OpenNotes After 7 Years: Patient Experiences With Ongoing Access to Their Clinicians’ Outpatient Visit Notes : Following a 2010-2011 pilot intervention in which a limited sample of primary care doctors offered their patients secure Web-based portal access to their office visit notes, the participating sites…

Happy April Fools! 98% of patients DO think reading open notes is a good idea...but we can't vouch that the 2% are resetting their password. Read about our foundational research in @jmirpub.bsky.social from 2019: www.jmir.org/2019/5/e13876/ (open access)

#AprilFools

OpenNotes research has shown that about 98% of patients say reading their notes is a good idea.

Which leaves the obvious question: what’s going on with the other approximately 2%?

After careful (and very scientific) observation, patients seem to be stuck in an eternal loop of “Forgot Password?”

This #NationalDoctorsDay we are celebrating two of our team members for their tireless work to serve patients. 🩺

We are so lucky to have @chethan.bsky.social as an AI Informatics Strategist and Sigall Bell, MD as Director of Patient Safety and Discovery at OpenNotes.

Read more: buff.ly/NX7lKjk

Transparency is not risk free. But neither is restricted access - Healthy Debate Patients should not have to file formal requests to understand their own care, and they should not be excluded from conversations that shape their health and lives.

Canadians deserve open notes and access to their health data.

This article in @healthydebate.bsky.social argues that patients will seek out their health data and deserve accessibly written notes.

Read the full article: healthydebate.ca/2026/03/topi...

#PatientVoice #PatientEngagement

How might human-centered AI reduce costs, ease clinician burden, and improve the care experience for both patients and clinicians?

@chethan.bsky.social of OpenNotes and @brittanytrang.com of @statnews.com moderated panels at @cornelltech.bsky.social's Health Tech Summit.

#PatientsUseAI #Medsky

Beth Israel Deaconess Medical Center (BIDMC) partnered with Google to test an AI tool in a clinical setting.

BIDMC employees including @cait-desroches.bsky.social and @adamrodmanmd.bsky.social went to "The Check Up" gathering in NY.

Watch the recording: buff.ly/ddoZhlM

#PatientsUseAI #MedSky

Quality Talks 2018: Liz Salmi At an age when her peers were in school, Liz Salmi was touring the country as the drummer in a punk rock band. When others her age were launching careers and starting families, she was confronting a…

Let's remember that patients are key partners this #PatientSafetyWeek!

"Think about it...who better to find an error than the patient? My two eyes on my one chart versus my doctor's two eyes on 1,000 charts?" said @thelizarmy.bsky.social.

Watch the full video:

Today is #WorldKidneyDay and it's time to include patient voices in the way that life-saving organ transplants are evaluated.

Read this Viewpoint published in @JAMA.com by Aditya S. Pawar, MD, Tom Delbanco, MD and Randall S. Stafford, MD, PhD, (paywalled 🔓 ): buff.ly/7mkAd7n

#MedSky

Patient Safety Awareness Week: AI and Health Care: Implications for Safety and Quality as the Field Matures Join Dr. Robert Wachter for this Lucian Leape Institute (LLI) webinar as he examines the rapid rise of generative artificial intelligence (AI) in health care and what it means for quality, safety,…

Generative artificial intelligence (AI) in health care is on the rise. What does it mean for quality, safety, cost, and the clinician experience?

@ihi.org is hosting a webinar with Dr. Robert Wachter.

📅 3/12
⏰ 11 AM–12 PM ET
🎟️ Free

Sign up today: buff.ly/UkRbE5d

#MedSky #PatientsUseAI

Why I decided to share all my health information with ChatGPT Health “I don’t think people should have to go through 18 years of brain cancer to understand their own health records,” writes Liz Salmi.

@thelizarmy.bsky.social offers insights from beta-testing OpenAI’s new Health GPT.

As a longtime advocate for healthcare transparency who shares her health records publicly, she urges others to think critically before doing the same.

Read more in @stat-statnews-com.1440.news:

Mental health notes are now open in Canada! 🇨🇦

CAMH, Canada’s largest mental health and addiction teaching hospital, recently released the 'Nothing About Me, Without Me (including My Health Record)' project: lnkd.in/eQ8aFTit

#Medsky #PatientVoice #PatientExperience #DisabilityJustice

Opinion | Stop Worrying, and Let A.I. Help Save Your Life A.I. isn’t perfect, but it doesn’t have to be to improve medicine.

In @nytopinion.nytimes.com

“A.I. doesn’t have to be perfect to be better. It just has to be better,” writes Robert Wachter.

Take It From a Doctor: It’s OK if Your Medical Advice Comes From A.I. As a practicing physician, I know that my patients are using artificial intelligence to get medical advice. Sometimes the signs are subtle, like when they bring me lists of suggested tests and potential diagnoses that would put Dr. House to shame.

Are you being honest with your clinician about your AI use?

@adamrodmanmd.bsky.social offers advice in the @nytimes.com for people using LLM chatbots to understand their health.

He says honesty is the best policy... and your doctor is probably using AI as well.

buff.ly/pNeUJlD

#PatientsUseAI

Mental health notes are now open in Canada! 🇨🇦

CAMH, Canada’s largest mental health and addiction teaching hospital, recently released the 'Nothing About Me, Without Me (including My Health Record)' project: lnkd.in/eQ8aFTit

#Medsky #PatientVoice #PatientExperience #DisabilityJustice

Why I decided to share all my health information with ChatGPT Health “I don’t think people should have to go through 18 years of brain cancer to understand their own health records,” writes Liz Salmi.

