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Posts by Amy Maguire

Oh no! I’m so sorry to hear this news. What an absolute loss 😩 My deepest condolences to Adam’s family and friends and the entire community of families, survivors, and providers he has supported and made wiser in countless ways ❤️‍🩹

3 months ago 1 0 0 0

For those in #SLP attending #ASHA2025,
consider attending or spreading word about the session that my colleague + I will present about #oncologyrehab

Session: 1879
Oncology Rehab for the SLP: Key Concepts in Cancer-Related Cognitive Impairment
Sat, Nov 22, 2025, 1:30 PM - 2:30 PM

5 months ago 2 1 0 0

“A spokesperson for CVS said in a statement that “based on the current regulatory environment,” the pharmacy chain will not offer COVID-19 vaccinations as normal in the following states and territories:” AZ CO FL GA KY LA, ME MA NV NM NY NC PA UT VA WV DC thehill.com/policy/healt...

7 months ago 0 0 0 0
Statement from the American Society of Human Genetics in 2020, countering the myth of "good genes". It reads as follows:
"Genetics demonstrates that humans cannot be divided into biologically distinct subcategories or races, and any efforts to claim the superiority of humans based on any genetic ancestry have no scientific evidence. Moreover, it is inaccurate to claim genetics as the determinative factor in human strengths or outcomes when education, environment, wealth, and health care access are often more potent factors. There is no factual basis for attempts to define communities or regions of people with "good" or "bad" genes and a century of science has debunked such claims, which can feed discredited views and racist ideologies. Unchecked, unethical application of false genetic "theories" have resulted in past atrocities from forced sterilizations to the Holocaust and can still fuel unethical social policies worldwide today. Over the decades, our field also has reflected on its own role in such now-condemned ideas, and we speak out vocally as a community and as individuals to combat their resurgence.
We must protect and advance the ethical use of genetics and genomics knowledge for the profound good it can realize, including better, more precise healthcare that leverages what we are discovering about human genetic commonality and diversity. The human genetics community dedicates itself to this goal each day, and today we are improving and saving hundreds of thousands of lives. As the ASHG community focuses on realizing the benefits of human genetics and genomics research for people everywhere, we also urge societal attention to address profound educational, economic and health inequalities that fuel differences in human experience and well-being. By pursuing all of these activities, humans can celebrate our common heritage as one people, embrace and fully tap our valued diversity, and help achieve optimal life outcomes for all."

Statement from the American Society of Human Genetics in 2020, countering the myth of "good genes". It reads as follows: "Genetics demonstrates that humans cannot be divided into biologically distinct subcategories or races, and any efforts to claim the superiority of humans based on any genetic ancestry have no scientific evidence. Moreover, it is inaccurate to claim genetics as the determinative factor in human strengths or outcomes when education, environment, wealth, and health care access are often more potent factors. There is no factual basis for attempts to define communities or regions of people with "good" or "bad" genes and a century of science has debunked such claims, which can feed discredited views and racist ideologies. Unchecked, unethical application of false genetic "theories" have resulted in past atrocities from forced sterilizations to the Holocaust and can still fuel unethical social policies worldwide today. Over the decades, our field also has reflected on its own role in such now-condemned ideas, and we speak out vocally as a community and as individuals to combat their resurgence. We must protect and advance the ethical use of genetics and genomics knowledge for the profound good it can realize, including better, more precise healthcare that leverages what we are discovering about human genetic commonality and diversity. The human genetics community dedicates itself to this goal each day, and today we are improving and saving hundreds of thousands of lives. As the ASHG community focuses on realizing the benefits of human genetics and genomics research for people everywhere, we also urge societal attention to address profound educational, economic and health inequalities that fuel differences in human experience and well-being. By pursuing all of these activities, humans can celebrate our common heritage as one people, embrace and fully tap our valued diversity, and help achieve optimal life outcomes for all."

A reminder that there is no scientific basis for attempts to define people in terms of “good” or “bad” genes - these are discredited views in service of racist ideologies. For the consensus from the experts, see e.g. this 2020 @geneticssociety.bsky.social statement:
www.ashg.org/publications... 🧬🧪

7 months ago 34 19 0 0

Thank you to @repsummerlee.bsky.social e.bsky.social for sponsoring the BRAIN Act HR 2767, aimed to to strengthen #research and treatment development for brain tumors and improve awareness/access to specialized care for brain and other rare cancers #braintumor #cancercare #UScongress

8 months ago 0 0 0 0

Thank you @ashaadvocacy.bsky.social for your work to ensure that CFs can bill #Medicare 🙏

8 months ago 0 0 0 0
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25 years ago, I reported on horrifying hospital errors. Here’s what’s changed since then — and what hasn’t Twenty-five years ago, Larry Tye reported on hospital errors for the Boston Globe. His recent wrist surgery showed just how much things have changed since then.

www.statnews.com/2025/07/14/m... Some of the most annoying parts of a hospital visit can save lives | STAT #mgb

8 months ago 0 0 0 0

Thank you to @reprashida.govpeeps.us, Rep. Mike Lawler
, and @carbajal.house.gov for co-sponsoring HR 2767 BRAIN Act to support #braintumor care by making it easier for people to access treatment and engage in #research and clinical trials that can benefit all people w #cancer
@braintumor.org

11 months ago 1 0 0 0
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The Earl E. Bird reminds us not to wait until signs of cancer start to appear. Screen for cancer often and early and be proactive about your health. Remember, Early Detection = Better Outcomes.

Learn more at: preventcancer.org/prevention-s...

11 months ago 558 88 35 2

Advancing #braintumor care and #medicalresearch requires #bipartisan support. Health priorities should never fall by the wayside as a bargaining chip. Thank you Rep. Trahan @trahan.house.gov and Rep. Williams for your support!

11 months ago 1 1 0 0
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Heartfelt thanks to Rep. Lori Trahan @trahan.house.gov and Rep. Roger Williams for your powerful speeches this morning to Head to the Hill advocates from across the U.S. — and for everything you do to champion and support the #braintumor community.

#Head2Hill

11 months ago 2 1 0 1
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Here with @braintumor.org to advocate for legislative actions that support #braintumor care and #medicalresearch appropriations - thank you to @repauchincloss.bsky.social and @whipkclark.bsky.social for meeting w us 🙏

11 months ago 1 1 0 0
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Your story is powerful, and we need your voice to create change and inspire others to take action!

Complete our Day of Action alert and urge Congress to fund brain tumor research and support key legislation for the brain tumor community: p2a.co/Z9dMpdQ

11 months ago 1 1 0 0

I look forward to meeting with Congressional legislators next week to advocate for patients and families impacted by #braintumor and to encourage funding allocation specifically for brain tumor research - May is Brain Tumor Awareness Month. Support @braintumor.org

11 months ago 3 1 0 0
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Today, we kick off Brain Tumor Awareness Month – a time to come together to support, empower, and amplify the voice of the brain tumor community.

#BTAM #GrayMay #BrainTumorAwarenessMonth

11 months ago 2 1 1 0

"The grant terminations are now damaging the scientific enterprise at research institutions in both ‘red’ states that voted for Trump in 2024 and ‘blue’ states that didn’t"

1 year ago 0 0 0 0
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Urge Congress to support the BRAIN Act in 2025

The #bipartisan Bolstering Research And Innovation Now (BRAIN) Act (HR 2767, S.1330) has been reintroduced & can benefit patients w #braintumors by addressing specific challenges faced by #braintumor researchers, clinicians, and patients/survivors. Please show support here

1 year ago 0 0 0 0