That’s why many of us won’t shut up about Covid and other infectious diseases: We’re trying to help. For what it’s worth, I genuinely wish we were wrong though

Openly discussing something that people would rather ignore is generally annoying to people trying to ignore it. But that’s what activism looks like. It’s often thankless, even results in scorn or harassment, but it’s done for the greater good.

“You are more than your disability!”

No. I’m exactly the same amount. I am disabled and it doesn’t make me less than

Reminder as we blaze toward the new year that it’s OK if 2025 was just a blur of pain and chaos instead of a productive era to reflect on. Being alive is particularly rough right now. You’re doing your best and that’s enough

For many, scent is a barrier.
Fragrance (even essential oils!) means volatile organic compounds (VOCs) which can trigger a cascade of chemical reactions with indoor air.
Scents can trigger migraines, asthma, MCAS, and more.
Access starts with awareness.
Please be mindful of your scent. 2/2

Scented products are a disability rights issue.

Before you light that candle, do your laundry with scented detergent, or spray perfume, ask yourself: Who else will breathe this in? 1/2

You don’t have to be perfect to do better. But doing anything at all really means a lot. It shows disabled people that you care about our lives. That you see us as worth protecting. And it means the world.

If you still wear a mask at all, even just when sick or at the hospital or on public transit, THANK YOU!
If you still try to isolate or protect others when you are sick, THANK YOU.
If you still test for COVID when you have any symptoms, THANK YOU.

Not so friendly reminder that Trump doesn’t see your ableist comments making fun of him for having XYZ condition or needing a catheter, but disabled people like me who have dealt with incontinence sure do.

Don’t be ableist. There’s far better things to critique him for

I had two medical appointments and one prescription pickup today and it took about 5 hours in total.
Being disabled or chronically ill is like having a full-time job you have to pay to do.
And for many of us (myself included), holding an actual full-time job on top of that simply isn’t accessible.

Oh this would be a low cost or free service in my mind. Volunteers or low bono

Why hasn’t someone invented a “rent a cis white man to pretend to be your partner to help advocate for you in medical appointments” app yet?

This would honestly be a great way for cis white men to use their privilege for good.

If you’ll bend over backward to “rescue” a three-legged dog but can’t be bothered to care about disabled humans (or toss a dime to disability mutual aid) you’re not compassionate, you’re just collecting props.

Damn. That sucks. 😔
I’m late to seeing it I guess as I’ve been offline dealing with some health stuff. Disappointing but not surprising

Trump has chronic venous insufficiency.
Get ready for a wave of ableism from the left. 🫠

The worst part of being disabled with a complex medical condition requiring many different specialities, numerous appointments, and many medications every week?

Automated clinic, hospital, and pharmacy phone systems. 🫠

In a world that worships productivity, choosing rest is rebellion.
Accommodating yourself is resistance.
Honoring your limits is power.
It’s Disability Pride Month, and I’m proud as fuck of you for taking care of yourself even when the world tells you not to.

Now?

I PROUDLY accommodate myself.
I’m proud to be disabled in general.
And I’m a better clinician for it.

3/3

I’ve since realized that is bull. I cannot simply will away the fact that I am human too. And I cannot just push my way through things that I need accommodations for.

2/

In grad school, I was told by my supervisors and professors to ensure that I hid pretty much everything about myself from my patients, including factors relating to my being disabled.

1/

My mom is FINALLY acknowledging that her AFib, brain fog, extreme fatigue, and other health issues that onset after she was sick with COVID almost 2 years ago are actually post covid issues. It only took me telling her this for 2 years and then a single provider at a hospital saying it once. 🫠

Just a bunch of comments about the author of the article being “stupid” or cognitively impaired or whatever else

Yikes. The comment section is horribly ableist though. What is going on on Bluesky? Thought it was supposed to be better? 😞

People are upset about you venting? That’s really gross and they don’t deserve to be in your space, honestly. You are allowed to share your feelings and experiences. This is your space. I’m so sorry you are dealing with that (the abuse from people via those messages and people trying to silence you)

1. that number is just those that get caught. The actual number is likely much higher.
2. it’s not about getting it “wrong,” it’s about fraud and problematic practices. Which I expect are much more common than thought and captured based on what I’ve seen working in academia and heard from others 😅

So gross, right? 🫠

Oh I catch stats errors that should result in retractions (or corrections) on a regular basis but I’ve realized it’s not a good use of my time to try to correct people who don’t want to be corrected 🫠

Unfortunately, I have seen some really crap science in top tier journals. Clout does not equal quality. In fact, high impact journals are MORE likely to have retractions:

www.pnas.org/doi/10.1073/...

If we’re going to combat misinformation we need to be well informed when we do so.

That’s so inconvenient. I’m sorry

Yeah that’s absolute bull. And how are you even supposed to tell most of the time??