack than matched controls (0.25 vs 0.01). In comparison, men with young-onset diabetes have a 17 times greater risk of developing heart disease and 15 times higher risk of having a heart attack in early adulthood compared to those in the general population (0.53 vs 0.05 and 0.36 vs 0.03).

These estimates for early-onset disease are substantially higher than recent estimates by the American Heart Association and American Diabetes Association, which do not consider age of onset as a risk stratifier, and report that women with type 1 diabetes are at seven times increased risk and men at three times the risk of developing heart disease.

Excess risks were particularly pronounced in women, with those diagnosed before age 10 facing a 60-fold higher risk of heart disease (0.48 cases per 100,000 person years for participants with diabetes vs 0.02 cases in every 100,000 person-years for controls) and 90-times increased risk of heart attack than matched controls (0.25 vs 0.01). In comparison, men with young-onset diabetes have a 17 times greater risk of developing heart disease and 15 times higher risk of having a heart attack in early adulthood compared to those in the general population (0.53 vs 0.05 and 0.36 vs 0.03). These estimates for early-onset disease are substantially higher than recent estimates by the American Heart Association and American Diabetes Association, which do not consider age of onset as a risk stratifier, and report that women with type 1 diabetes are at seven times increased risk and men at three times the risk of developing heart disease.

Interesting research carried out in Scotland about undiagnosed heart failure in people with all types of Diabetes.

news.stv.tv/scotland/lar...

Why is it interesting? If you are diagnosed with Type 1 Diabetes before you hit puberty your chances of heart complications 1/2

3 weeks ago 1 2 1 0
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Our page is also up on Facebook www.facebook.com/profile.php?...

1 month ago 0 0 0 0
Video

Who is Thriveabetes Speaker, Pete Davies?

Pete was diagnosed with Type 1 diabetes at the age of 2 and has lived with Type 1 Diabetes for 69 YEARS!

Learn more or Book your Tickets at: buff.ly/mI3JLcP

#Type1Diabetes #DiabetesConference #IrishDiabetes #DiabetesLife #diabetic #T1D #IREDOC #NIDOC

1 month ago 3 1 0 0

Thoughts. Suspect the charities gave too much info to the MPs about HCL & ELSA, these are great tools in T1 care.

However, they are of no use when you are told it’s tonsillitis & your child is slowly dying in DKA & not offering a finger prick test.

#LylasLaw #TestDontGuess #GBDoc

1 month ago 3 2 0 0
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Type 1 Diabetes: Infant Testing - Hansard - UK Parliament Hansard record of the item : 'Type 1 Diabetes: Infant Testing' on Monday 9 March 2026.

The transcripts from the #LylasLaw debate are slowly uploading. hansard.parliament.uk/commons/2026...

1 month ago 0 0 0 0
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MPs agree that GPs should do a finger prick & that no one should go through what John & Emma has. Common thread of being misdiagnosed with tonsillitis or stomach bug before DKA.

It was good to see the Scottish MPs in attendance.

We will say more when we have read the transcripts of the debate.

1 month ago 0 0 0 0

Disappointed that an MP has ambushed #LylasLaw debate to bring up T2.

Beautifully handled by the T1 MP.

Sorry don’t have any names. Will get from the transcript

1 month ago 1 1 0 0

Watching the debate. Personally I would get frustrated having to give way so others can speak.

Would be great to see a list of who has attended.

1 month ago 0 0 0 0
E-petition debate relating to type 1 diabetes testing for infants - Monday 9 March 2026.
E-petition debate relating to type 1 diabetes testing for infants - Monday 9 March 2026. YouTube video by UK Parliament

Watching the #LylasLaw debate www.youtube.com/watch?v=llqh...

1 month ago 0 0 0 0
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MPs will debate a petition relating to type 1 diabetes testing for infants - Committees - UK Parliament On Monday 9 March, MPs will debate a petition relating to type 1 diabetes testing for infants.

