We’re delighted to be at the @pccongress.bsky.social in Brighton
Visit @jedjerwood.bsky.social & @sharonhudson.bsky.social in the Art Exhibition to learn about No Barriers Here, the work we’re doing & view our exhibit curated by The No Barriers Here Artists Collaborative.
#peolc #pcc2026
Read the paper and 13 consensus-based principles for better research now in Palliative Medicine: journals.sagepub.com/doi/10.1177/...
NEW PAPER People from minority ethnic groups face inequities in palliative and end-of-life care, yet research methods often fail to capture them. We worked with patients, carers, clinicians, and researchers to develop 13 principles for better research on ethnicity in palliative care. #palliativecare
Sorry for such a longwinded answer!!!
It's just that I'm pleased you're looking at it because I'm really keen that we move away from these practices; needles hurt, and it's unnecessary to put in separate PRN lines and/or 2nd pumps for a 4th drug etc.
The other main change in the updated CSCI chapter was removal of the "don't mix more than 3 drugs" advice. It's completely baseless and there's now a wealth of 4, 5 and 6 drug compatibility data
Therfore, PCF chapter on CSCI updated it's advice last year to say "side ports can be used provided compatibility is considered"
Just to add, I've routinely used side ports for years without problem: some patients find SC cannula placement painful and we have no reason to put in a separate PRN line
Reason it has so little impact is that the PRN effectively pushes a bolus of the CSCI admixture thru, which offsets the 30minute or so time that the infusion is effectively suspended (ie time taken for more admixture to make its way thru the deadspace)
Even midazolam (halflife can be as short as 1hr) would only drop to 95% of it's steady state level using a safeTintima (the deadspace affects the calculation)
Secondly, a concern that the PRN bolus interfered with the levels of the infused drug.
If you email me, I can send you a spreadsheet that models this. But in short, we don't use anything with a short enough halflife to matter.
Firstly, compatibility Deciding whether the PRN can mix with the infusion is fairly straightforward both for specialists (who are used to doing it) and to generalists (providing their standard 4 JIC drugs don't include cyclizine - a good reason to avoid it, plus alternatives double up for agitation)
Traditionally, some steered clear of the side port due to 2 considerations (though unnecessarily, in my view).
Thank you! Makes a lot of sense. Updating our guidelines but seems to have been previously based on best guess and legend. Really grateful
@paulhoward.bsky.social Hi Paul. I'm trying to find the evidence or guidelines around use of the side port for prns when there is an existing syringe driver and drawing a blank. Do you have any ideas?
To mark the 1st day of my 4th year without Alice I have an announcement:
I’ve joined up with a determined group of women working to change the narrative around trans people. Women standing in solidarity with our trans siblings.
Our first step is to ask cis women to read and sign our open letter ⬇️
#EAPC2025 interested editorial for discussion...
"If we as individuals and players in health systems, lean into discomfort, & it IS uncomfortable, of being with people we find different to ourselves & put down the pressure to know everything about everyone, we might connect back to our professional & human curiosity?" 👏 @jedjerwood.bsky.social
first they came for the white South Africans, and I didn't speak out— because no one is coming for the white South Africans, you deranged paranoid lunatics. what the fuck is wrong with you
“Death is inevitable but pain and distress need not be."
Yesterday, the Commission launched its report in Parliament. Sir Mike Richards, Chair of the Commission on Palliative and End-of-Life Care, emphasised how joined-up palliative care can profoundly benefit patients, the NHS, and acute hospitals.
What a way to end the week. Wonderful.
A fabulous Friday!
Thank you @drkathrynmannix.bsky.social for insightful, thoughtful & honest conversations, plus adding your wise words to our hospice wisdom tree 🌲
Also a big thank you to @jedjerwood.bsky.social & @sharonhudson.bsky.social
#palliativecare #hospice #DyingMattersAwarenessWeek
My article for @uk.theconversation.com on plans to abolish NHS England. In summary: the policy centre does need rationalisation, but this sudden axing of NHSE together with halving staff in integrated care boards risks a distracting & protracted reorganisation. theconversation.com/abolishing-n...
Everything you need to know about the trans Supreme Court case: What it said, what it didn't, and what happens next iandunt.substack.com/p/everything...
The roots of racism, sexism, ableism&transphobia are the same
You don’t have to look far to see this in play right now
As a priority, I worry for trans women and men right now… and ultimately for all
minorities, we know where this is heading
Don’t be silent
#supremecourt
Could you imagine if the head of the United States healthcare system didn’t believe that HIV caused AIDS?
…And that instead they believed that AIDS is caused by recreational drugs (“poppers”) used by gay people?
Oh wait…🥴
A joyful day delivering education with the amazing @sharonhudson.bsky.social 🤩
Always a joy to work with you @gemmaallen.bsky.social
@gkgupta.bsky.social @jamillahussain1.bsky.social
UK clinicians - do you support unpaid/family carers of patients with breathlessness in advanced disease? This resource could help: supporting-breathlessness.org.uk. Plus we have a new batch of "mock prescription pads" in to help you signpost carers to it - just message me with your postal address!
Copies of ‘Words to Live and Die By’ available today in Belfast for #pcc2025 An anthology of Haiku poems about death, dying & grief. A guide for navigating the human experience through the language of others, specifically in times of loss
Save yourself some p&p & us from a bulk of books on a plane!
