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Posts by Centre for Research Ethics & Bioethics

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Kvinnors kunskapsbehov om risken att utveckla bröstcancer – Centrum för forsknings- & bioetik (CRB) – Uppsala universitet

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16 hours ago 0 0 0 0
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Women’s perceptions of breast cancer risk and prevention: insights into knowledge gaps and lifestyle attitudes - BMC Public Health BMC Public Health - Breast cancer (BC) is the most common cancer among women. Promoting healthy lifestyle behaviours at the population level has the potential to prevent a substantial proportion of...

Jonsson, H., Hedström, M., & Grauman, Å. (2026). Women’s perceptions of breast cancer risk and prevention: Insights into knowledge gaps and lifestyle attitudes. BMC Public Health. DOI: doi.org/10.1186/s128...

16 hours ago 0 0 1 0
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Mapping the gaps in women’s understanding of breast cancer risk – Centre for Research Ethics & Bioethics (CRB) – Uppsala University

Different women have different risks of developing #BreastCancer. New research maps their understanding of the disease, its risk factors, preferences for preventive measures, and existing knowledge gaps.

www.uu.se/en/centre/cr...

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Based on this paper: doi.org/10.1016/j.ic...

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Att förlora en familjemedlem på en intensivvårdsavdelning - Etikbloggen En intensivvårdsavdelning är en plats där liv upprätthålls med hjälp av avancerad medicinsk utrustning. Men det är också en plats där liv ibland tar slut. I de fall då det blir tydligt att den livsupp...

Läser du hellre på svenska? etikbloggen.crb.uu.se/2026/04/14/a...

1 day ago 0 0 1 0
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Losing a family member in an intensive care unit - The Ethics Blog An intensive care unit is a place where life is maintained with the help of advanced medical equipment. But it is also a place where life sometimes ends. In cases where it becomes clear that life-sust...

New on the #EthicsBlog >> Losing a family member in an intensive care unit

ethicsblog.crb.uu.se/2026/04/14/l...

1 day ago 0 0 1 0
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Beyond symbolic participation: youth-led organisations’ voices and actions against antimicrobial resistance in Africa South of the Sahara Antimicrobial resistance (AMR) is a global health threat, disproportionately affecting Africa South of the Sahara, where young people have been identified as key stakeholders in AMR prevention and ...

Based on this paper

Samwel, E. V., Biasiotto, R., Mosha, M., & Ancillotti, M. (2025). Beyond symbolic participation: youth-led organisations’ voices and actions against antimicrobial resistance in Africa South of the Sahara. Global Health Action, 18(1). doi.org/10.1080/1654...

2 weeks ago 0 0 0 0
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When youth participation becomes symbolic: voices and influence in global health governance - The Ethics Blog Global health discussions have, in recent years, made a point of involving young people. Conferences feature youth panels, international organisations hold youth consultations, and most major health s...

New on the #EthicsBlog >> When youth participation becomes symbolic: voices and influence in global health governance

ethicsblog.crb.uu.se/2026/04/07/w...

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JUST PUBLISHED | The Global Neuronal Workspace as a multilevel model of conscious processing

doi.org/10.1016/j.ti...

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On the potential value conflict between scientific knowledge production and fair recognition of authorship The value of scientific knowledge and fairness in distribution of academic credit are core values in research publication. However, it is little discussed in the literature that these values may co...

JUST PUBLISHED | On the potential value conflict between scientific knowledge production and fair recognition of authorship

doi.org/10.1080/0898...

3 weeks ago 0 0 0 0
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Experiences of Ethical Review: Perspectives of Swedish Researchers in Social Science and Humanities - Journal of Academic Ethics This paper presents the results from a qualitative study with Swedish researchers in the social sciences and the humanities. The aim of the study was to explore researchers’ perceptions of ethical rev...

RECENT PUBLICATION | Experiences of Ethical Review: Perspectives of Swedish Researchers in Social Science and Humanities

doi.org/10.1007/s108...

3 weeks ago 1 0 0 0
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Colorectal cancer risk: stereotypical assumptions and competing values – a qualitative study with the general public - BMC Public Health BMC Public Health - Informing the public about lifestyle-related risk factors for colorectal cancer (CRC) is central for cancer prevention. More knowledge is needed about the public’s...

Based on the findings of this paper 👇

Sundell, E., Hedström, M., Fahlquist, J.N. et al. Colorectal cancer risk: stereotypical assumptions and competing values – a qualitative study with the general public. BMC Public Health 26, 706 (2026). doi.org/10.1186/s128...

4 weeks ago 0 0 0 0
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Public perceptions of risk information about colorectal cancer - The Ethics Blog The fourth most common form of cancer in Sweden is colorectal cancer. The disease can be linked to both heredity and environmental factors, and to individual lifestyle factors such as tobacco smoking,...

The results reveal a clear gap: most participants knew very little about the disease or its lifestyle‑related risk factors, and often filled the gaps with assumptions or intuitive “health logic.”

ethicsblog.crb.uu.se/2026/03/24/p...

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Colorectal cancer needs greater visibility, and communication should respect people’s different motivations, priorities and trade-offs in everyday life. This week on the #EthicsBlog, Pär Segerdahl reflects on findings from a recent study on public awareness of colorectal cancer.

