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Posts by Rune 🔮

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Caught one. AGAIN.

Nobody can read anymore. It's not a case of Google research fail. Celine has named her condition. 😑

#Disability #Disabled

1 week ago 0 0 0 0

Activation of PPARγ redirects fibro-adipogenic progenitors to replace ectopic bone with fat in models of fibrodysplasia ossificans progressiva and trauma-induced heterotopic ossification. P Koirala et al. bioRxiv 2026 Mar 16 shorturl.at/nRWJn …interesting surprise …higher fracture risk?

3 weeks ago 1 1 0 0
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Gotta love ableism.

Deleted my comments, blocked, and refused to remove the insulting tags. 🤷 kept backflipping. Original excuse: "I wasn't aware the names weren't offensive"

Disability advocacy is artificial if all you think is "I'm not disabled, but my opinion matters more than disabled voices^

1 month ago 0 0 0 0

i dont understand why fantasy universes have so many kinds of magic and strange creatures but yet they cant seem to magicify a wheelchair or any kind of mobility device

1 month ago 30 4 4 0

I have Mohr jawsets + tongue and/or noses for..

Wolf
Coyote
Jackal

Among other stuff that's just been gathering dust since my arm flares (ongoing). I need to downsize a lot.

Next week when I have the support worker back I'll inventory and pics.

1 month ago 0 0 0 0

I need to sell craft supplies I can't use anymore. Technically, I haven't used, because of their nature.

Any Aussies need the following examples?

Taxidermy noses, jawsets?

1 month ago 0 0 2 0

Possibly the most popular myth, is the belief "FOP patients have to decide which position for the rest of their life, standing or sitting."

Absolute nonsense. You can't control your body; seizures, tumours, repair, inflammation, atrophy, nothing.

Stop spreading misinformation!

1 month ago 2 0 0 0
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MYTH ❌
— Affects skin & organs, bone, nerves
— Virus, bacteria, contagion
— 'every injury'
— Papercuts, taps, touch
— cancer
— tumors
— mental illness, developmental disability

FACT ✅
— Doesn't affect smooth muscles or heart, diaphragm, tongue
— Unpredictable
— Different strains

#RareDisease

1 month ago 2 0 0 0

A RS would be greatly appreciated.

#Disability #Genetics #Disabled #Medicine

1 month ago 2 5 0 0
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FOP is yet to be officially recognised, despite medical records dating back to 1600s!

80% of cases are misdiagnosed as cancer or child abuse.

Please help us advocate for change & awareness to help future cases!

#RareDisease #Disability #Genetics #Health

1 month ago 1 0 0 0
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IFOPA - International Fibrodysplasia Ossificans Progressiva Association

There are a few ongoing human clinical trials after various drugs cured or reduced FOP by 98%!

Please help raise awareness & funding! It will also benefit Osteoarthritis, heart disease, cancers, & amputees.

ifopa.org

+ dozens of affiliated foreign nation research & charity/support organisations.

1 month ago 0 0 0 0
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There's no excuse for disgusting ableism.

We aren't tropes, the boogeyman, a moral story, or fictional. People even think we don't exist, that we're a horror story and couldn't possibly be real.

Do better! #Disabled #Disease #Disabilities #DisabledFur

1 month ago 0 0 0 0
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Horror, ignorant people, & platforms like Reddit & Twitter have spread misinformation because body horror appeals as clickbait.

FOP is not infection, a virus, a US government experiment, karma, a curse, or a bad diet/lifestyle.

Please don't engage sensationalism or dehumanised media. We're people.

1 month ago 0 0 0 0
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FOP has been found in animals, too.

Cats, dogs, cows, horses, snakes, chickens, fish, whales, & prehistoric animals.

Heterotopic Ossification is tissue calcification. The autoimmune system misfires, & affects healthy tissue. HO often affects soldiers & athletes with muscular injuries.

#Disability

1 month ago 0 0 0 0
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There's tons of sensationalism & misinformation surrounding FOP. Look to real research, not reddit!

www.ifopa.org uPenn, Oxford, Kyoto, & other international teams working hard!


‪▫️Stoneman Syndrome ‬
‪▫️Medusa Syndrome ‬
‪▫️Mannequin People‬
‪▫️Human Statues ‬
‪▫️Greyscale‬
‪▫️Boneitus‬
‪▫️SCP 439‬

1 month ago 0 0 0 0
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Ossification's unpredictable. First symptom is bent big toes at birth resembling bunions.

