Ugh

Those are gorgeous! Happy spring.

A reminder of one of the loveliest pairs of siblings in the dictionary: ‘muscle’ and ‘mouse’. To the Roman imagination, the flexed biceps of a (typically naked) athlete resembled a rodent scuttling under the skin. ‘Musculus’, in Latin, means ‘little mouse’.

Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear.
#MEKills #HumanRights

Mine was very similar!

The importance of understanding rest How my experience of rest as an athlete clashed with my experience of rest as a patient

"To rest in the context of chronic illness demands the endurance of immense grief"...

Another brilliant and poignant update from @thereforme.bsky.social by @oonaghcousins.bsky.social

www.thereforme.uk/p/the-import...

Petition: Introduce new air quality and PPE rules for health and social care settings We want the Government to set new rules on air quality and infection control in health and social care settings, to prevent and control airborne infections, with new ventilation and filtration require...

As a clinically vulnerable person I'm terrified of having to go into a healthcare setting as the risk of airborne infection is so great & nothing is done to prevent it. It doesn't have to be this way. Last big push for this crucial petition. Thanks so much 🙏 petition.parliament.uk/petitions/70...

A red graphic with black writing that says 'Red Alert for ME. Spend the money now! Wednesday 14th May: Join ME Action Scotland in person and online. #MillionsMissing' There is an illustration of a bell ringing and the ME Action Scotland logo.

For #MillionsMissing 2025 in #Scotland, we're raising a red alert 🚨 Spread the word!
The Scottish Budget pledged £4.5m for ME specialist support - the clock is ticking to spend it.

Email your MSPs & join us @parliament.scot or support online.
Info & template email: www.meaction.net/2025/04/27/m...

Volunteers setting up stand at the RCPCH conference. Two white women, one sitting at the side of a table covered in red tablecloth with documents on and one standing behind. Walls covered in #MEAction UK posters.

Preparations are underway for the MEAction UK stand at @rcpch.bsky.social conference in Glasgow. Great work by Susan Cole of @meactnet.bsky.social and Helen Brownlie - 25% ME Group.

If you are attending the conference come and say hello. We are at stand D6.

#RCPCH25 #MyalgicEncephalomyelitis

Background is bright blue sky with stars and bright sun. Text in white: Hello Bluesky. It's good to be here. If you are interested in ME advocacy, learning about ME or getting involved please follow us. MEAction UK and Scotland logos in white in bottom corners.

Hello, It's good to be here. Please follow us as we start our Bluesky journey.

#MyalgicEncephalomyelitis #VerySevereME #SevereME #pwME #pwLC #LongCovid

Photo shows a group of people, most wearing masks, holding leaflets, in front of Waverly Station, Prince's Street, Edinburgh. They are gathered in front of a big placard saying "Long Covid and ME/ CFS destoy lives, No help, no treatment, no cure. We demand clinical trials now! Not Recovered UK www.notrecovereduk.org .

@lcmebillboards.bsky.social Edinburgh leafletting action today, to raise awareness of the lives & livelihoods still being destroyed by Long Covid & ME/CFS, unforgivable lack of action by Government & failure to inform the public of continuing real risks to health. #LongCovidAwarenessDay2025

Hello to Ko-ko from our well worn koala!

I was very pleased to speak for people with ME at this meeting. Thanks to @inclusivenew.bsky.social for setting it up.

Love the koala! And the view.

Oh no 😢

What a fantastic view you have

Excellent interview! Thank you so much. You speak for all of us.

Petition: Introduce new air quality and PPE rules for health and social care settings We want the Government to set new rules on air quality and infection control in health and social care settings, to prevent and control airborne infections, with new ventilation and filtration require...

If you believe preventative healthcare is important, if you use healthcare to make your health better, not to put it at avoidable risk, if you support workplace health & safety, please sign & share these. Thank you 🙏 petition.parliament.uk/petitions/70...; petitions.parliament.scot/petitions/PE...

Wow, what a superb resource. Thank you so much.

👋