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💭 How do people really think about health risks — and what does that mean for effective communication about #ColorectalCancer?

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New on the #EthicsBlog >> Do you dare to be fearless? ethicsblog.crb.uu.se/2026/03/10/do-you-dare-t...

1 month ago 0 0 0 0
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Severity as a Criterion for Prioritizing Diagnostic Measures - Health Care Analysis Health Care Analysis - The extent to which a condition is severe constitutes an important part of several approaches to healthcare priority setting. For example, the Netherlands, Norway, Sweden,...

Based on this publication

Gustavsson, E., Juth, N. Severity as a Criterion for Prioritizing Diagnostic Measures. Health Care Anal (2026). doi.org/10.1007/s107...

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Who gets priority? Severity is not enough for diagnostics – Centre for Research Ethics & Bioethics (CRB) – Uppsala University

Many tests and tools used for diagnosis are expensive. For long, the principle of severity has been used in decisions about drug pricing. Now, researchers are examining whether it can be used to prioritise between diagnostic measures.

www.uu.se/en/centre/cr...

1 month ago 0 0 1 0
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Meaningful assent matters: Children’s autonomy as right, value, and relationship – Centre for Research Ethics & Bioethics (CRB) – Uppsala University

Children with cancer are often asked to participate in research studies. They are often too young to consent, but they can assent to participate. But assent is not always obtained in consistent or meaningful ways. New research explores children’s autonomy and research.

www.uu.se/en/centre/cr...

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JUST PUBLISHED | Why children’s research assent matters: Exploring three dimensions of autonomy

doi.org/10.1177/0969...

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How is ethical review perceived by researchers in the social sciences and humanities? - The Ethics Blog Research involving humans requires ethical review. Ethical review is important to protect the rights and interests of research participants, and to maintain public trust in research. Ethical review wa...

NEW ON THE #ETHICSBLOG >> How is ethical review perceived by researchers in the social sciences and humanities?

ethicsblog.crb.uu.se/2026/03/03/h...

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Read about gut feelings & the need for clear, respectful #RiskCommunication about #ColorectalCancer 👇

www.uu.se/en/centre/cr...

#ColorectalCancerAwarenessMonth

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Colorectal cancer risk: stereotypical assumptions and competing values – a qualitative study with the general public - BMC Public Health BMC Public Health - Informing the public about lifestyle-related risk factors for colorectal cancer (CRC) is central for cancer prevention. More knowledge is needed about the public’s...

JUST PUBLISHED | Colorectal cancer risk: stereotypical assumptions and competing values – a qualitative study with the general public

doi.org/10.1186/s128...

1 month ago 1 0 0 1
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Taking the science of consciousness to the clinic is a collective endeavor - The Ethics Blog “Consciousness” is an ambiguous concept that arouses the interest of people with different expertise, including the general public. This situation naturally creates several related ambiguities, for ex...

New on the #EthicsBlog >> Taking the science of consciousness to the clinic is a collective endeavor

ethicsblog.crb.uu.se/2026/02/24/t...

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General practitioners and management control through guidelines: a qualitative study of its effects on their practice - BMC Primary Care Background Changes in healthcare governance and the rise of evidence-based medicine (EBM) have over the last decades contributed to an increase in guideline-driven management of general practice. Ther...

doi.org/10.1186/s128...

2 months ago 0 0 0 0
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Riktlinjestyrning skapar komplexa utmaningar för distriktsläkaren - Etikbloggen Ett centralt instrument för att säkerställa och förbättra kvaliteten i sjukvården är medicinska riktlinjer. Riktlinjer används som minnesstöd för att hjälpa sjukvårdspersonalen att fatta evidensbasera...

etikbloggen.crb.uu.se/2026/02/10/r...

2 months ago 0 0 1 0
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Management control through guidelines creates complex challenges for general practitioners - The Ethics Blog A vital tool for ensuring and improving quality in healthcare is clinical guidelines. Guidelines are used to support the clinicians’ memory and evidence-based decision-making, as well as to guide the ...

ethicsblog.crb.uu.se/2026/02/10/m...

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💭 How do clinical guidelines shape — and sometimes complicate — the everyday work of GPs?

Clinical guidelines are meant to support. But as they grow in number and complexity, and don’t just guide practice — they increasingly govern it. Jens Lundegård explores the shift on #EthicsBlog.

2 months ago 0 0 1 0
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Management control through guidelines creates complex challenges for general practitioners - The Ethics Blog A vital tool for ensuring and improving quality in healthcare is clinical guidelines. Guidelines are used to support the clinicians’ memory and evidence-based decision-making, as well as to guide the ...

NEW ON THE #EthicsBlog >> Management control through guidelines creates complex challenges for general practitioners

ethicsblog.crb.uu.se/2026/02/10/m...

2 months ago 0 0 0 0
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Förslaget: Slopa 40-årsgräns för IVF-behandling - Vetenskapsradion Nyheter Statens medicinetiska råd föreslår att åldersgränsen för assisterad provrörsbefruktning, IVF, ska slopas för kvinnor över 40 år. Rådet menar att det nuvarande ...

Vetenskapsradion: Förslaget: Slopa 40-årsgräns för IVF-behandling

https://www.sverigesradio.se/artikel/9153700

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