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Posts by Andy Willis

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Barriers and facilitators to the recruitment of disabled people to clinical trials: a scoping review Underrepresentation of disabled groups in clinical trials results in an inadequate evidence base for their clinical care, which drives health inequalities. This study aims to review and map the potential barriers and facilitators to the recruitment ...

Shariq et al's scoping review on barriers & facilitators in the recruitment of people with a disability draws on 5 themes
Risk v benefit
Design & management of recruitment protocol
Internal & external validity
Consent & ethics
Systemic factors
#MethodologyMonday
pmc.ncbi.nlm.nih.gov/articles/PMC...

3 months ago 2 1 0 0
JAMA article "When Words Disappear—How Banning Words Imperils Health Care Communication" by Nupur Agrawal, MD, MPH; Keith C. Norris, MD, PhD. Published online December 10, 2025. Article discusses banning certain words in healthcare.

JAMA article "When Words Disappear—How Banning Words Imperils Health Care Communication" by Nupur Agrawal, MD, MPH; Keith C. Norris, MD, PhD. Published online December 10, 2025. Article discusses banning certain words in healthcare.

💬 Viewpoint: Federal bans on terms related to diversity, equity, and inclusion limit effective patient-clinician communication, impede health care research, and challenge the delivery of patient-centered care.

ja.ma/4juoezG

3 months ago 16 6 0 1
Image of interlocking puzzle pieces in a circle

Image of interlocking puzzle pieces in a circle

🚨Just launched: OPTIMISE recommendations to help ensure consent processes in trials are more inclusive of people with communication and/or decision-making needs

⬇️download recommendations
ℹ️links to examples & info
🎦recorded webinar
↔️other resources

🔗https://www.capacityconsentresearch.com/optimise

4 months ago 5 2 1 0
Estimands: what they are and why we should use them In clinical trials, post-randomisation events, such as treatment discontinuation or the use of rescue medication, can complicate the interpretation of results. An estimand is a precise description of ...

Key concepts series: Estimands: what they are and why we should use them - Journal of Clinical Epidemiology www.jclinepi.com/article/S089...

5 months ago 5 3 0 1
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Which demographic characteristics are associated with willingness to take part in recontact studies? A cross-sectional study Background Lower rates of participation in research by ethnic minority groups and socioeconomically deprived populations has led to efforts to develop recruitment strategies which aim to address this ...

What drives willingness to participate in health research?

Led by our #PhD student Zara Kayani, participation and consent to data linkage varies across demographic groups.

Inclusive recruitment strategies are essential to engage underserved communities.

journals.plos.org/plosone/arti...

5 months ago 4 3 0 1
Retrospective use of the PRECIS-2 trial design tool to assess design choices in randomised controlled trials; An empirical review The Pragmatic-Explanatory Continuum Indicator Summary (PRECIS-2) tool has been widely used to help investigators design randomised trials, facilitating the task of aligning design choices with an expl...

Retrospective use of the PRECIS-2 trial design tool to assess design choices in randomised controlled trials; An empirical review - Journal of Clinical Epidemiology www.jclinepi.com/article/S089...

7 months ago 3 2 0 0
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📣 Our @streweek.bsky.social is lead author on an editorial in #Trials outlining a new mandate in the journal - mandating the reporting of six key participant characteristics in any protocol/trial report submitted to Trials on or after 1st Jan 2026. 1/2
trialsjournal.biomedcentral.com/articles/10....

7 months ago 6 6 1 0
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UCC aims to make health research more inclusive | Newstalk A new campaign at UCC aims to make health research more inclusive, to include under-served groups...

Fantastic to see Prof Frances Shiely, our Director of Education, highlighting the great work of the SENSITISE @sensitise-eu.bsky.social project on Newstalk with Pat Kenny.

Take a listen: www.newstalk.com/podcasts/hig...

