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Posts by Eden Dora Trust

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๐Ÿ’™We need your help
๐Ÿง  Have you/your child had Encephalitis?
Weโ€™re carrying out important research & need your lived experience - your voice can make a difference!๐Ÿ“ข

โฐ It only takes a few mins - get involved today & help shape real change
๐Ÿ“ฉ Email: contact@edendoratrust.org
Thank you
#Encephalitis #ABI

3 weeks ago 0 0 0 0
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SEND reforms must help young people with acquired brain injuries - Educate magazine The UK Acquired Brain Injury Form calls for a commitment to ensure every school can meet the needs of young people with acquired brain injury.

Following the publication of the governmentโ€™s consultation on SEND reform, @ukabif.bsky.social has called for a commitment to ensure every school can meet the needs of children and young people with acquired brain injury (ABI).

๐Ÿ”— Read the full article here: www.educatemagazine.com/send-reforms...

3 weeks ago 2 1 0 0

Proud to support @cbituk.bsky.social by funding all the โ€˜UCABIโ€™ workshops, with all attendees taking part at no additional cost to themselves ๐Ÿง 
Ensuring everyone can become more informed about ABI & a YPโ€™s needs after an ABI, enabling correct support for all ๐Ÿ™

#ABI #Encephalitis #childhoodABI

3 weeks ago 0 1 0 0

Thank you so much @cbituk.bsky.social for your birthday wishes ๐Ÿซถ
We love our relationship with you. Making a difference together is key ๐Ÿ’™

#ABI #Encephalitis #ChildhoodEncephalitis #WorldEncephalitisDay #edtbirthday #12years #collaboration #TeamWork

1 month ago 1 0 0 0
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Join our free, CPD-accredited Understanding Childhood Acquired Brain Injury (UCABI) workshops! ๐Ÿ’™ Free to attend, thanks to the generous funding of @edendoratrust.bsky.social

Learn more and secure your space now: buff.ly/tXJJ2C4

2 months ago 1 1 0 0
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Weโ€™re incredibly grateful to Brain Injury Group for choosing us as a charity partner at their conference next week๐Ÿ’™
We can't wait to see everyone๐Ÿ˜€
This support means so much to us, not only to raise vital funds, but also to spread awareness
#ABI #Encephalitis #ThankYou #CharityPartner

3 months ago 2 1 0 0

Learning about childhood ABI is vital to ensure YP receive the best support, care & future - we know this 1st hand!
Weโ€™re so proud that this is just 1 of the things we are able to do as a charity, because of YOU our fantastic supporters
Thank you, we couldnโ€™t do it without you๐Ÿ’™

#ABI #Encephalitis

3 months ago 0 0 0 0
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Building Brighter Days โ€“ Christmas Appeal for Eden Dora Trust Support our Building Brighter Days Christmas Appeal and help children and families affected by Encephalitis and Acquired Brain Injury (ABI). Your donation provides vital support now and in the future...

There's still time to support us with our appeal, any donation youโ€™re able to give will do so much to ensure children affected by #Encephalitis and #ABI have the support they need when they need it ๐Ÿ’™
Thank you, every single penny WILL make a difference!

www.justgiving.com/campaign/edt...

3 months ago 0 0 0 0
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Thank you to all our supporters, families, and companies who make our work possible. Your generosity & support helps children and families affected by encephalitis and acquired brain injuries.

We couldnโ€™t do it without you ๐Ÿ’™

Merry Christmas from all at Eden Dora Trust ๐ŸŽ„

4 months ago 1 0 0 0
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Through CPD workshops + tailored sessions, we share practical tools, real experiences + evidence-based strategies. Our Understanding Childhood Acquired Brain Injury Workshop equips professionals with insight and practical tools. We are grateful to the @edendoratrust.bsky.social for funding these.

4 months ago 1 1 0 0
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A huge thank you to everyone who joined our recent Understanding Childhood Acquired Brain Injury workshop at Bolt Burdon and Kemp in London. These workshops are kindly funded by @edendoratrust.bsky.social, whose generosity makes it possible for professionals across the UK to access them for free!

