EMSP Conference 2026 - A must for people living with MS. Are you able to attend (24th-25th April)? Online places are still available => buff.ly/Z9k2ImL
Posts by Chiara Merritt Linden
Do contribute to this if youβve been on the end of the increasing level of abuse people with blue badges receive. Govt & media hate campaigns against disabled people have real life consequences
www.theguardian.com/world/2026/a...?
Sorry to hear that, Scott. Fuck MS
π’We are inviting people with MS to take part in Patient and Public Involvement (PPI) to help us ensure a new app is relevant, useful, and works as intended.
Click the link below or message us directly if interested!
forms.cloud.microsoft/e/REfPC4e5zQ
Thank you!
Just finished The Rose Code by Kate Quinn. Best book I've read this year so far. Can anyone recommend any other fiction books set in Bletchley Park? #BookSky
Destitution for new disabled claimants will increase
Destitution
www.theguardian.com/commentisfre...
#TPM #ThirdPartyMonitoring #MEAL #MonitoringAndEvaluation #InternationalDevelopment #Humanitarian #Aid #QualitativeSurvey
Do you work in the humanitarian/international development sector and have experience with third-party monitoring (TPM)?
Iβm researching how TPM works in practice and would greatly value insights from those whoβve worked in this area.
π app.onlinesurveys.jisc.ac.uk/s/stirling/tpm
Thank you!
They do help me, maybe it is a different sensory input in the legs? I asked my MS nurse about using them and she said go for it during the day but better not wear them at night
I wish I had some helpful hints. So annoying, and why is it always the nighttime that it revs up?! I did buy some long compression socks to wear the next day to try and soothe muscle throbbing.
A great project to be involved in
Are there any good #sociologyofemotions podcasts out there? I am new to the field and would love some recommendations #emosoc
Our 5-part podcast series, When Disciplines Meet, has launched! ποΈπ
The series explores how collaborative, interdisciplinary approaches can be used to address complex societal challenges.
π Listen on your favourite podcast platform, YouTube, or the SGSSS Website: www.sgsss.ac.uk/sgsss-podcas...
#MS_Selfie Podcast - Treating mono: will it become a reality?
Can you imagine a counterfactual of taking a 7-day course of antivirals to treat your mono and never having developed MS? This thought has consumed thousands of hours of my time. Please listen or read. Tx U => buff.ly/Zw59pHz
Such an energising session!π€
I'm so grateful for this amazing, thoughtful group. Your insights are truly shaping the app into something meaningful and practical for people living with MS.
Every conversation moves us a step closer to creating tools that support, empower and make a real differenceπ
Yep! My internal earthquakes. I always have to check my water glass to make sure it isn't an actual earthquake
Was the best Patient Community Day yet. Much improved format and engagement with the online attendees π
Absolutely! Appreciate your positivity π and hope you're feeling a bit better
Noo I actually thought it was much better than previous Ectrims patient events, heard lots more from us with lived experience. I was referring to the results from the trial you mentioned - think some on panel said they were underwhelming. I'm always desperate for remyelination news π΅βπ«π€
Were you attending Patient Community Day? Kinda got the impression that the v modest results were disappointing π€
Shit man, really sorry to hear this. We missed you in today's PAG - hope you are managing in what I can imagine is a bloody difficult time.
I am sickened by the relentless demonisation of refugees.
No refugee underfunded a school.
No refugee closed a hospital.
No refugee took away support from the sick and disabled.
We need solutions not scapegoats. Stop blaming refugees and tax the rich instead!
I've been doing this for a while. My neuro said that Ocrevus could be seen as similar to an induction therapy after 2 years and probably doesn't need redosing. Couldn't find anything published supporting this so am sticking to extended interval for now
All of the above here, facial numbness just on the left side π΅
It's really rough, isn't it. Do you find anything helps or is it just time?
Congratulations! I'm in the thesis stage of the same programme and I really enjoyed the taught elements. Good luck for the next stage
I would also love to read it. Cheers