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Posts by Rightful Lives

Rightful Lives and Stolen Lives Statement on the ITV News Investigation regarding contact restrictions and gagging orders.  – Rightful Lives

Our joint statement with Stolen Lives (Wales)

rightfullives.org.uk/campaigns/ri...

1 month ago 1 3 0 0
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We are failing the very people we should be supporting the most Sam’s story shows us the reality of living with autism

The recent rhetoric from the powers that be about Autistic people has been deeply disturbing. From education to benefits to diagnosis and support, the messaging has been negative and harmful. Yet in real life, Autistic people are being failed again and again.

liveapp.inews.co.uk/category/429...

1 month ago 0 2 0 0

If there was one thing to deal with. It is this. Locked up still going on
@rightfullives.bsky.social ⬇️ How many ?

1 month ago 5 2 0 0
Report of Experiences of Parent Carers of Disabled Children and Adults Across Wales – Rightful Lives

Please read this blog by Clare Lucignoli. In it she discusses her research on the experiences of parent carers of disabled children and adults in Wales. Clare also brings in Rekha Neilson’s report about the similar experiences of families in Cambridgeshire.

rightfullives.org.uk/blog/report-...

1 month ago 0 1 0 0
Human Rights in Secure Hospitals
Human Rights in Secure Hospitals YouTube video by Rightful Lives

For #HumanRightsDay, our admin, Dr Dawn Cavanagh, talks about her recent research into human rights in secure hospitals. Are there any? Listen here 👇

youtu.be/o8G4DGV6q54

4 months ago 2 1 0 0
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“This is how every single person like me suffered at those institutions.”

An Autistic Artist

6 months ago 2 0 0 0
Photo of Alexis Quinn wearing a white shirt.

Photo of Alexis Quinn wearing a white shirt.

In our latest blog, Alexis Quinn discusses her five top PBS bugbears, their impact on people and practical solutions for staff 👇

rightfullives.org.uk/blog/top-fiv...

10 months ago 2 0 1 0
CQC publishes report on service run by Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust - Care Quality CommissionFacebookTwitterYouTube The Care Quality Commission (CQC) has published a report on wards for people with a learning disability or autistic people, run by Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust, followin...

“One family member told us that they didn’t always feel their relative was safe and staying on the Mitford Unit actually made them feel worse.”

Even the so-called specialist units can’t get it right it seems.

www.cqc.org.uk/press-releas...

10 months ago 2 0 0 0
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Subscribe to #AnnaFreud newsletter to be the first to see new animation with @aquinnunbroken.bsky.social
We are passionate about neuro-diversity informed practice and we are asking professionals to un-think and re-think about seclusion and long term segregation
www.annafreud.org/training/hea...

1 year ago 7 9 0 1
Long-term segregation and seclusion for people with an intellectual disability and/or autism in hospitals: critique of the current state of affairs: commentary, Quinn et al | The British Journal of Ps... Long-term segregation and seclusion for people with an intellectual disability and/or autism in hospitals: critique of the current state of affairs: commentary, Quinn et al

Really pleased to have collaborated with such brilliant thought leaders to critique the idea that enforced isolation (LTS) can be therapeutic. Our new paper suggest solitary confinement has no place in modern health care. 1/4

www.cambridge.org/core/journal...

1 year ago 8 4 1 0
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With ministers on resignation watch, welfare cuts could be make or break for Starmer Liz Kendall, work and pensions secretary, is next week expected to announce savings of £5bn a year. Sound the alarms, writes John Rentoul

With ministers ‘on resignation watch’, welfare cuts could be make or break for Keir Starmer

www.independent.co.uk/voices/nhs-e...

1 year ago 116 26 16 1
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NO cruel cuts to benefits The Government is planning “catastrophic” cuts that experts say will force disabled people into poverty. Don’t think that’s right? Add your name now.

act.38degrees.org.uk/act/no-cruel...

1 year ago 4 3 0 0
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My daughter created this image to depict how she felt going to school as a dual heritage autistic person... and why, in the end, she refused to attend. Heartbreaking. #EBSA

1 year ago 6 3 0 0
A deep dive into the Mental Health Bill 2024 - Autism and learning disability
A deep dive into the Mental Health Bill 2024 - Autism and learning disability YouTube video by Doughty Street Chambers

In case you haven’t seen it yet, here is the video of the webinar about the Mental Health Bill that we co-hosted with Oliver Lewis at Doughty Street Chambers last week.

www.youtube.com/watch?v=oM53...

1 year ago 7 5 0 0
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A wonderful evening hosted by @doughtystreet.bsky.social on the impact of the forthcoming Mental Health Bill. What happens with the removal of learning disability & autism when there’s no community provision?

1 year ago 5 3 1 0
https://www.bbc.co.uk/news/articles/cly43png991o

Utterly horrific.

t.co/fggPrPZOaL

1 year ago 0 0 0 0
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A deep dive into the Mental Health Bill 2024 A deep dive into the Mental Health Bill 2024Detention and treatmentThursday 27th February 2025 | 18:00 - 19:30Location: Online via ZoomIn the second webinar of this series Sophy Miles and Elizabeth Cl...

Rightful Lives is co-hosting an event on 4th March at Doughty Street Chambers. It will look at the implications of the Mental Health Bill for autistic people and people with learning disabilities. Why not come along!

www.doughtystreet.co.uk/event/deep-d...

