I swear, when you’re chronically ill/disabled, just managing your condition and your medical providers becomes a full time job. It’s ridiculous how much you can have to do when your capacity is already heavily decreased.
#NEISVoid
I remember reading your updates. It’s infuriating the way we get screwed over when we do everything right.
I was pretty sure they switched me from MD to PA so just checked…
Nope, I was originally scheduled with a PA & then was transferred to a NP. No MD involved at all. Wait is still staggering, & it’s kinda infuriating that it’s been increased by 2 more months because the NP is suddenly out of office.
I swear, when you’re chronically ill/disabled, just managing your condition and your medical providers becomes a full time job. It’s ridiculous how much you can have to do when your capacity is already heavily decreased.
#NEISVoid
I’ve been trying to make this appointment since January, when I could feel my nerve pain warning me it was coming back soon. And now it’s back, and I haven’t even been able to make the appointment, which may not be for months from now.
Wheeeeeee
…as I’ve finally got the needed referral to the correct person after no one was talking to me about it properly.
I’m waiting for a call once he gets to my referral by the end of the month…
But again, the provider is the one who canceled on me, and my appointment moved two months later.
I’ve been lucky that everyone else has been relatively short waits for appointments. But I’m terrified the pain specialist is going to have a similar long wait…
It’s a really good thing I figured out myself what was going on with my skin. Horrible eczema for a full year would have been a nightmare. Now I just want to get a few things checked out that aren’t urgent, so the wait is okay…
Back in August, I made an appointment with a dermatologist. They couldn’t see me til May. Then the provider they assigned me to couldn’t do it, but the replacement had same day, just a different time…
Well, now she’s away that week. And my appointment?
July 1st.
A graphic that has a red background with a light purple accent on the bottom. It has the DC3 logo on the bottom right. Text reads: "Celebrating SWANA Heritage Month: Honoring DC3's SWANA Members and shows the photo and pronouns for the following members: omnistruck (they/them), JazzAdeleGames (he/him), CthulhuOracle23 (she/they), YallaYasmeen (she/her), suzpls (she/they), and fumelina (they/fae)."
Thank you for allowing us to celebrate you this month and all year long! Happy Arab and SWANA Heritage Month to our wonderful members.
a graphic with a light purple background with a red trim. It reads: "Celebrating SWANA Heritage Month. All April, the DC3 celebrates the identities of the Southwest Asian and North African members of our space with SWANA Heritage Month. This month aims to celebrate the culture, history, and achievements of these individuals across the world. Originally, the month of April especially celebrated Arab-American folks, however, many nations have adopted the month to celebrate their SWANA peers." There is the DC3 logo on the bottom right.
This month, the DC3 has the honor of celebrating the heritage of our Arab and Southwest and North African members during Arab and SWANA Heritage Month! thedc3.carrd.co#swana
Today I learned that Complex Grief is a thing.
At least I think my new therapist ended our intake with a really good sense of what’s going on with me, in a way I don’t think my previous one had even at the end of three months.
Oof, having the psychiatric doctor ask me if I struggle with math really hurts.
I have a math minor and was a math tutor for years.
But I made a mistake when counting backwards from 100 by seven. Which frankly says a lot about my current lack of focus…
#SSDI doctor appointments started with half an hour worth of paperwork, and now actually sitting on the floor while waiting to be called back because it’s somehow more comfortable to me than the chairs.
Really wishing I had remembered my wrist braces and ankle brace x.x
My #SSDI appointments are tomorrow. I guess in some ways it’s good my health has been in a dip lately, as that means they’ll be seeing and evaluating me on a bad day?
I’m so ready to be done with all of this, it’s an exhausting process.
"Stupid", "insane", "moronic" and other such terms are stand-ins for ideologies and systems of domination- white supremacy, imperialism, capitalism, patriarchy- that are embodied and acted out by actors of the fascist regime. When people can't name these systems, they resort to base ableism. 1/
Hey. Psst. Y’all are rad. Hydrate your skeletons. Take your meds. Check your posture. Have a snack.
Whatever you need to do today/tonight, I believe in you. No matter how big or small it may be. I hope the week brings joy, relief, laughter, success, coziness. You got this.
💕
It kind of sucks to be doing everything correctly to manage health and pain from your own end and still get utterly screwed over… and I’m aware I still have it better than so many other people.
So now I get to wait another week for the new place to confirm the referral or not, and then I get to hope that just maybe they’ll have an appointment that’s not multiple months away. Meanwhile, I’ve passed from the warning signs into rapidly returning pain.
…and it seems like back in February the pain center redirected my referral to a different pain specialist.
Back in February. But somewhere they botched something so neither I nor my PCP seem to have this information.
I have been trying to get into see a pain specialist since early this year when I realized my thigh pain was returning. I finally managed to talk to someone (after multiple messages left, I finally managed to get directly to a person)…
Yes, I so desire returning to the place where the algorithm changes meant that even with a few thousand followers no one saw a single thing I posted anymore. Where all I did ever get anymore was bigotry.
Even if Bluesky does collapse, still never returning.
Chag Pesach Sameach!
The bastardizing of “separate the art from the artist” has done irreparable damage to discourse lmao
She got the referral in super quick, and I have an intake appointment with a new therapist in two weeks.
Still struggling a lot with this, but having that scheduled helps
Trans people and their right to life are not a political distraction. Period.
Here’s a booklist of comics by trans creators/featuring trans and GNC characters and stories. Please support trans comic creators (and all trans ppl), now more than ever!!
bookshop.org/lists/trans-...
It's Trans Day of Visibility! 🏳️⚧️
Trans folks, if you're raising money for something, reply to this thread and I'll boost you. I'll also add some mutual aids/ organisations I support in the thread.
If you're a cis, take a look and find someone to support if you can.
EVERYONE : share this!! 💜
But wow this has just thrown me into a mental spiral, when I was already struggling a lot. Hence therapy.
I am…really not okay right now…
I’m not ready to start over with someone new, I quite liked her, I thought there was just a little bit of going back to the beginning to rework we needed to do. Not get a whole new person.
Luckily she’s with a company that does have a lot of providers, I know they’ll have someone who works for me.