If you have kidney disease and are keen to be involved in research into the condition please check out our research opportunities page: kidneycareuk.org/get.../resea...
We update this regularly with the latest research opportunities and how you can get involved.
Posts by Nick Palmer
Promotional poster for the Kidney Care UK 2025 Gala Dinner in Belfast, featuring an event scene with attendees, emphasizing the opportunity to win tickets.
π Win tickets to our 2025 Gala Dinner in Belfast. We want you to join us for a night to remember at Titanic Belfast! Prize tickets kindly funded by Lurgan Veterinary Clinic and ABP Food Group.
Enter or nominate someone to win (closes 21 July at 5pm) π forms.gle/fBUfyMtNw1Sz...
Our charity Golf information. ππ
Adults with kidney failure experience financial toxicity as measured by the Comprehensive Score for financial Toxicity (CoST). Additionally, those experiencing financial toxicity report reduced workforce participation. kidney.pub/KID0857 #ASNKidney360
Two power cuts in less than an hour tonight, completely disrupting my 8 hour overnight haemodialysis for the second time this month!
π¨ LATE-BREAKING SESSION ALERT π¨ #PodocyteConference π
Vincent Boima's overview of the recent study published in @nejm about APOL1 Bi- and Monoallelic Variants and Chronic Kidney Disease in West Africans π π₯ tobias-b-huber.bsky.social
A look into the future by Prof. Moin Saleem π§ at the #PodocyteConference π Walking towards gene therapy in Glomerular Diseases π§¬π€― kidneyresearchuk.orgβ¬ tobias-b-huber.bsky.social
Promotional graphic by Kidney UK discussing the impact of inadequate support on individuals with kidney disease, featuring a quote on emotional challenges and an image of the report.
π£ Our latest report 'Left to get on with it' focuses on the social and emotional needs and experiences of adults living with kidney disease. High quality psychosocial support should be available to EVERYONE with kidney disease.
Click here π kidneycareuk.org/news-from-ki...
Huge thank you to all those that sponsored and supported. Raised over Β£3k for @kidneycareuk.bsky.social the power of #nocturnaldialysis
A big thank you to everyone who has shown generous support and sponsored my London Landmarks half marathon run on Sunday for
@kidneycareuk.bsky.social
Big rest and fuel day today, hopefully with an
@evertonfc.com
win!
www.justgiving.com/page/nick-pa...
Just over a week until I run the London Landmarks half marathon. No mean feat for someone with #kidneyfailure on #nocturnaldialysis! If any of you lovely folks are able to sponsor me in support of @kidneycareuk.bsky.social that would be fabulous β€οΈπ
Focal segmental glomerulosclerosis impacts the kidneys & is a major cause of kidney failure requiring dialysis or a #KidneyTransplant. When receiving a transplant, patients with FSGS experience recurrence of disease in up to 40% of casesβcalled recurrent FSGS.
#KidneyMonth #rFSGS #rFSGSConference
This is a lovely piece of writing. Iβm biased, as it is by my wife, but it is lovely all the same kidneycareuk.org/kidney-disea... @kidneycareuk.bsky.social
It's a great piece! I remember the horror of mine first being used 26 years ago and the utter joy of literally bumping into someone with a fistula in a supermarket in Peckham and sharing a moment!
β π
π’Do you or a family member have #KidneyDisease, #HighBloodPressure or #Diabetes?
π We would like to hear about what information you have received about your #kidneys - what was good & what could be improved!
πapp.onlinesurveys.jisc.ac.uk/s/salford/phase-1-patien...
πThank you!
Beautiful thai chicken noodle soup for a cold evening βοΈ courtesy of @nigella.bsky.social
Interesting new paper in CKJ: effect of climate change / heatwaves on mortality. Increased in dialysis patients - not in transplant.
academic.oup.com/ckj/advance-...
That figures. In the UK/London with summer temps peaking 33-37 (not for very long) I am on my knees and need to lay down. Abroad with similar temps but with air con and a swimming pool life is far more manageable.
Less 'shop' more food bank. That's incredibly generous and heartening to seeπ
Merry Christmas to you too Paul. Thank you for your unwavering persistence in the face of often toxic criticism and your professional nous. You and many, many other Blues (home and away!) have done us all proud and kept the 'fires burnin'! ππ₯πππ
Thanks Rob, you too. Here's to a 'healthy' 2025π
Merry Christmas Rob!ππ₯
π² With wintery weather set to affect many of us soon, get meal planning with our #KidneyKitchen soups and stews recipes. From traditional leek & potato soup to flavour packed Thai & North African dishes - you have lots to choose from! #KidneyFriendly recipes here: kidneycareuk.org/get-support/...
Wonderful event at UK Parliament yesterday organised by @kidneycareuk.bsky.social & @nhsbt.bsky.social
Celebrating organ donation + raising awareness of how important kidney health is + how devastating kidney disease/failure can be β‘οΈ
Plus lovely catch up with pal/new MP/Tx surgeon Zubir Ahmed π€
And yesterday we attended another event in Westminster with @parkinsons.org.uk #sicklecellsociety @asthmaandlunguk.bsky.social @cftrustuk.bsky.social raising awareness with MPs of the impact of #prescriptioncharges thanks to support from @helenmorganlibdem.bsky.social & @leepitcher.bsky.social
A grand room within Westminster that is filled with professionals all listening to Fiona Loud - Policy Director at Kidney Care UK. Fiona is holding a discussion and is dressed in a red blazer and a red patterned skirt.
We've been in Parliament today with NHSBT talking to MPs & peers about the importance of #OrganDonation & telling your family about your wishes. The waiting list is the highest it's been in a decade and this needs to change. Thank you to all who joined us today to make this event such a success!
Self Promo Monday.
It takes less than 5 seconds to like or share something.
Big up your mates, help them out, even if you don't need anything done.
Support them when you can.
You never know who might see it.
My design work can be found here:
insidesixtyone.com
Cheers β
Great to see a conference like this. Experienced rFSGS twice. Now doing well on nocturnal HHD.π
Knife. Rusty. Blunt.