💛 If you know someone living with endometriosis, check in on them. Every bit of support counts.
🔗 Read the article: www.integratelmc.eu/news/mapping...
🎬 Full interview: www.youtube.com/watch?v=Qju5...
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• In the project, Lydia and the team uncovered a critical imbalance: between 2019–2024, Europe had only 1 large medical cohort on endometriosis compared to 16 for Alzheimer’s and 48 for depression.
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👩 Endometriosis affects 1 in 10 women and comes with not only physical pain but also a psychological burden. Projects like #IntegrateLMedC highlight existing gaps in the research landscape and encourage collaboration across Europe between institutions and scientists.
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#EndometriosisAwarenessMonth
🗣️ “My experience showed me how deeply endometriosis can affect both physical health and quality of life” - endometriosis patient.
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🎥 Listen to Lydia-Haana Faris, from WP3, on how large medical cohorts can improve understanding, treatment and care for endometriosis.
🔗 Read the article: www.integratelmc.eu/news/mapping...
🎬 Full interview: youtu.be/Qju5bIaR0VU
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By following large groups over time and combining clinical, biological and lifestyle data, this work helps identify risk factors, improve early detection and guide the development of more personalised treatments, ultimately enhancing patient care and awareness of endometriosis.
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✨ Achievements from WP3:
🧩 Conducted a gap analysis of large medical cohorts
🧠 Ran a Delphi study with 73 experts, highlighting endometriosis, depression and Alzheimer’s as priority areas
📊 Scoping review mapping 48 depression, 16 Alzheimer’s and 1 endometriosis cohort
🚀 Produced D3.1
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How can large medical cohorts advance our understanding of endometriosis and improve patient care? WP3 of #IntegrateLMedC mapped Europe’s cohort landscape, identifying unmet medical needs and paving the way for better research, treatments and patient care.
#EndometriosisAwarenessMonth
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🎥 In this video Lydia-Hanaa Faris, WP3, explains why endometriosis is considered an area of major unmet medical need.
🎬 Full interview: youtu.be/Qju5bIaR0VU
Read the article: 🔗 www.integratelmc.eu/news/mapping...
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📊 The results are striking:
• Only 1 large medical cohort on endometriosis
• Compared to 16 for Alzheimer’s disease
• And 48 for depression
This imbalance highlights a critical gap in research that directly impacts diagnosis times, treatment options and quality of life.
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🔬 Through a comprehensive gap analysis involving 70+ experts across Europe, endometriosis was identified as one of the priority conditions that could greatly benefit from large medical cohort research.
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🎗️ Endometriosis affects 1 in 10 women of reproductive age, yet it remains underdiagnosed, under-researched and often misunderstood. This #EndometriosisAwarenessMonth, we’re highlighting findings from WP3 - Large Medical Cohorts of the #IntegrateLMedC.
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🎥 In this video Lydia-Haana Faris, WP3, explains why endometriosis is considered an area of major unmet medical need.
🎬 Full interview: youtu.be/Qju5bIaR0VU
🔗 www.integratelmc.eu/news/mapping...
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📊 The results are striking:
• Only 1 large medical cohort on endometriosis
• Compared to 16 for Alzheimer’s disease
• And 48 for depression
This imbalance highlights a critical gap in research that directly impacts diagnosis times, treatment options and quality of life.
🧵 3/4
🔬 Through a comprehensive gap analysis involving 70+ experts across Europe, endometriosis was identified as one of the priority conditions that could greatly benefit from large medical cohort research.
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👥 🤝 Over two days in Barcelona, the consortium partners gathered to evaluate the project`s progress and plan the path forward into the final year.
Key discussions included:
📌 How to follow up on the outcomes
📌 How to bridge to new funding opportunities
#IntegrateLMedC
📊 Current project status
🗂️ Review of progress reports
🎯 Major priorities and challenges for year 3
💡 A day full of knowledge sharing, strategic planning and teamwork to drive impactful outcomes.
