In another first for FHJ,here's their first video article, a conversation/reflection about the Australian experience of legalising Assisted Dying. Thoughtful, courteous, curious, balanced.
Thanks to @katherinesleeman.bsky.social Dr Tom Osborne & Lucy Easthope
sciencedirect.com/science/arti...
8/
Brilliant series of articles, so pleased to have contributed 👇
Chair @laylamoran.bsky.social said “It feels unthinkable that specialist care services for those who are close to passing away are somehow undervalued in the NHS. And yet that is the heartbreaking reality…”
The Health and Social Care Committee is ‘highly concerned’ about the state of palliative and end of life care.
committees.parliament.uk/committee/81...
The Health and Social Care Committee is ‘highly concerned’ about the state of palliative and end of life care.
committees.parliament.uk/committee/81...
New paper, out today in @palliativemedj.bsky.social
Specialist palliative care improves patient experience, reduces bed days and saves money: An economic modelling study of home- and hospital-based care
journals.sagepub.com/doi/10.1177/...
500 people have signed up to our webinar tomorrow! Still space for more :)
Regardless of the outcome on #AssistedDying we need good quality #palliativecare in the UK. It affects many more people than the AD bill ever will. @mariecurieuk.bsky.social new research is sobering and a call to action 👇
Thank you @shaunlintern.bsky.social for covering our new Marie Curie research.
🚨1 in 3 people in England and Wales die with unmet palliative care needs.
🚨That’s 170,000 people each year.
🚨Meaning that every three minutes someone dies with suffering that could and should be alleviated, but is not.
📣📣📣 FREE webinar on out-of-hours palliative and end of life care
📅 Thursday 5th March 1.00-2.30pm
🖥️ Online via Teams
📊Short talks on the latest research and evidence plus a cross-sector panel discussion
Sign up 👉 www.tickettailor.com/events/facul...
Info👇
FREE webinar on out-of-hours end-of-life care
📅 Thursday 5th March 1.00-2.30pm
🖥️ Online via Teams
📊Short talks on the latest research & evidence plus a panel discussion - with me, Kate Heaps, Therese Johansson, Joanna Davies and Alice Firth
Sign up: www.tickettailor.com/events/facul...
Please do attend if you can - and circulate to your network 🙏
📣📣 New paper!
Continuity of GP care is associated with lower total NHS costs for people with dementia in their last year of life.
Adds to the evidence that continuity of care is:
👉better for patients
👉better for the system
bjgp.org/content/bjgp...
📣📣📣 FREE webinar on out-of-hours palliative and end of life care
📅 Thursday 5th March 1.00-2.30pm
🖥️ Online via Teams
📊Short talks on the latest research and evidence plus a cross-sector panel discussion
Sign up 👉 www.tickettailor.com/events/facul...
Info👇
New paper on ethnic inequality in place of death, led by Dr Joanna Davies
journals.sagepub.com/doi/10.1177/...
New paper on the assoc btw socioeconomic position and pain at the end of life
👉 lower financial status is associated with being more affected by
pain in the last week of life
👉 the social gradient is steeper in hospitals, and not present in care homes
www.jpain.org/action/showP...
🔔🔔🔔New paper on quality of end of life care
Data from >1,000 bereaved carers in England and Wales
We identify 6 core components of quality of care (which are frequently not achieved)
We provide a model for conceptualising quality in EOL care to guide policy journals.sagepub.com/doi/epub/10....
Congratulations to Rachel Chambers on publication of her first PhD paper - a (massive 100-paper) systematic review of the symptoms and concerns of young adults with life limiting conditions. journals.sagepub.com/doi/epub/10....
Building better trust and promoting knowledge and awareness of palliative and end-of-life care among marginalised groups, including explicit focus on the difference between palliative care and intentionally hastening death, is essential.
We also found a dose–response relationship between
socioeconomic position and awareness and knowledge of palliative care.
i.e. people from higher socioeconomic groups are less likely to think palliative care = hastening death.
To be specific, people of Asian ethnicity and people of Black, Caribbean or African ethnicity were more likely to believe that palliative care involves giving medicines to people to shorten their lives.
This held after adjusting for age, gender and socioeconomic position.
NEW PAPER on knowledge awareness and trust in palliative care
In a UK wide survey, people from minoritised ethnic groups had:
👉Less awareness of palliative care
👉Less accurate knowledge about palliative care
👉Lower trust towards professionals to deliver high-quality EOL care
The Health and Social Care Committee’s evaluation of palliative care in England was published yesterday.
It’s hugely important, not least in the context of the assisted dying bill.
It’s had almost no media coverage.
committees.parliament.uk/publications...
The report of the House of Lords Terminally Ill Adults (End of Life) Bill Committee has been published.
Less of a ‘report’ than I was expecting - more a compilation of evidence - but useful nonetheless.
committees.parliament.uk/committee/81...
Terminally Ill Adults (End of Life) update
As many will know, the House of Lords convened a Select Committee to consider the Bill, which heard from witnesses in late October / early November. It has now finished its evidence sessions. The transcripts of the oral evidence given by witnesses can…
“The difference between this [hospice] and the hospital is the dignity”
Thank you Sarah Dawood for writing this important article on dying with dignity - and to the patients and families at St Raphael’s for sharing their experiences.
www.newstatesman.com/spotlight/he...
The Association for Palliative Medicine has produced a Myth Buster on assisted dying and the Terminally Ill Adults bill.
The debate must be based on evidence, not soundbites and spin.
It’s an essential tool for Peers, journalists and other commentators.
apmonline.org/wp-content/u...
Stimulating and productive meeting today of our NIHR Policy Research Unit in palliative and end of life care. So lucky to work with such brilliant colleagues.
For more info on our work: www.kcl.ac.uk/research/nih...
Latest paper from the @mariecurieeolc.bsky.social Better End of Life programme.
Meta-level evidence supporting provision of in-home palliative care, specialist palliative care and integration of primary pall care w specialist support.
journals.sagepub.com/doi/10.1177/...
@palliativemedj.bsky.social
