Month 5 of IV antibiotics out of 6 (maybe?). Goalposts keep moving and i’m not sure if I will end these IVs in Jan or whether we continue longer… just want concrete answers. Taking time off in Jan to focus on health as if this is my last month of IVs I want to try my best to make it count!

2025 has been a lot and i’m pretty much just trying to survive 🙃

Hello everyone, it’s been a while. Finished treatment end of April. Got engaged in June 🥳 and then…found out my cavity in my lung has become the same size as before treatment so back on 12 weeks of IVs (at least), was in a car accident.. waiting for a scan on halloween to discuss treatment further

haven’t been on here in forever, i’m sorry to hear what you’re been going through! But woohoo to halfway! 🥳 I can absolutely relate as you have to just get it done no matter how horrible it all gets. Thinking of you 💛

i’ve got some embroidery and a punch needle rug and some needle felt….raided hobbycraft before christmas 😂

thank you Hanna (sorry only just seen this) - getting discharged tomorrow to complete the rest of the course at home - lots of crafting imminent 🪡

thank you ☺️

thank you!!

if you have followed me for my CF - hi 👋🏼. I have NTM as some of you may know and am about to try an eradication attempt yet again for 12 weeks 😬 i’m hopeful but trying to remain realistic that i’ll get better but probably won’t get rid of it completely. #CF #cysticfibrosis #NTM

I know most of you are unaware of my CF and have followed me for my research but from next week i shall be embarking on 12 weeks of intravenous antibiotics and then a surgery on my lungs in order to help my health. My research is paused until May - I’ll be excited to get back to it! #cysticfibrosis

have you read None of this is true by Lisa Jewell? That’s a book i was hooked from beginning to end

Hi all! For those who don’t know me, I’m a digital health and care CDT student at the university of bristol looking at sexual reproductive health in cystic fibrosis taking an HCI approach to my research. I’m currently a year and a bit in ☺️