✨ Follow our feed for live updates and highlights from the meeting
📸 Parc Sanitari Sant Joan de Deu
An overview picture of FSJD offices Rise center Parc Sanitari Sant Joan de Déu in Barcelona
👥 🤝 INTEGRATE-LMedC FtF consortium meeting day two
📍 FSJD offices Rise center Parc Sanitari Sant Joan de Déu, Barcelona
📆 Feb 9-10
🚀 Consortium participants from across Europe are engaging in presentations, discussions and collaborative sessions to shape the next phase of INTEGRATE-LMedC, including:
🤝 Excited for two days of collaboration, knowledge exchange and forward-looking discussions.
✨ Stay tuned for updates and insights from the meeting!
🚀 Today we gather in Barcelona for the INTEGRATE-LMedC Face-to-Face (FtF) consortium meeting
📍 Barcelona
📆 Feb 9-10
🌍 Project participants from across Europe are coming together to connect, share updates and prepare for the upcoming sessions that will shape the next phase of #IntegrateLMedC.
👥 🤝 INTEGRATE-LMedC FtF consortium meeting
🎉 We’re just one week away from our #IntegrateLMedC Face-to-Face (FtF) consortium meeting.
📍 Barcelona
📆 February 9-10, 2026
Project participants from across Europe will present INTEGRATE-LMedC updates in detail and discuss strategic outcomes.
A picture featuring the INTEGRATE-LMedC logo that reads: WP15: Policy for Cohort Access and Secondary Data Use.
🚀 WP15 Updates
✅ Defined 8 assessment dimensions for cohort access & secondary data use.
✅ Assessed governance in 3 cohorts (clinical, population, European).
✅Proposed first recommendations for harmonised data access & protection policies.
🔗 www.integratelmc.eu/news/latest-...
A picture that reads: "WP4: Mapping of available, Infrastructure Services for Large Medical Cohorts"
📊 WP4 highlights
🔹 Surveyed 25 organisations supporting large medical cohorts
🔹 5 service clusters mapped
🔹 Gaps: operational support, harmonisation, staff & funding
🔹 Users report fragmented use & regulatory hurdles
🔗 www.integratelmc.eu/news/wp4-the...
A picture displaying the INTEGRATE-LMedC logo in front of a white background
🚀 WP9 highlights
🔹 Identified sustainable IT for medical data
🔹 Built secure access procedures
🔹 Explored federated analysis
🔗 www.integratelmc.eu/news/wp9-dat...
A BBMRI-ERIC story for the WHO World Health Day, Healthy Beginnings, Hopeful Futures. Featuring biobank research from: Estonia(BBMRI.ee), Germany (BBMRI.de), INTEGRATE-LMedC (coordinated by BBMRI-ERIC).
🌍 On #WorldHealthDay BBMRI-ERIC highlighted, among other initiatives, the #IntegrateLMedC project's efforts to address unmet medical needs, especially for conditions like endometriosis.
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🔗 Learn more about WP3: buff.ly/08VXAPP
A picture displaying INTEGRATE-LMedC's WP3 deliverable 3.1: Outcomes of the Gap Analysis of Large Medical Cohorts.
📣 WP3 – Large Medical Cohorts is complete
Over 12 months, WP3 conducted a gap analysis, a Delphi study with 73 experts, and a Scoping Review, mapping cohorts for depression, Alzheimer’s, and endometriosis.
🔗 buff.ly/MxkAjSt
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The integrate-LMedC logo
🚨📣 #IntegrateLMedC 12-month update
🔬 Identifying unmet medical needs (depression, Alzheimer’s, endometriosis)
🤝 Enhancing researcher & participant engagement
📊 Expanding the FAIR medical cohorts catalogue
🔗 integratelmc.eu/news/integra...
The picture of the cover's of WP6 - Deliverable 6.1
📣 Progress Update from WP6
📄 In 6 months, WP6 delivered D6.1: Established Assessment Regime, outlining guidelines for evaluating large medical cohorts (LMedC) for a future research infrastructure.
🔑 Key focuses:
1️⃣ ELSI
2️⃣ FAIR Data Management
3️⃣ Data Sharing & Protection
🔗 buff.ly/4fHk84G
