We were pleased to share evidence with the Independent Expert Panel’s new review of palliative and end of life care. The report highlights gaps in commissioning, workforce pressures, and persistent inequalities. We’ll continue championing the voices of those we support.

#EOLDUK #PalliativeCare

Very pleased with this! 😊

Thanks so much!

Thank you for sharing 😊 And yes, absolutely, and our colleagues!

Death Wired Differently | Death Doula & Inclusive End-of-Life Support Compassionate, inclusive end-of-life care and death doula services across the UK. Dr. Emma Clare provides neurodivergent-friendly guidance, training, and resources to support individuals, families, an...

I’ve been writing about neurodivergence in end-of-life care and advance planning and hearing from people who want to do better but don’t know where to start.

This work means a lot to me. I’ve gathered it all in one place - my new site is live: www.deathwireddifferently.co.uk

#DeathWiredDifferently

A black square with orange underline which reads: Your autistic friends are watching your reaction to the 'autism cure' talk in the news Not only to see whether you believe the lies, but to see whether you believe autism is something to be 'removed' rather than who we are To know whether you prop up the language of eugenics which targets us Now is the time to be a loud ally

I am very new to it all myself, but have been finding the Visual Snow Initiative and VSS groups on Facebook very helpful/normalising

Coloured screen filters, coloured lense glasses, minimising stress wherever possible, work on acceptance (including through therapy), connecting with others with VSS have all been helpful

RFK Jr. is not a vaccine skeptic. He's a vaccine denier whose anti-science extremist views and actions are destroying one of humanity's greatest scientific achievements. He's going to kill a lot of people, and those deaths are on the 52 Republican senators who confirmed him and those enabling him.

Experience: I see the world through a layer of snow My condition has a name – visual snow syndrome – and it could be with me for the rest of my life

Good to see VSS being covered, this is very similar to my own experience

www.theguardian.com/lifeandstyle...

#VisualSnowSyndrome #Neuroaffirming

Anytime! Let me know if you want to arrange 😊

Special interest grief is a disenfranchised grief. When a special interest becomes inaccessible it can feel like losing part of yourself. For many neurodivergent ppl these aren’t hobbies they’re ways of making sense of the world,regulating overwhelm,finding joy,expressing identity.It's valid & real.

I’ve been screaming from the rooftops that life under authoritarianism feels mostly normal most of the time for most people. Rights get stripped away and minorities get targeted and most people keep going to work and dealing with the minutia of life. It’s hard to know how to fight or when to flee.

Thank you! And of course 😊

I've got another #buyastrangerabook day offer to tell you about!

@raytom81.bsky.social will buy someone the book of their choice, up to £20.

That's any book at all.

So, if you have something in mind, let us know what it is.

UK only

More #buyastrangerabook (Sunday Special) magic!

@sarahalba.bsky.social is offering to buy one lucky person the book of their choice, up to £15!

So, if there's a particular book you're after, get in touch.

UK only.

The Truth About Life & Death From a Death Doula (Dr Emma Clare) YouTube video by DACI

If anyone is interested in 50 minutes of me talking about end of life doulas, death, dying, and grief (as usual) you can watch/listen to the latest DACI podcast episode below. Pleased to include two @drkathrynmannix.bsky.social mentions

youtu.be/jUhy2J5qZKA?...

#EndofLifeDoula #DeathDoula

My brilliant EoL doula colleague Rachel Hawthorn is hosting an online screening of The Luddenden Shroud – a 30-min film about a hand-felted shroud, nature, grief, and place. Followed by a Q&A. All welcome. Book here:
www.eventbrite.com/e/the-ludden...

Leeds became the first city in the UK to commission end-of-life doula support through the NHS in May 2022.

Explore the learnings to date from this pilot project ⤵️

#EndOfLife #PersonCentredCare

Leeds NHS Commissioned Project - End of Life Doula UK Our Leeds NHS pilot project concluded in September 2024. You can download and read our full service evaluation report here. In a pioneering step for end of life care, Leeds became the first city in th...

Interested in how #EndofLifeDoulas can collaborate with and complement NHS services? Our evaluation report for our Leeds EoL Doula Pilot Project is now available to read/download here 😊
eol-doula.uk/leeds-nhs-co...

MPs have personal beliefs, but also solemn duties: that’s why they must reject the assisted dying bill this week | Gordon Brown Our obligations to each other are ill served if laws focus unduly on those who want assisted dying. The priority should be the best palliative care, says former prime minister Gordon Brown

Sharing this on the eve of tomorrow's vote.

I am a palliative care doctor who is not opposed to AD. But enshrining in law a state-funded right to die, while not enshrine a similar right to the palliative care that might make life worth living, is so very wrong.

www.theguardian.com/commentisfre...

Oh thank you very much! This is beautiful, such a human inscription. I recognise the name too. Is this in York? 🙂

UK air pollution killing more than 500 people a week, doctors say Royal College of Physicians also says poor air quality costs country more than £500m a week

So important to see RCP make this statement about the preventable deaths and diseases poor air quality causes. We know it worsens infections , allergy,asthma and COPD severity too 🧪

Good morning! A friendly wee reminder that The Algorithms + Miscarriage Project is now seeking participants for interview. See poster for details...

@tommyscharity.bsky.social @cendeathsociety.bsky.social @asdsdeath.bsky.social @bsatheory.bsky.social

#miscarriage #algorithms #onlinesafety

Very pleased to be announcing this! A huge amount of work and real team effort. Excited to see what is next! 😊🥳
#EndofLifeDoula

RFK Jr. has just removed every member of the Advisory Committee on Immunization Practices (ACIP).

These members review vaccine data and make approval recommendations. This is completely horrifying and will likely delay vaccine approvals.

RFK Jr. must be removed from office IMMEDIATELY.

Save the date!

The fourth annual End of Life Doula International Research Group symposium is September 5-6 with the theme Research is a verb: Sharing knowledge as collaboration.

Online Sept 5-6, tickets and full programme live soon.

#EOLDIRG #research #event #EOLD #DeathLiteracy

A faceless figure of a person surrounded by ribbons of different colours and white text showing aspects of work, and with like coloured sections forming two semi-circles around the person showing goals for work. Top title banner reads " Key intersecting tensions for end of life doulas " Bottom centre circle reads " EOLDs "

Opportunities for self-awareness, reflection and honest evaluation are always important - this goes for end of life doulas, too. How we work with opportunities and realities in the workplace, in tandem with our highest goals for work are shown in this graphic.

#EOLDIRG
#research
#resources

Hello world of #research - we are new here!

The End-of-Life Doula International Research Group (EOLD-IRG) is a collective of diverse individuals interested in developing a collaborative approach to research relevant to end-of-life doulas across national and international boundaries.

#EOLDIRG

A quote from the brilliant Alexandra Derwen, shared during our end of life doula panel at last year’s Lifting the Lid Festival. Now on my wall as a daily reminder of why I’m here and how I want to show up.

#EndofLifeDoula #DeathDoula