A service dog named Alfred sparked a Lyft settlement in Minnesota with nationwide reach Lyft has agreed to protect the rights of blind and disabled riders to travel with service animals under a Minnesota settlement that applies nationwide.

Lyft has agreed to protect the rights of blind and disabled riders to travel with service animals under a Minnesota settlement that applies nationwide.

#medsky #raredisease #bardetbiedlsyndrome

Setmelanotide in Bardet‐Biedl Syndrome: A 52‐Week Comparison of Phase 3 Trial Participants With a Matched Registry Cohort Objective This analysis aimed to assess the efficacy of setmelanotide over 52 weeks in patients with Bardet-Biedl syndrome (BBS) compared with an external natural history cohort from the internation...

Very pleased to see this published online. Clinical Registry Investigating Bardet Biedl Syndrome used to create external natural history cohort as comparator to clinical trial cohort. Demonstrates one of the many important benefits of natural history cohorts

onlinelibrary.wiley.com/doi/10.1002/...

For $45 it isn’t unreasonable to expect it to do both

AI no better than other methods for patients seeking medical advice, study shows Asking AI about medical symptoms does not help patients make better decisions about their health than other methods, such as a standard internet search, according to a new study published in Nature Medicine.

AI no better than other methods for patients seeking medical advice, study shows reut.rs/3My1cvN

I will think of Ms West with gratitude when I ski, bike, run, or any of the other many activities that are more enjoyable thanks to her work.

Where Was My Generic Prescription Drug Made? - Rx Inspector - ProPublica The FDA won’t tell Americans where their generic drugs are made, so ProPublica did it instead. Use information on your prescription label to locate the factory and see inspection reports.

#ICYMI: Our Rx Inspector tool allows you to use information from your prescription label to locate the factory where a generic drug was made and see if the plant has a history of inspection violations.

Explore the tool:

I was thinking the same thing. The last comment leaves open the idea that a combination of vaccines cause autism

Alex Pretti, wearing a green sweater with his VA badge on.

This is Alex Pretti.

This morning he was murdered by ICE. Six ICE agents held him down and shot him at point blank range. Alex was a nurse and researcher at the VA.

Our thoughts are with his loved ones and we stand united in action calling for the abolishment of ICE.

#ScientistsAgainstICE

“A Godsend”: ProPublica’s Rx Inspector Tool Is Helping People Find Critical Safety Information on Generic Drugs Health care workers are changing how they counsel patients. Experts are using our database to support their research. And some consumers report they’ve discovered troubling records at the factories wh...

NEW: Rx Inspector, our free, searchable tool, allows you to look up where your generic prescription drug was made.

From patients and doctors to researchers, it is already reshaping how people make decisions. “This is a godsend,” one professor told us.

Falling snow timeline cleanse

An orange cat curled up like a shrimp sleeping peacefully

Orange cat timeline cleanse

A man smiling and giving a thumbs up gesture while riding a mountain bike

A group of people working on a mountain bike trail

A man and a woman on mountain bikes smiling while standing at an overlook over a lake

It is so hard to come up with even a top 10 of favorite bike memories of 2025. Celebrating the CAMBA community in Northern WI and seeing how the Cuyuna Lakes region of Northern MN reinvented itself as an outdoor playground are definitely up there

Why Denmark's vaccine schedule works for Denmark — but not for the United States With its vaccine schedule, “Denmark has made a values choice to accept preventable hospitalizations and illnesses that other countries have chosen to prevent.”

Nice discussion of Denmark’s vaccination strategy here:

www.statnews.com/2025/12/19/d...

Relying on ChatGPT to teach you about a topic leaves you with shallower knowledge than Googling and reading about it, according to new research that compared what more than 10,000 people knew after using one method or the other.

Shared by @gizmodo.com: buff.ly/yAAHtHq

That is amazing. Used to live in PHX and I suspect the viewing would have been good. South Mountain blocked a lot of the light pollution from the city.

Photo of the night sky with a tree and a bright red band of the Northern Lights visible

The cloud cover made viewing not ideal, but had some good views in Northern WI.
Heard from people as far south as St Louis, MO that could see the aurora on the horizon.

