Physically navigating the VA shouldn’t be hard.
The Veterans Accessibility Advisory Committee Act would help thousands of Veterans impacted by ALS and other people with mobility issues.
Let’s get this bill across the finish line: bit.ly/VAcommittee
ACT for ALS rewrote the story.
Let’s write the next chapter—ending ALS.
Join us: bit.ly/fundALS
"We’re closer than ever, and we’ve made more progress in the last five years than we have in the hundred years before that."
Watch @bsw5020.bsky.social and Sandra Abrevaya’s post-ACT for ALS testimony interview:
bit.ly/GMWALS
National Volunteer Month | Volunteer Spotlight 📣
Whether it’s a listening ear, a shoulder to cry on, or a ride to an appointment, Robert Lemons is always there.
Grateful for everything you do for the I AM ALS community, Robert 💙
Join us for the 2026 I AM ALS Community Awards later this week.
Celebrating leadership, advocacy, courage & more.
bit.ly/IAA_Awards26
Reauthorizing ACT for ALS accelerates the path towards a cure. Period.
We can’t wait. ALS won’t.
ACT NOW: ask your Rep to cosponsor this bill → bit.ly/fundALS
Arab Americans face language, socioeconomic, and cultural barriers to accessing quality care.
Due to erasure in public health data, we still don’t know how this impacts Arab Americans living with ALS—a disparity in itself.
Learn more at our online resource center: bit.ly/ALS-resources
National Volunteer Month | Volunteer Spotlight 📣
Maggie brought joy, laughter, and dedication to I AM ALS—from Lou Gehrig Day to Push for Progress.
Thank you for everything, Maggie 💙
ALS doesn’t wait. Neither do we. 💙
Push to reauthorize ACT for ALS + protect EAP programs: bit.ly/fundALS
“Dear ALS…”
Read Linda’s cathartic message: bit.ly/DearALS
Understudied needs are unmet needs.
That’s why the I AM ALS Outreach & Inclusion Initiative is working to expand access to ALS support, resources, and services in underserved communities 💙
Learn more at our online resource center: bit.ly/ALS-resources
🔥 ACT for ALS 2.0 just hit 22 new cosponsors in just over a week.
Momentum is building—let’s keep it going. bit.ly/fundALS
Join us in celebrating the power of community 💙
The 2026 I AM ALS Community Awards will honor everything we’ve accomplished together this past year.
RSVP: https://bit.ly/IAA_Awards26
The Justice for ALS Veterans Act would ensure families receive needed benefits after losing a loved one to ALS.
Chris Spaulding advocated for this—without being a Veteran himself.
Honor him: bit.ly/ALSvets
National Volunteer Month | Volunteer Spotlight 📣
Troy has helped drive historic wins in ALS legislation and funding as co-chair of the I AM ALS Legislative Team.
He brings humor, strategy, and hope to this work.
Drop a 💙 to thank him.
On behalf of co-founders @bsw5020.bsky.social & @sabrevaya, thank you to @RepMikeQuigley & @KenCalvert, Dan Tate, Garrett May, Dr. Jinsy Andrews, & everyone who advocated for ACT for ALS today. ACT for ALS has brought us closer than EVER to ending ALS. TAKE ACTION: bit.ly/A4A2press
HISTORIC moment for the ALS community 🚨 Rep. Mike Quigley is leading a press conference TODAY alongside I AM ALS leaders to push the ACT for ALS reauthorization bill forward.
Tune in live at 2:15 p.m. ET—don’t miss this momentum in action: bit.ly/A4A2press
ACT for ALS has transformed the ALS landscape. More research. More data. More collaboration. Real hope. Protect this progress at bit.ly/fundALS
ACT for ALS has transformed the ALS landscape. More research. More data. More collaboration. Real hope. Protect this progress at bit.ly/fundALS
Join @iamalsorg cofounders & legislative champions Reps. @quigley.house.gov and Calvert LIVE today for a hearing covering ACT for ALS 2.0.
🎧 10:15am EST: bit.ly/A4Ahearing
Didn’t get a chance to request your flag?
Stay tuned for virtual ways to join our Flag Ceremony 💙
ALS doesn’t wait. Neither do we.
Powered by urgency and lived experience, this community is working together to end ALS.
🎤 Full podcast: bit.ly/ALS-Power
National Volunteer Month | Volunteer Spotlight 📣
Michele is making ALS therapy development more accessible, efficient, and humane.
Drop a 💙 to celebrate Michele!
Dierdre’s story about ALS, love, and loss is as powerful as it is poetic.
Read it in full: bit.ly/DierdresDream
Attending the I AM ALS Community Gathering (May 6–9, DC)?
April 14 is the FINAL day to book The Hotel Washington at a discounted rate.
Lock it in now: bit.ly/gathering-hotel
Push to end ALS in YOUR community.
Take action today: bit.ly/ALSLocal
The ALS movement is gaining serious momentum 🔥
Rep. Harriet Hageman just signed on as a co-sponsor of the CONNECT Act!!
Let’s keep the pressure on Congress and get this bill across the finish line 👇
https://www.iamals.org/connect-for-health-act/
Can’t make it to D.C.? We still want to hear your ALS story.
Share your story today: bit.ly/story-26
I AM ALS’ model is intentional by design.
We focus on unlocking the largest pool of federal funding for ALS research to speed up progress toward a cure.
Full podcast: bit.ly/ALS-Power
Big news: The ACT for ALS is back in the House—thanks to your advocacy 💙
It’s already helping hundreds & speeding research. Now we need to keep it going.
Take action: www.iamals.org/reauthorize-the-act-for-als