4 months ago 1 1 0 0
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Charity Partner Spotlight - The Eden Dora Trust

We had a great day recording this podcast with The Brain Injury Group, discussing all things Eden Dora Trust, how we got here & why we do what we do, thank you B.I.G!๐Ÿ’™

Please have a listen here ๐Ÿ‘‡

open.spotify.com/show/1dwrExT...

#Encephalitis #ABI #Teamwork #Collaboration

4 months ago 3 0 0 0

Thank you @cbituk.bsky.social We are so happy/proud to be able to fund this fabulous and necessary workshop and are over the moon the in person UCABI tomorrow is fully subscribed ๐Ÿ‘๐Ÿผ๐Ÿ‘๐Ÿผ

4 months ago 1 0 0 0

We're so proud to fund the vital 'UCABI' workshops, making it free for anyone working with a child that has an ABI to attend ๐Ÿ’™
Huge thanks to @cbituk.bsky.social for running this incredible workshop, we know 1st hand how important this workshop and ABI training is! ๐Ÿซถ

#Encephalitis #ABI #Teamwork

4 months ago 1 0 0 0
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Building Brighter Days โ€“ Christmas Appeal for Eden Dora Trust Support our Building Brighter Days Christmas Appeal and help children and families affected by Encephalitis and Acquired Brain Injury (ABI). Your donation provides vital support now and in the future...

Festive Fundraising Challenge ๐ŸŽ„
Take on a xmas challenge & help us support families affected by Encephalitis & ABI

You could do a -
๐ŸŽ… Santa run
๐Ÿงฆ Jumper challenge
๐Ÿฐ Festive bake sale
or anything you'd like!

Start your fundraiser here ๐Ÿ‘‰ www.justgiving.com/campaign/edt...

Thank you ๐Ÿซถ

4 months ago 0 0 0 0
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Building Brighter Days โ€“ Christmas Appeal for Eden Dora Trust Support our Building Brighter Days Christmas Appeal and help children and families living Encephalitis and Acquired Brain Injury (ABI). Your donation provides vital support now and in the future, ens...

โœจ Our Christmas Appeal is LIVE! โœจ๐ŸŽ„

โ€œWhen our child got Encephalitis, our world turned upside down, EDT was there for us, I don't know how we'd have coped without them.โ€

You can help us reach more families like theirs
Please support our Christmas Appeal๐ŸŽ„๐Ÿ’™

www.justgiving.com/campaign/edt...

4 months ago 2 1 0 0
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๐ŸŽ„โœจ Skipping the Christmas Cards This Year? โœจ๐ŸŽ„

If youโ€™re thinking about sending fewer Christmas cards - Pls consider supporting our charity instead ๐Ÿ’™

Help us to continue supporting children living with the effects of childhood Encephalitis & ABI. ๐Ÿง 

Thank you ๐ŸŽ…๐ŸŽ„๐Ÿ’™

#Encephalitis #ABI

5 months ago 0 0 0 0
NABLES Patient Passport - United Kingdom Acquired Brain Injury Forum

The fabulous team we work with @nables.bsky.social have a new resource:
An editable ABI Passport, designed by our incredible Young Experts By Experience in ABI A way to emphasise the YP's voice & help teachers understand more about their specific ABI
#ABI #Encephalitis

ukabif.org.uk/page/NABLESA...

5 months ago 0 0 0 0
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"We need to bring the best of the NHS, to the rest of the NHS"

At the #UKABIFSummit2025, Ashley Dalton, MP and Under-Secretary of State for Public Health and Prevention DHSC delivered an outstanding presentation. Listening to her motivational stories was truly inspiring!

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5 months ago 1 1 1 0
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Dr. Hope Kent delivered an exceptional talk at the @ukabif.bsky.social #Summit2025. She shared her ongoing research, highlighting the lack of SEN support for young people with #ABI, as they aren't listed on the school census.

