Noonan Syndrome Awareness Month Fact 25 ❤️ 💙

Noonan Syndrome Awareness Month Day 24 💙 ❤️

Noonan Syndrome Awareness Month Facts for days 20, 21, 22 & 23

Me: "Hey Doc I'm having these symptoms."
Doc: "Okay take this medication."
Me: * reads medication side effects"*

The Side effects are the exact same as my symptoms.
Me: "Oh great, thanks..."

Noonan Syndrome Awareness Month Day 19 ❤️ 💙

Noonan Syndrome Awareness Month Day 18 💙❤️

Fell a bit behind here so here is Noonan Syndrome Awareness Month Facts for days 14,15, 16 & 17 ❤️💙

Little inescapable reminders of having a ✨️complex medical history✨️ #lifewithchronicillness

Tonight I cried after I tried to test my INR with my home kit, 4 times. Every test failed and couldn't get a reading. Wasted test strips. Wasted my last lancets. These little continuous health management things are so incredibly frustrating at times.

Noonan syndrome awareness month facts for days 12 & 13

Noonan Syndrome Awareness Month Day 11 ❤️💙

Noonan Syndrome Awareness Month Day 10 ❤️ 💙

Noonan Syndrome Awareness Month Facts for days 8 & 9 ❤️💙

Noonan Syndrome Awareness Month Day 7❤️💙

Noonan Syndrome Awareness Month Day 6 💙 ❤️

Noonan Syndrome Awareness Month Day 5 ❤️ 💙

Noonan Syndrome Awareness Month Day 4 💙❤️

Noonan Syndrome Awareness Month Day 3💙❤️

Noonan Syndrome Awareness Month 2 💙❤️

NSAM Day 1

Image of text reading " February is Noonan Syndrome Awareness Month" in bold white text with a red & blue gradient background.

Today is the first day of Noonan Syndrome Awareness Month! I will be sharing 1 fact a day for the Month of February to spread awareness for Noonan Syndrome which is thd genetic condition I have and effects my everyday life.

Today while in the gym with the preschoolers I was trying my hand at "basketball" I predictably miss my shot and a kiddo tells me,

"Meghan you have to grow tall than you can get it!"

I love how she tried to encourage me but unfortunately I've not grown an inch since my early teens.

The irony is never lost on me when I come dangerously close to missing (and occasionally sometimes actually do miss) my bus because I was on my phone to check the TRANSIT app.

Could really use that trillion dollars...

"Why is the world all broken?"

🥺 That's a good question friend. I don't know why. wish I had an answer for you.

As I was on my way out from work today I'm of course bombarded with the usual questions from the preschoolers like "where are you going?" "Why do you need To go?" "will you come back?" Than one of the kiddos hit me with,

It’s actually a crucial time to be a person who cares about times, now more than ever.

Sure is a bad time to be a person who cares about things.

Actual thing I said to my co-worker yesterday after stammering and struggling to ask a simple question:

"Sorry, I think my brain is running on power saving mode"

disabled people are often left behind not because we’re helpless, but because these systems were not built with us in mind