Yeah, even with years of PT/Pilates/yoga/etc, sometimes you need massage and muscle relaxers too. Especially with all of the things happening in the world right now.
All treatment modalities have their place, but rarely is that place alone, with no adjuncts.
Today I did the thing anyway. Had a shorter day to help with the energy of navigating inaccessibility.
I’m glad I did. The spoon cost was immense, but it was an important room to be in. Met new people, connected with awesome folks I know and shared my excitement too.
Wish I didn’t have to choose
I’m mostly just exhausted of being put in this position. I want people to do better now not next time. Disabled people do better on smaller budgets with fewer staff. We prioritize it. We think about what it means to be included and welcome. Why is that such a hard standard for others to meet?
I never know what to do when something isn’t accessible to me.
A lot of the time I just don’t go. It’s exhausting to bridge the access fails. The fact that I do it undermines when I ask for it the next time and someone saw me go without it before.
Of course that piqued your interest.
MUST READ. @cfraz.bsky.social just published a paper documenting her experiences during her 2-yr engagement w the Canadian Association of MAiD Assessors & Providers [CAMAP]. It is damning. Plausible deniability is off-the-table for those at helm of MAID. No paywall
cjds.uwaterloo.ca/index.php/cj...
With good reason, it is really hard to interpret even provincial guidelines for biologics, without wanting to tear my hair out. Diseases don't care about administrative arbitrary boxes, and it delays care. There's a lot we can and should do better. And its even more the case for private insurance.
I mean, MS autologous stem cell transplant was pioneered in Canada, and many of my PhD colleagues in immunology were working on CAR-T cell stuff at PMH. I don't disagree that there are significant barriers to accessing expensive medications even in Canada, but they exist, and are prescribed/covered.
A potcake with strong terrier and lab phenotype, stands on a grey duvet, wearing a purple collar. She has a patch shaved on her right foreleg, and is wearing a coban bandage on her right back paw. She's looking at the camera with intrigue, as there is a hamburger patty with her name on it, for being a good girl at the vet ER.
What an adorable tiny demon child. Our terrier terror is also very cute, and she had a vet ER visit immediately prior to this photo, hence the intense gaze, as there is a hamburger patty with her name on it behind the camera. She's healing well, despite her sock Houdini tendencies.
And racist asshats. It is particularly notable in rescues that "save" dogs/cats from other countries or indigenous communities here. Such a toxic mix.
PM Carney: so hear me out, if all the MPs joined the Liberal party we'd have the most diverse democracy on the planet! Isn't that great? Look behind me at all this neat stuff we are gonna build! Well, not, "we", as in the government, obviously, the private sector is.. uh, but you know, uh, democracy
Something that has surprised me in my work this year is how much I love making video games. I hope that games get to stay a big part of my creative practice moving forward.
We are just hitting the point where the game is developed enough to make the proof of concept in earnest and it’s amazing.
I made a little Instagram reel about this image because it’s just so frickin’ cool
Valid. And like, as an immunology PhD, I'm very well versed in why blood donation is volunteer based in Canada, and that was before I even started my PhD, where my lab was actually in the CBS building on College St. in Toronto, which had so much info about their history on the walls.
NEW by me. Physicians killing disabled people (who are not expected to die within the next 12 months) is not an option in Alberta. That’s new in Canada, & that is something we celebrate. It also demands we make certain those disabled people are supported to live.
macdonaldlaurier.ca/better-dead-...
This is due to the risks of TA-GVHD and TRALI as well as infectious disease risks are notably higher, particularly in the context of parental donations. These risks, on top of delayed transfusion and the reality that you can't tell the difference between vaccinated/unvaccinated blood products.
Surprisingly, the article about the study didn't include the fact that two other hospitals with pathways for consultation with transfusion medicine/shared decision making had zero directed transfusions without medical indications. Likely because parental transfusions need to be irradiated.
Surprisingly, the article about the study didn't include the fact that two other hospitals with pathways for consultation with transfusion medicine/shared decision making had zero directed transfusions without medical indications. Likely because parental transfusions need to be irradiated.
Reading the article, the risks, both in delayed necessary transfusion, and the risks of TA-GVHD and TRALI as well as infectious disease risks are notably higher, particularly in the context of parental donations.
"Until this precautionary principle is fully recognized, mandated and enforced in Ontario’s hospitals, workers will continue to be at risk."
Quote from the Campbell Commission in The Tyee article thetyee.ca/Analysis/202.... So frustrating that we didn't learn from the 2007 commission prior to 2020.
What a sweet pan-fried dumpling!
My PhD lab did a week long trip to our PI's dad's camp basically inside Killarney Provincial Park, which required a portage and also included a hike to Acid Lake. No one left behind, because that's how you are supposed to do.
It must be a trip after so much gaslighting/buck passing to have doctors to actually believe you and also treat your blood problems as well. Crossing everything for it to work quickly and no issues with dealing with the medical system.
Ewww. Take over a standard parking space at least. Like, better that they have a station instead of people leaving them everywhere, but still.
"I can’t help but think that QALYs, and some views on disability abortions and MAiD, are interconnected. At every stage, disabled life can be seen as a fate literally worse than death, especially by doctors and medical authorities."
Such a spot on analysis. Assist us to live well, before MaID.
Ooof, that is such a frustrating situation to be in - both happy to get taken seriously, and simultaneously grieving you were not believed earlier. It is exhausting to deal with the medical system, and I'm so glad that you are finally getting the care you need, and hope it all goes smoothly.
#uspol
Eugenicist fascism never stops at the first group it targets. The target population always grows.
Truly. The pandemic was helpful in increasing the availability of virtual options, which has been hugely helpful as I've become much more disabled since going on leave since summer of 2022. Leaving the house is a massive logistics nightmare with so many variables - particularly in winter.
It makes me so happy to see so many masked people together - its become so depressingly rare, even in crowded indoor places, and particularly medical facilities.
Stunning! It makes me think of Ukraine, but with a darker blue. And there's definitely a reverse transfer payment joke in there.