#BrainInjuryAwareness #EducationMatters #Inclusivity

5 months ago 1 1 0 0
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National Acquired Brain Injury In Learning And Education Syndicate help make educators aware of abi The National ABI Education and Learning Syndicate (N-ABLES) was set up to identify ways to support all education professionals in gaining a minimum level of awareness and understanding about acquiredโ€ฆ

On #AntiBullyingWeek, it's vital to highlight the importance of creating nurturing, respectful environments, particularly in schools. If you have a student with an #AcquiredBrainInjury (ABI), understanding and empathy are crucial!

๐Ÿ”— More information:

5 months ago 1 1 0 0
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"Teachers have the professional skills to support these children, but donโ€™t have the knowledge... there is a lack of consistent training for #ABI"

Joanna Woodhouse from N-ABLES shared insights from the Educators' Perspective at the #UKABIFSummit2025 symposium.

5 months ago 2 1 0 0
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So many incredible, passionate people wanting to make a difference @ukabif.bsky.social summit & @n-ables.bsky.social speakers were amazing. So proud (bursting!) of our very own young expert by experience (Eden ๐ŸŒŸ) speaking with Baroness Estelle Morris๐Ÿง 
The day really was superb ๐Ÿ’™

#ABI #Encephalitis

5 months ago 0 0 0 0
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๐Ÿ“ง Join our mailing list!

๐Ÿ”— Subscribe for regular updates about our resources and upcoming events by clicking on the following link buff.ly/mvMZSSk or email us at: NABLES@UKABIF.org.uk.

Thank you for your continued support!

#BrainInjuryAwareness #EducationMatters

5 months ago 1 1 0 0
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๐Ÿง TOPS-UK supports young people (13โ€“19) with an ABI to manage everyday challenges
Struggling with planning, organisation, or feeling overwhelmed?

๐Ÿ’ก Learn simple strategies
๐Ÿ“ฑOnline & accessible (with coach support)
๐ŸŒtops-uk.org
๐Ÿ“งtopsuk@exeter.ac.uk

#ABI #Encephalitis

5 months ago 0 0 0 0
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Half term is approaching, with lots of activities planned ๐ŸŽƒ
We understand that for some families of children after Encephalitis & with an ABI, school holidays can be a tough time ๐Ÿซถ
We are here to support you via our helpline, email, or through our online resources ๐Ÿ’™
#ABI #encephalitis #halfterm

5 months ago 1 0 0 0

Incredible opportunity for someone to take advantage of our NEW funded 3 year PhD project๐Ÿง 
๐Ÿ‘‰ www.exeter.ac.uk/study/fundin...

Please get in touch if you/candidates have questions
#Encephalitis #ABI
@annaadlam.bsky.social @emilytalbot.bsky.social

6 months ago 2 1 0 0
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Improve Inclusion, Attendance and Engagement for Pupils with an ABI Create a brain injury-aware school to boost inclusion, attendance & engagement for students with acquired brain injuries (ABI).

Last chance to sign-up to our @twinklresources.bsky.social Teachmeet tomorrow.

The key areas of focus include...
๐Ÿ“š Inclusion
๐Ÿง  Fatigue Management
๐ŸŒŸ Peers and Participation

๐Ÿ”— Sign-up here: www.eventbrite.co.uk/e/improve-in...

6 months ago 1 1 0 0

We know 1st hand just how important it is to understand a young person with an ABI & how helpful, informative & necessary the 'UCABI' workshop is๐Ÿง 
Which is why we fund it completely, so ANYONE working with a child that has an ABI can attend at no cost to themselves!
Link below ๐Ÿ’™
#ABI #Encephalitis

7 months ago 2 0 1 0

Thank you to all the amazing people who chose to take part in the Great North Run for us today. You are amazing & we couldnโ€™t do what we do with out you! Thank you ๐Ÿ’™

#ABB #encephalitis #support #marathon #GreatNorthRun

7 months ago 0 0 0 0