1 year ago 11 10 0 2
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Trauma in the Name of Treatment: Multiple Studies Confirm Adverse Experiences in Psychiatric Hospitalization A comprehensive review of psychiatric hospitalizations reveals widespread harm, from coercion to retraumatization, challenging the dominant narrative of therapeutic intent.

Trauma in the Name of Treatment. We can vouch for that…
www.madinamerica.com/2025/02/trau...

1 year ago 2 2 0 0
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Dear Government. Forcing more & more disabled people into poverty does not save the taxpayer money.
What did you think disabled people do with money? Stash it under the mattress?
It goes back into the economy.
Cold, malnourished people become very ill & cost the NHS a fortune.
Please get a grip.

1 year ago 72 22 2 0
PLP lawyer Aoife O'Reilly and Ellen Clifford in front of the Royal Courts of Justice.

PLP lawyer Aoife O'Reilly and Ellen Clifford in front of the Royal Courts of Justice.

🚨 BREAKING: We are delighted to share that our client
@ellenclifford.bsky.social has won her case against the DWP over an unlawful consultation held on reforms tightening the #WorkCapabilityAssessment.

These reforms would lead to over 400,000 people being worse off by at least £416 a month.

1 year ago 86 41 4 5

Our gentle reminder that there's ~ 2 million autistic ppl in the UK. Research shows we are less likely to commit crime than other ppl, on average.
Having an autism diagnosis is irrelevant to whether they are a criminal. It's like saying, "They have size 8 feet - let's fear all ppl with size 8 feet"

1 year ago 206 34 6 2
Cover of Community Living magazine with the title in yellow capital letters above a photo of Sammy

Cover of Community Living magazine with the title in yellow capital letters above a photo of Sammy

'There's no better way to show Sammy’s legacy and worth than by giving others opportunities he'd have excelled in'

Patricia Alban tells @samcarlisle.bsky.social about her creative son @communitylivingmagazine.com - new articles next week.

Also @maryohara1.bsky.social @georgejulian.bsky.social...

1 year ago 6 4 1 0
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Controversial face-down restraint still being used for mental health patients in England Dangerous practice was supposed to be phased out but new data reveals thousands of incidents every year

Without Accountability, nothing will change…

www.theguardian.com/society/2024...

1 year ago 2 2 0 0
The Oliver McGowan Mandatory Training on Learning Disability and Autism
The Oliver McGowan Mandatory Training on Learning Disability and Autism YouTube video by NHS England Workforce, Training and Education

#Oliverscampaign
This powerful new animation has been co-designed co-produced with autistic people & people with a learning disability It is aimed at helping staff and employers across health & social care to understand Oliver's Training & why it is so vitally important
youtu.be/ouhKSOGm49g?...

1 year ago 45 22 3 2
Statement re paper published in the British Journal of Psychiatry – Rightful Lives

Our statement regarding a paper published in the British Journal of Psychiatry
rightfullives.org.uk/blog/stateme...

1 year ago 12 5 0 2
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Human Rights Day 2024: Open Letter | BIHR Read our letter to the Prime Minister and political leaders, signed by over 70 organisations from across the UK.

#HumanRightsDay

Not all people are seen as fully human, with little recognition that rights are relevant to proper care, support, advocacy - and an everyday life.

Reminder here, inc @learningdiseng.bsky.social @cchangescotland.bsky.social @rightfullives.bsky.social
www.bihr.org.uk/our-work/our...

1 year ago 3 2 0 0
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Long-term segregation and seclusion for people with an intellectual disability and/or autism in hospitals: critique of the current state of affairs | The British Journal of Psychiatry | Cambridge Core Long-term segregation and seclusion for people with an intellectual disability and/or autism in hospitals: critique of the current state of affairs

This grim article shows why institutionalised abuse of people with learning disabilities & autistic citizens drags on. Evidence is clear: long term segregation is harmful. This is a squalid example of a profession protecting its own back & not caring about patients www.cambridge.org/core/journal...

1 year ago 36 19 1 1
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Baroness Hollins' final report: My heart breaks - solitary confinement in hospital has no therapeutic benefit for people with a learning disability and autistic people

#Oliverscampaign
I fully stand by @BaronessHollins & this report
PLEASE SHARE

Baroness Hollins' final report: My heart breaks - solitary confinement in hospital has no therapeutic benefit for people with a learning disability and autistic people

www.gov.uk/government/p...

1 year ago 57 33 2 1
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I hope I live long enough to get my autistic grandson out of hospital Dorothy Lafferty says doctors long ago agreed her grandson does not need to be cared for in hospital.

Heart breaking.
This human rights scandal just goes on and on...
Imagine losing your daughter to brain cancer and then your grandson, who is struggling with the loss of his mother, to a bloody hospital.
Please BBC News show this lady some respect. 'Granny' FFS 😡

www.bbc.co.uk/news/article...

1 year ago 6 2 0 0
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Stolen Lives motion unanimously passed in the Senedd.

Thank you to Hefin David MS, Sioned Williams MS and Mark Isherwood MS.

At last, the inhumane hospitalisation of people with learning disabilities and autistic people has been recognised by the WG as the human rights injustice that it is.

1 year ago 22 16 1 0