๐We need your help
๐ง Have you/your child had Encephalitis?
Weโre carrying out important research & need your lived experience - your voice can make a difference!๐ข
โฐ It only takes a few mins - get involved today & help shape real change
๐ฉ Email: contact@edendoratrust.org
Thank you
#Encephalitis #ABI
Posts by Eden Dora Trust
Following the publication of the governmentโs consultation on SEND reform, @ukabif.bsky.social has called for a commitment to ensure every school can meet the needs of children and young people with acquired brain injury (ABI).
๐ Read the full article here: www.educatemagazine.com/send-reforms...
Proud to support @cbituk.bsky.social by funding all the โUCABIโ workshops, with all attendees taking part at no additional cost to themselves ๐ง
Ensuring everyone can become more informed about ABI & a YPโs needs after an ABI, enabling correct support for all ๐
#ABI #Encephalitis #childhoodABI
Thank you so much @cbituk.bsky.social for your birthday wishes ๐ซถ
We love our relationship with you. Making a difference together is key ๐
#ABI #Encephalitis #ChildhoodEncephalitis #WorldEncephalitisDay #edtbirthday #12years #collaboration #TeamWork
Join our free, CPD-accredited Understanding Childhood Acquired Brain Injury (UCABI) workshops! ๐ Free to attend, thanks to the generous funding of @edendoratrust.bsky.social
Learn more and secure your space now: buff.ly/tXJJ2C4
Weโre incredibly grateful to Brain Injury Group for choosing us as a charity partner at their conference next week๐
We can't wait to see everyone๐
This support means so much to us, not only to raise vital funds, but also to spread awareness
#ABI #Encephalitis #ThankYou #CharityPartner
Learning about childhood ABI is vital to ensure YP receive the best support, care & future - we know this 1st hand!
Weโre so proud that this is just 1 of the things we are able to do as a charity, because of YOU our fantastic supporters
Thank you, we couldnโt do it without you๐
#ABI #Encephalitis
There's still time to support us with our appeal, any donation youโre able to give will do so much to ensure children affected by #Encephalitis and #ABI have the support they need when they need it ๐
Thank you, every single penny WILL make a difference!
www.justgiving.com/campaign/edt...
Thank you to all our supporters, families, and companies who make our work possible. Your generosity & support helps children and families affected by encephalitis and acquired brain injuries.
We couldnโt do it without you ๐
Merry Christmas from all at Eden Dora Trust ๐
Through CPD workshops + tailored sessions, we share practical tools, real experiences + evidence-based strategies. Our Understanding Childhood Acquired Brain Injury Workshop equips professionals with insight and practical tools. We are grateful to the @edendoratrust.bsky.social for funding these.
A huge thank you to everyone who joined our recent Understanding Childhood Acquired Brain Injury workshop at Bolt Burdon and Kemp in London. These workshops are kindly funded by @edendoratrust.bsky.social, whose generosity makes it possible for professionals across the UK to access them for free!
We had a great day recording this podcast with The Brain Injury Group, discussing all things Eden Dora Trust, how we got here & why we do what we do, thank you B.I.G!๐
Please have a listen here ๐
open.spotify.com/show/1dwrExT...
#Encephalitis #ABI #Teamwork #Collaboration
Thank you @cbituk.bsky.social We are so happy/proud to be able to fund this fabulous and necessary workshop and are over the moon the in person UCABI tomorrow is fully subscribed ๐๐ผ๐๐ผ
We're so proud to fund the vital 'UCABI' workshops, making it free for anyone working with a child that has an ABI to attend ๐
Huge thanks to @cbituk.bsky.social for running this incredible workshop, we know 1st hand how important this workshop and ABI training is! ๐ซถ
#Encephalitis #ABI #Teamwork
Festive Fundraising Challenge ๐
Take on a xmas challenge & help us support families affected by Encephalitis & ABI
You could do a -
๐
Santa run
๐งฆ Jumper challenge
๐ฐ Festive bake sale
or anything you'd like!
Start your fundraiser here ๐ www.justgiving.com/campaign/edt...