A picture of the night sky showing a red band of the Northern Lights

The Northern Lights are putting on quite a show tonight

Hepatitis B shot for newborns has nearly eliminated childhood infections with this virus in the US Before universal vaccination for hepatitis B began in 1991, 18,000 children contracted the virus by age 10 each year, and most of them developed chronic illness and liver damage. Vaccination reduced…

Are you with us in the battle against misinformation? If so, we’d appreciate your support.

Just this week, we’ve explained the importance and safety of vaccines… 🧵
buff.ly/cRsOxNT
🩺 🧪 #VaccinesWork

Georgia’s Medicaid Work Requirement Program Spent Twice as Much on Administrative Costs as on Health Care, GAO Says Republican lawmakers cite Georgia’s Pathways to Coverage as a national model for federal Medicaid work requirements that are set to take effect in 2027. A new report shows the program has spent at lea...

NEW: GOP lawmakers cite Georgia’s Pathways to Coverage as a national model for federal Medicaid work requirements that are set to take effect in 2027.

A new report shows the program has spent twice as much on administrative costs as on health care.

By @savmargaret.bsky.social

Multispecialty care for BBS @ the Marshfield Clinic BBS Center of Excellence with Dr. Jeremy Pomeroy YouTube video by A Race Against Blindness - Nonprofit Organization

I am grateful for the opportunity to chat with Dr Stephen Johnston from A Race Against Blindness youtu.be/XUZMrMG4WKg?...
#raredisease #medsky #bardetbiedlsyndrome

We are witnessing the destruction of science in America | Paul Darren Bieniasz If we stay on this administration’s course, future life-saving medicines may never be invented

We are witnessing the destruction of science in America | Paul Darren Bieniasz

Multispecialty care for BBS @ the Marshfield Clinic BBS Center of Excellence with Dr. Jeremy Pomeroy YouTube video by A Race Against Blindness - Nonprofit Organization

I am grateful for the opportunity to chat with Dr Stephen Johnston from A Race Against Blindness youtu.be/XUZMrMG4WKg?...
#raredisease #medsky #bardetbiedlsyndrome

US map via scienceimpacts.org visualization of economic loss due to IDC cuts to 15% as part of Feb 7, 2025 executive order, with shading denoting intensity of cuts.

Working with an interdisciplinary team, we have developed a website to communicate how the White House's proposed cuts to health research would cause losses of $16B and 68,500 jobs.

Find out how your community may be impacted.

Explore more at SCIMaP: scienceimpacts.org

a 🧵

From 2010 to 2016 (latest data I have ), NIH research contributed to EVERY drug approved by the FDA

This Founder’s Gene Therapy Company Helped Blind Kids See Again Zandy Forbes’ biotech company MeiraGTx has developed targeted gene therapy methods to treat more than just genetic disorders. Now it’s on the cusp of its first approval.

My latest - gene therapy company MeiraGTx has restored sight to 11 children born with a rare genetic disorder that causes blindness.

www.forbes.com/sites/alexkn...

Trump credit card freeze crippling cancer and Alzheimer's research On February 26, President Trump issued an executive order expanding the power of the United States DOGE Service (DOGE), the government initiative controlled by Elon Musk.

1. The Trump administration has crippled cancer and Alzheimer's research by imposing a freeze on all government credit cards at NIH.

An NIH source with direct knowledge tell Popular Information that scientific research has ground to halt because necessary supplies can no longer be purchased.

Are you an HHS employee struggling with your 5 bullets? We applaud the hero that created this site, where you can input your occupation (title or job series both work) and it generates 5 bullets for you.
www.opmreply.com

Just finished the renewal for my NIH grant, which has funded my work for 23 years. We'll follow through on exciting threads, including a possible link between autism spectrum disorder and sensation/movement.

Barring a collapse in the federal government and U.S. science, it's ready to submit.

uh oh

I cover health and biotech at WIRED, and I'm looking to speak with employees at federal labs whose work is being affected by the credit card freeze. You can reach me securely on Signal at emullin.06. I can honor requests for anonymity.