@thelizarmy.bsky.social offers insights from beta-testing OpenAI’s new Health GPT.

As a longtime advocate for healthcare transparency who shares her health records publicly, she urges others to think critically before doing the same.

Read more in @stat-statnews-com.1440.news:

From asking whether healthcare transparency even matters to defining critical AI health literacy...read our top editorials from 2025:

1. buff.ly/fzuYsIH
2. buff.ly/Z86SZ1H
3. buff.ly/h83Z9v6
4. buff.ly/7tdpYKq
5. buff.ly/fdsBCua
6. buff.ly/ljGoPyP
7. buff.ly/e7o7TwM

#MedSky #PatientVoice

Liz Salmi holding a guest badge with information redacted in San Francisco.

I spent the weekend taking OpenAI’s new #HealthGPT for a spin. 🤓

Naturally, I connected 3 health systems, uploaded a 4,800-page PDF of my medical history & ran my own mini-study with custom prompts.

Curious about the experiment, my “protocol” & what didn’t work?
www.thelizarmy.com/blog/my-firs...

What happens when your care partner is abusive and has access to your patient portal?

Read this timely and thoughtful piece offering practical guidelines for documenting IPV in trauma-informed, patient-centered ways in the Journal of the Academy of Forensic Nursing: buff.ly/igwc0iX

#MedSky

It’s been another year of publications that are making healthcare more transparent 🙌

Have a look at some of our research from 2025.

1. buff.ly/VpHABZ5
2. buff.ly/aiXDy7f
3. buff.ly/h4QLdxm
4. buff.ly/KQ0i8Le

@cait-desroches.bsky.social @thelizarmy.bsky.social

More in the thread to follow.

Transparency can be a powerful force for tech equity so that every patient has the opportunity to engage in their care.

Read about "techquity" in this @ascocancer.bsky.social editorial by
@cait-desroches.bsky.social and @thelizarmy.bsky.social ascopubs.org/doi/10.1200/...

#MedSky #CanSky #BTSM

Two more publications from last year...and many more to come this year.

9. buff.ly/FDgD8VJ
10. buff.ly/5BSTJwa

#MedSky #PatientVoice #HumanCenteredDesign #DesignResearch

Here are four more of our 2O25 papers 📅

5. buff.ly/5BSTJwa
6. buff.ly/aiXDy7f
7. buff.ly/NNgoREC
8. buff.ly/Fy19tGF

In 2026, we’ll continue to identify and disseminate best practices for sharing medical information with patients and care partners.

#PalliativeCare #PatientsUseAI #MedAI

It’s been another year of publications that are making healthcare more transparent 🙌

Have a look at some of our research from 2025.

1. buff.ly/VpHABZ5
2. buff.ly/aiXDy7f
3. buff.ly/h4QLdxm
4. buff.ly/KQ0i8Le

@cait-desroches.bsky.social @thelizarmy.bsky.social

More in the thread to follow.

What I got wrong 33 years ago as a new pediatrician talking to parents about vaccines Thirty-three years ago, as a new pediatrician, RWJ CEO Richard Besser had a conversation about vaccines with two parents-to-be. It still sticks with him.

“My first mistake was talking instead of listening. I should have slowed down. I should have given them the time and space to explain their thought process. I should have given myself the time to empathize with their perspective.”

@statnews.com #MedSky #ParticipatoryMedicine

buff.ly/WZ2dhj5

Please fill out this form if you're interested in participating in spring co-design sessions: forms.office.com/pages/respon...

We are launching a new study focused on how older adults understand and access the notes that doctors write after a visit. We’d love your help.

Reply if you're 75+ or a care partner to an older adult and want to participate. A $100 honorarium per session will be offered if selected.

#MedSky

Hospital discharge is a high-risk moment...but patients can be part of the safety solution.

At the end of last year, Sigall Bell, MD, @cait-desroches.bsky.social @thelizarmy.bsky.social and Nicholas Nguyen led a design jam session on the topic at @IHI.org Forum in Anaheim, CA.

#MedSky

Patients are increasingly using generative AI.

@hugoc.bsky.social and @thelizarmy.bsky.social introduce “Critical AI Health Literacy” as a new skill set for patients seeking agency and equity in the digital age of medicine.

Read more on @nam.edu: nam.edu/perspectives...

#PatientsUseAI #MedSky

Adam Hayden and Liz Salmi at Stanford.

A first-person remembrance of @adammarc.bsky.social—brain cancer advocate, writer, punk philosopher & dear friend. Our friendship shaped my approach to survivorship through his guiding truth: “The best way through fear is familiarity.”
www.thelizarmy.com/blog/adam-ha...

An advocate who offered a window on the experience of living with brain cancer dies at 43 Adam Hayden, a patient advocate and the subject of an earlier profile in STAT, has died at age 43.

Adam Hayden, a prolific observer of his own condition, took a bad situation and did ‘good things with it’

RIP @adammarc.bsky.social 💔

#BTSM @thelizarmy.bsky.social @sabine-nj.bsky.social @mcintose.bsky.social @shawncarey42.bsky.social @stuartselby.bsky.social

www.statnews.com/2025/12/22/a...