Known flare triggers are surgery, dental work, intramuscular injections, flus & viruses, falls, tissue trauma, fatigue.

Deafness, scoliosis, breathing, immobility, compromised immune system, etc are issues

1 month ago 0 0 0 0
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It's #RareDiseaseDay 🧬

Fibrodysplasia Ossificans Progressiva is 1 in 2 million.

FOP's mutation ACVR1 was discovered April 23rd 2006. 2026 marks the 20th anniversary of that breakthrough! 🎉

🦴 900 known cases 🌏
🦴 4k statistically undiagnosed
🦴 Median lifespan 40s
🦴 Muscles & Tendons turn into bone

1 month ago 4 4 9 1
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My favourite show premiered 35 years ago, February 25, 1991! Time for a binge again.

The Pirates of Dark Water 🏴‍☠️⚔️

1 month ago 3 2 0 0

Would anybody be interested in a lightbox-gallery of my last needlefelt projects?

My only 2025 accomplishments; my Royal Darwin Show entries, 2nd prize and 1st prize + grand champion.

The initial photos netted 1 like in Facebook and Insta. It changes your perspective on your worth.

1 month ago 1 0 0 0

Fuck you, Discord. 🖕🏻 cancelled my Nitro.

2 months ago 1 0 0 0
A very, very angry and anti-fascist honey badger with lightning streaks coming out of his eyes and maw.  He's got his muzzle open and is barring his fangs.  He's poised to defend those who would .  From top to bottom, the image reads "DEFUND AND PROSECUTE ICE".  On the side are two smaller slogans that read "NO U.S. S.S." and "NO FASCIST U.S.A".  Here, the S.S. is short for Schutzstaffel.  @mxmorgan.com made this.

A very, very angry and anti-fascist honey badger with lightning streaks coming out of his eyes and maw. He's got his muzzle open and is barring his fangs. He's poised to defend those who would . From top to bottom, the image reads "DEFUND AND PROSECUTE ICE". On the side are two smaller slogans that read "NO U.S. S.S." and "NO FASCIST U.S.A". Here, the S.S. is short for Schutzstaffel. @mxmorgan.com made this.

WE WILL NOT TAKE THIS! THERE ARE MORE OF US THAN THERE ARE OF THEM! THE PEOPLE WILL PREVAIL! DOWN WITH ICE!

🎨🖌️✨: @mxmorgan.com

2 months ago 427 176 2 0

Periodic reminder that the fandom we get depends on who and what we support.

The next four years are going to be rough. You should do all you can to make your space safe for LGBTQIA+ and BIPoC.

Don't let your spaces turn into the Nazi Bar.

Let's ensure 2025 has no fascists at our pool party.

1 year ago 348 163 6 15
Old drawing of a seal with the caption; "No meanies pls"

Old drawing of a seal with the caption; "No meanies pls"

Seal

3 months ago 1798 445 12 4
Drawing of a puppy watching TV with toys around him and the caption; "Have fun watch cartoons don't take everything so seriously"

Drawing of a puppy watching TV with toys around him and the caption; "Have fun watch cartoons don't take everything so seriously"

Words of wisdom

2 months ago 2084 622 9 7

The way AI is being shoved down our throats and how studios are starting to embrace it ??? Is so absolutely fucking terrifying to me, and scary for our industry and I feel like I can’t ignore it anymore. It’s so fucked. I hate it so much. What is happening. 🫠

3 months ago 4191 737 145 14
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Using only images, explain how you became a furry

3 months ago 1 0 0 0

No, I'm still alive. Life's been a rollercoaster.

Hoping to continue needlefelting again soon. Had to take a hiatus since August due to arm flare ups.

3 months ago 1 0 0 0

Fibrodysplasia Ossificans Progressiva FOP) FALKON trial is coming to an end because fidrisertib – a ALK2 kinase inhibitor- did not meet its primary endpoint. IPSEN update 19 Dec 2025 shorturl.at/Msyrj …disappointment for the FOP community and especially the 113 patients who were globally enrolled

4 months ago 3 2 0 0
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a man wearing a pink tutu is standing in the grass ALT: a man wearing a pink tutu is standing in the grass

New mobile, sorry for the radio silence!

3 months ago 0 0 0 0

My criticism was about demeaning and reducing us disabled to moral punishments and karma. We aren’t the bad end or gotcha for people you hate.

4 months ago 1 0 0 0