7 months ago 3 1 0 0

Sounds a great piece of work, happy to take part 👍

8 months ago 1 0 1 0
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Use of the pragmatic-explanatory continuum indicator summary tool in low- and middle-income country settings: Systematic review The pragmatic-explanatory continuum indicator summary (PRECIS) tools were created to help researchers design better studies. The tools were developed mainly by researchers from developed Western natio...

Use of the pragmatic-explanatory continuum indicator summary tool in low- and middle-income country settings: Systematic review - Journal of Clinical Epidemiology www.jclinepi.com/article/S089...

11 months ago 5 4 0 0

To kick off #MethodologyMonday in May, we bring you a poignant article by the Editors in Chief of the Journal of Clinical Epidemiology. They address the “elephant in the room”, the upheaval of the global evidence research eco-systems pursued by the US administration.
www.jclinepi.com/article/S089...

11 months ago 7 5 1 0
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🇪🇺 Clinical trials are the gold standard for demonstrating the benefits of medical innovation, including anti-cancer treatments, but many EU patients face barriers to access.

👇Read the article on equitable access to cancer #clinicaltrials in #Eurohealth: tinyurl.com/EHcancerdial...

#CancerResearch

1 year ago 1 1 0 0
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KLAXON 🚨: Indie SAGE has come out of retirement to release a new short report standing up for diversity, equity and inclusion (DEI) in the sciences!

DEI is not just the right thing to do, it *improves* the quality of the science. Please read and share.

independentsage.org/wp-content/u...

1/2

1 year ago 1070 502 19 24
Measuring the environmental impact of health interventions in randomised controlled trials – a scoping review Healthcare accounts for 4% of the overall greenhouse gas emissions worldwide. Reducing carbon emissions is a key strategic aim for health systems in multiple countries. To achieve this, environmental ...

Measuring the environmental impact of health interventions in randomised controlled trials – a scoping review - Journal of Clinical Epidemiology www.jclinepi.com/article/S089...

1 year ago 13 3 0 0
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New clinical trial map launched in the EU | European Medicines Agency (EMA) Patients can locate trials for potential enrolment in their area

📣 The EU has launched a new map of #ClinicalTrials. Thanks to this new tool patients will be able to locate trials for potential enrolment in their area. Read more about this map 🗺️ www.ema.europa.eu/en/news/new-...

1 year ago 119 39 1 5
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Seven high-impact interventions to tackle health and care inequalities - Health Equity Evidence Centre We have undertaken a series of 10 evidence reviews for NHS England and here highlight seven interventions and programmes with the strongest evidence base.

www.heec.co.uk/resource/sev...

7 High impact interventions to address health inequalities- many interface with primary care with community and peer supported interventions necessary to close the health literacy and self-advocacy gap.
#PrimaryCare #GeneralPractice

1 year ago 19 16 2 0
PDF preview of "Making Pragmatic Clinical Trials More Pragmatic."

PDF preview of "Making Pragmatic Clinical Trials More Pragmatic."

Viewpoint discusses the challenges of implementing findings from pragmatic clinical trials in health care systems.

https://ja.ma/4gvoewT

1 year ago 23 6 0 1
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Comments, suggestions, and criticisms of the Pragmatic Explanatory Continuum Indicator Summary-2 design tool: a citation analysis The pragmatic explanatory continuum indicator summary (PRECIS) tool, initially published in 2009 and revised in 2015, was created to assist trialists …

Thoughts and feedback from users of the PRECIS-2 trial design tool, and our thoughts on what might change for its next update. www.sciencedirect.com/science/arti...

1 year ago 5 0 0 0

I'm pretty new to Bluesky and haven't found all the trials methods researchers yet! Trying to bring us all together in one place for others to find & fill my feed with all things trials. Please feel free to share and let me know if you'd like added. go.bsky.app/AsP6Yta

1 year ago 61 27 9 2
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Count me in too 👍

1 year ago 1 0 1 0