Debate Link

committees.parliament.uk/committee/32...

1 month ago 1 0 0 0

Dear MP

I am from IPAG (Insulin Pump Awareness Group) Scotland.  We are a small group of Type 1 Diabetics that campaign in Scotland for improvement in our care.  We have over 350 years of lived experience between us.

We are asking you to stand for Type 1 Diabetics in the UK. We are asking you to attend Lyla’s Law debate on  the 9th March. This will take place in Westminster Hall covering the petition 728677, “Funding so all infants are offered Type 1 Diabetes Testing in routine care.”

If you are unaware, Lyla Story attended the GP presenting with the 4Ts: Toilet, Thirsty, Tired, Thinner but was sent home with a tonsillitis diagnosis and died 16 hours later.  Lyla was in DKA (Diabetic Ketoacidosis) this is when there is little or no insulin being produced resulting in blood glucose levels rising to dangerously high levels.  For energy the body burns its fat storage producing ketones.  This in turn causes the body to become acidic and the body starts to shut down. Unless insulin is administered immediately this will normally result in death.  

IPAG Scotland join John & Emma Story in asking that anyone, no matter their age, presenting with the 4Ts is offered a finger prick to check their blood glucose levels. A finger prick test takes 5 seconds to complete and costs less than 10p and more importantly it could save a life.

It is my understanding that both Breakthrough T1D and Diabetes UK will provide briefings before the debate.  If you wish to discuss anything about living with Type 1 Diabetes IPAG are more than happy to assist.

Kind regards

IPAG Scotland

Dear MP I am from IPAG (Insulin Pump Awareness Group) Scotland. We are a small group of Type 1 Diabetics that campaign in Scotland for improvement in our care. We have over 350 years of lived experience between us. We are asking you to stand for Type 1 Diabetics in the UK. We are asking you to attend Lyla’s Law debate on the 9th March. This will take place in Westminster Hall covering the petition 728677, “Funding so all infants are offered Type 1 Diabetes Testing in routine care.” If you are unaware, Lyla Story attended the GP presenting with the 4Ts: Toilet, Thirsty, Tired, Thinner but was sent home with a tonsillitis diagnosis and died 16 hours later. Lyla was in DKA (Diabetic Ketoacidosis) this is when there is little or no insulin being produced resulting in blood glucose levels rising to dangerously high levels. For energy the body burns its fat storage producing ketones. This in turn causes the body to become acidic and the body starts to shut down. Unless insulin is administered immediately this will normally result in death. IPAG Scotland join John & Emma Story in asking that anyone, no matter their age, presenting with the 4Ts is offered a finger prick to check their blood glucose levels. A finger prick test takes 5 seconds to complete and costs less than 10p and more importantly it could save a life. It is my understanding that both Breakthrough T1D and Diabetes UK will provide briefings before the debate. If you wish to discuss anything about living with Type 1 Diabetes IPAG are more than happy to assist. Kind regards IPAG Scotland

Thanks to the dedicated work of John Story a debate will take place in @houseofcommons.parliament.uk at 6pm tonight to discuss #LyalasLaw

Please see the below letter @ipagscot.bsky.social Scot sent to all 57 Scottish MPs. For more info & to watch the debate use the link in the comments.
#T1D

1 month ago 1 2 1 0

#GBDoc #DiabetesChat

1 month ago 3 1 0 0
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MPs will debate a petition relating to type 1 diabetes testing for infants - Committees - UK Parliament On Monday 9 March, MPs will debate a petition relating to type 1 diabetes testing for infants.

Will you be watching the debate on #LylasLaw at 6pm tomorrow 9th March.

We will.

committees.parliament.uk/committee/32...

@parthaskar.bsky.social @diabetesuk.bsky.social @breakthrought1duk.bsky.social

1 month ago 1 0 0 0

Delighted to say we are now on BlueSky campaigning to improve Type 1 Diabetes Care across Scotland and the UK. #T1D

1 month ago 6 2 0 2