Well done Hungary 👊

Illustration of people looking at balloons and a sign saying 450,000 children lifted out of poverty.

Today is a good day for children!

450,000 will be lifted out of poverty thanks to the end of the two-child limit.

We're celebrating this along with 17 other orgs with an advert in The Times.

The advert has been funded by hundreds of small donations from people supporting @38degrees.bsky.social.

Off again, Belfast this time. BPNS spring conference on Friday, but going early for some important online meetings tomorrow

It’s a lovely morning in Sleaford

Spent a lot of time with this guy the last few days, as well as moving boxes, putting up smoke alarms and all sorts as we moved offices. The role of a Chief Exec in the community sector is pretty varied. Hoping that tomorrow I can actual crack on with my emails which have spiralled out of control.

A massive thanks to those who took part for sharing their experiences of #MMN. Definitely going to keep these going on a monthly basis

Best bit of my job is talking to people, particularly people with lived experience. Following on from my must do better blog we held our first MMN online Get Together tonight for @inflamneurouk.bsky.social Some really good discussion with a focus on both the burden of the condition & of treatment

We don’t need more food banks, we need change.

Repost if you agree.

Operations Manager | Inflammatory Neuropathies UK | CharityJob Apply now for Operations Manager. , £35,000 - £40,000 per year, find a career with meaning today

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Not long left to apply for the #OperationsManager job at @inflamneurouk.bsky.social
Get your application in by Sunday if you want to be part of an exceptional health charity that delivers proper impact for its community. Be part of our high functioning team, and make a real difference.

Merry Christmas @londonlorelei.bsky.social

Good start to the Christmas break. Awake earlier than on a work day with a cracking idea for @inflamneurouk.bsky.social I find it difficult to turn off at the best of times, but at least I managed to write this idea down

Excellent thread on the #MentalHealth review announced today. I hope @drsarahhughesceo.bsky.social is right but I fear we will still have a limbo around MH

Streeting orders review into mental health and ADHD diagnosis The health secretary said the aim was to tackle a rising demand for services and the increased pressure on the NHS.

The medical model at its very worst. The issue isn’t there are too many people who need support with their #MentalHealth, it’s that people don’t receive support for Mental Health - www.bbc.co.uk/news/article...

My thoughts on the budget 👇

New chief told to save £1m from top team at Lincolnshire council Andrew Crookham will be paid more than £200,000 in the top role at Lincolnshire County Council.

‘They could have got someone for £50k’. No they couldn’t! Why do people (particularly on the right) get so het up about senior management salaries. Who would (and could) run a council for £50k. Nonsense - www.bbc.co.uk/news/article...

a cartoon character from adventure time is tied up with a rope and says love you buddy . ALT: a cartoon character from adventure time is tied up with a rope and says love you buddy .

The couple opposite me on the train are watching Adventure Time, and I couldn’t be more delighted

Great place for a meeting in town.

So proud to be supported by these wonderful women in Berlin yesterday

A massive thanks to everyone who joined us in the room and online. A day full of laughter, tears, and energy as we celebrated 40 years of impact.

I got to do some proper showing off on Saturday as it was the @inflamneurouk.bsky.social AGM and Big Get Together in Manchester. An incredible day with the Inflammatory Neuropathies community, our amazing Trustees and Founder, and a whole group of friends of the charity. 1/2

Police to get broader powers to crack down on repeated protests Officers will be able to tell organisers to move demonstrations if protests have caused

Would this apply to violent protests outside hotels in Epping as well as peaceful protests in London? - www.bbc.co.uk/news/article...

Huntington's disease successfully treated for first time One of the most devastating diseases finally has a treatment that can slow its progression and transform lives, tearful doctors tell BBC.

Science is good www.bbc.co.uk/news/article...

This is a humanitarian crisis, and we aren’t intervening. IVIg is readily available in the UK, but not in many other countries, particularly Gaza.

We need to be better, we need to do more.

This isn’t a political post, it’s about people

This appears to be the result of having no access to clean water. Many deaths are of children. Issues are exasperated as the principle treatment (IVIg, a very expensive treatment made from plasma) is not available.

Israel destroyed Gaza’s sanitation plants. Now a rare disease is spreading unchecked As hospitals in the strip struggle to cope with a stream of injured people, doctors are also battling the rise of a rare disease that has left children paralysed. Alex Croft speaks to medics on the fr...

This story has been circulating around for a while, but this story in the Independent is the most mainstream source. The World Health Organisation are reporting multiple cases including deaths in Gaza caused by Guillain-Barré Syndrome. Short 🧵 www.independent.co.uk/news/world/m...

A 10km run in Denver and a walk around downtown in heat which wasn’t suitable for either running or walking

Off to America for the GBS/CIDP Foundation International Symposium in Denver. Two first for me. USA and a Symposium

Lincolnshire social care services moving away from 'over-reliance' People will be encouraged to delay using services and to

Interesting thing to announce in #Lincolnshire. I put in the #CareAct for the council in 2014 and it was always supposed to be strength based. It was at its heart. So what changed? Service creep, or is this really a way to make savings. Will watch with interest www.bbc.co.uk/news/article...

A thing I write with. Focus on why we shouldn’t use the word ‘should’ in a contract