Act!!!

Some things are more important than the Stanley Cup. Some. Not many.

As Huntington’s Disease Awareness Month winds down, Burlap and I made it to #sybilspicnic… late as usual but right on time! We’re here in the States in Lowell, Massachusetts. If you’ve got a Sybil, join us , wherever you are.

No awareness campaign has had the reach and longevity as #sybilontour

#crushitlikequint

Join us!!! Do something impulsive!!! It’s for a great cause!!! A splendid time is guaranteed for all!

24 reactions | Three Terms | Three Terms. I’m in a little hotel in Indiana. Thinking, playing, writing. Rolling through the Midwest then the Great Northwest in the next couple... | By Ellis Paul Musi... Three Terms. I’m in a little hotel in Indiana. Thinking, playing, writing. Rolling through the Midwest then the Great Northwest in the next couple...

Ellis Paul just posted this gem. Topical tunes needs up to put wind in their sails! please share!!! www.facebook.com/ellispaulmus...

Nursing Home Referral Leads to a Lifetime of Huntington Disease Activism Jimmy Pollard is a former special education teacher who at one point found himself caring for 61 people with Huntington disease.

Thanks to Larry Luxner and Rare Disease Advisor for this profile. Lots of stuff I don’t mention often. Thanks, again, Larry!!! www.rarediseaseadvisor.com/features/jim...

#HDGratitudeDay

Factor-H.org

#HDGratitudeDay

Factor-H.org

Barranquitas, Venezuela has the world’s highest prevalence of HD. Tonight they had a candlelight vigil honoring family lost to HD, leading to HD Gratitude Day this Sunday recognizing the partnership of families and scientists in the quest for a cure. Join us! #HDGratitudeDay

#HDGratitudeDay

GREAT MOMENTS IN HD RESEARCH

1996: First transgender HD mouse model.

Truth.

Save the date!!! Join us as we mark, recognize an appreciate the partnership between scientists and families living with Huntington’s. It’s brought us this far and is the foundation on which cures, treatments, all is built! A social media event. #hdgtstitudeday More info? Let me know!

Woody Guthrie~ All You Fascists Bound To Lose YouTube video by UnAmericanBandstand

m.youtube.com/watch?v=VwcK...

Holidays are stressful. Those living with cognitive challenges may become overwhelmed, to avoid or escape overstimulation they make make an “Irish Exit!” Here’s a door hanger with a brief explanation and 4 limericks to better understand. Want free copies? Contact me!

My first post here!