Thank you ๐ซถ
โจ Our Christmas Appeal is LIVE! โจ๐
โWhen our child got Encephalitis, our world turned upside down, EDT was there for us, I don't know how we'd have coped without them.โ
You can help us reach more families like theirs
Please support our Christmas Appeal๐๐
www.justgiving.com/campaign/edt...
๐โจ Skipping the Christmas Cards This Year? โจ๐
If youโre thinking about sending fewer Christmas cards - Pls consider supporting our charity instead ๐
Help us to continue supporting children living with the effects of childhood Encephalitis & ABI. ๐ง
Thank you ๐
๐๐
#Encephalitis #ABI
The fabulous team we work with @nables.bsky.social have a new resource:
An editable ABI Passport, designed by our incredible Young Experts By Experience in ABI A way to emphasise the YP's voice & help teachers understand more about their specific ABI
#ABI #Encephalitis
ukabif.org.uk/page/NABLESA...
"We need to bring the best of the NHS, to the rest of the NHS"
At the #UKABIFSummit2025, Ashley Dalton, MP and Under-Secretary of State for Public Health and Prevention DHSC delivered an outstanding presentation. Listening to her motivational stories was truly inspiring!
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Dr. Hope Kent delivered an exceptional talk at the @ukabif.bsky.social #Summit2025. She shared her ongoing research, highlighting the lack of SEN support for young people with #ABI, as they aren't listed on the school census.
#BrainInjuryAwareness #EducationMatters #Inclusivity
On #AntiBullyingWeek, it's vital to highlight the importance of creating nurturing, respectful environments, particularly in schools. If you have a student with an #AcquiredBrainInjury (ABI), understanding and empathy are crucial!
๐ More information:
"Teachers have the professional skills to support these children, but donโt have the knowledge... there is a lack of consistent training for #ABI"
Joanna Woodhouse from N-ABLES shared insights from the Educators' Perspective at the #UKABIFSummit2025 symposium.
So many incredible, passionate people wanting to make a difference @ukabif.bsky.social summit & @n-ables.bsky.social speakers were amazing. So proud (bursting!) of our very own young expert by experience (Eden ๐) speaking with Baroness Estelle Morris๐ง
The day really was superb ๐
#ABI #Encephalitis
๐ง Join our mailing list!
๐ Subscribe for regular updates about our resources and upcoming events by clicking on the following link buff.ly/mvMZSSk or email us at: NABLES@UKABIF.org.uk.
Thank you for your continued support!
#BrainInjuryAwareness #EducationMatters
๐ง TOPS-UK supports young people (13โ19) with an ABI to manage everyday challenges
Struggling with planning, organisation, or feeling overwhelmed?
๐ก Learn simple strategies
๐ฑOnline & accessible (with coach support)
๐tops-uk.org
๐งtopsuk@exeter.ac.uk
#ABI #Encephalitis
Half term is approaching, with lots of activities planned ๐
We understand that for some families of children after Encephalitis & with an ABI, school holidays can be a tough time ๐ซถ
We are here to support you via our helpline, email, or through our online resources ๐
#ABI #encephalitis #halfterm
Incredible opportunity for someone to take advantage of our NEW funded 3 year PhD project๐ง
๐ www.exeter.ac.uk/study/fundin...
Please get in touch if you/candidates have questions
#Encephalitis #ABI
@annaadlam.bsky.social @emilytalbot.bsky.social
Last chance to sign-up to our @twinklresources.bsky.social Teachmeet tomorrow.
The key areas of focus include...
๐ Inclusion
๐ง Fatigue Management
๐ Peers and Participation
๐ Sign-up here: www.eventbrite.co.uk/e/improve-in...
We know 1st hand just how important it is to understand a young person with an ABI & how helpful, informative & necessary the 'UCABI' workshop is๐ง
Which is why we fund it completely, so ANYONE working with a child that has an ABI can attend at no cost to themselves!
Link below ๐
#ABI #Encephalitis
Thank you to all the amazing people who chose to take part in the Great North Run for us today. You are amazing & we couldnโt do what we do with out you! Thank you ๐
#ABB #encephalitis #support #marathon #GreatNorthRun