A new aid in the doctor’s office: Introducing the Long COVID Treatment Guide - The Sick Times Too often, people with Long COVID hear that since clinical research is still underway, not much can be done for them at this point. We at the Patient-Led Research Collaborative and RTHM Clinic reject ...

thesicktimes.org/2026/03/12/a...

March 15th is International #LongCOVIDAwarenessDay! YouTube video by COVID-19 Longhauler Advocacy Project

Today is International #LongCOVIDAwarenessDay — a global moment to come together in coordinated #LongCOVIDAwareness and action.

Learn more about the #LongCOVIDAwarenessDay and how the COVID-19 Longhauler Advocacy Project serves the Long COVID community here:
youtu.be/beWDeldUlOY?... ⬇️

El Paso high schoolers develop app to aid caregivers Watching family members struggle with long-term illnesses left two El Paso teens searching for a way to help, and their shared passion for coding became their answer.

www.elpasoinc.com/news/local_n...

Thank you to caregivers whose steadfast commitment provides comfort and dignity each day. Your service strengthens families and communities. Remember to rest, seek support, and protect your well-being—sustained care is rooted in sustained strength. #Caregivers #Caregiving

New Medicaid Work Rules Likely To Hit Middle-Aged Adults Hard — KFF Health News Republicans have said new rules requiring many Medicaid participants to work 80 hours a month will pinpoint unemployed young people who should have jobs. Policy researchers say the rules are more like...

People must have zero financial resources to qualify for Medicaid. Yet changes requiring them to work/volunteer for 80 hours/monthly is coming. Many of them are caregivers for spouses/children that are 100% disabled.

Our country is in decline.

apple.news/AAQBz6KcBSa-...

Key autism committee is being reshaped to support Kennedy's vaccine agenda, researchers and advocates fear Researchers and advocates fear a key autism committee is being reshaped to support Kennedy's vaccine agenda.

www.statnews.com/2026/01/23/k...

Alice Wong, disability activist and luminary, dies at 51 - The Sick Times Alice Wong platformed and uplifted people with Long COVID in her final chapter as a lifelong disability advocate and storyteller.

Rest in peace, Alice Wong 🕊️

thesicktimes.org/2025/11/15/a...

Nike Co-Founder Phil Knight Gifts $2 Billion To Oregon Cancer Institute—The Largest University Donation Ever Knight is one of America’s most generous philanthropists, according to Forbes data, donating billions of dollars to educational institutions throughout his life.

Knight is one of America’s most generous philanthropists, according to Forbes data, donating billions of dollars to educational institutions throughout his life.

Absolutely devastating for so many families.

Health Secretary Kennedy to oust advisory panel on cancer screenings, HIV prevention drugs, WSJ reports Health Secretary Robert F. Kennedy Jr. is planning to remove all the members of an advisory panel that determines what cancer screenings and other preventive health measures insurers must cover, the Wall Street Journal reported on Friday, citing people familiar with the matter.

Health Secretary Kennedy to oust advisory panel on cancer screenings, HIV prevention drugs, WSJ reports reut.rs/452or6u

Labor Department moves to end disability hiring goal for federal contractors Secretary Lori Chavez-DeRemer plans to axe a longstanding, successful incentive program for disabled workers.

The White House's war on disabled Americans continues, going above and beyond Project 2025—now with attacks on a popular hiring program no one even lobbied against.

kffhealthnews.org/morning-brea...

Pennsylvania General Assembly mandates handicapped parking at electric vehicle charging stations New bill requires wheelchair-accessible spaces at public electric vehicle charging stations in Pennsylvania

Pennsylvania is leading the charge for inclusivity by mandating wheelchair-accessible spaces at public electric vehicle charging stations!

Click to read more!

#PA #CitizenPortal #PublicSafety #ElectricVehicles #DisabilityRights #PennsylvaniaAccessibility

Good news!

There needs to be five-alarm level public health messaging about this.

This was published in JAMA -- the Journal of the American Medical Association -- last month.

jamanetwork.com/journals/jam...

Disability Activists Bring Wisdom From the Pandemic to New Struggles Under Trump White House rhetoric dehumanizes disabled communities, but activists continue to organize for access, care and justice.

"White House rhetoric dehumanizes disabled communities, but activists continue to organize for access, care and justice." Great excerpt from new book, "How to Be Disabled in a Pandemic." Link to Open Access version of the book in comments.

'Sit on their butt at home': Republican smears Medicaid recipients in call for cuts Sen. Rick Scott (R-FL) demanded cuts to Medicaid spending because he claimed recipients "sit on their butt at home."While speaking to right-wing influencer Charlie Kirk on Monday, Scott rejected calls...

www.rawstory.com/rick-scott-m...
Some members of Congress either don’t understand who Medicaid serves or don’t care. Tell them your story. It provides essential support for disabled and elderly Americans. 5calls.org is a good way to take action. #handsoffmedicaid #momsky #savemedicaid #disabilitysky

RFK Jr. says autism database will use Medicare and Medicaid info The National Institutes of Health will partner with the Centers for Medicare and Medicaid to create a database of Americans with autism, using insurance claims, medical records and smartwatch data.

The National Institutes of Health will partner with the Centers for Medicare and Medicaid to create a database of Americans with autism, using insurance claims, medical records and smartwatch data.

The case that could gut disabled people's right to equal health care The notoriously conservative Fifth Circuit will rule on whether it's a civil rights violation to deny a quadriplegic man a ventilator.

www.motherjones.com/politics/202...

In response to RFK Jr., Pritzker signs first in nation executive order protecting autism data The governor's office said the executive order is in response to rising concerns about efforts to create federal autism registries or databases without legal safeguards or accountability.

chicago.suntimes.com/politics/202...

Opinion | RFK Jr.‘s ignorance about autism is bad enough. Republicans’ Medicaid cuts are worse. Proposed reductions will have terrible consequences for autistic people and their families.

"The Republican-controlled Congress, backed by the president, is planning radical cuts to Medicaid, & there’s nothing more important for autistic ppl, their families & everyone with any disability or a loved one with a significant disability." @lollardfish.bsky.social:

www.msnbc.com/opinion/msnb...

Killing Medicaid kills healthcare in rural communities.
No Medicaid = no hospitals. No doctors. No care.
#ProtectMedicaid

Thank you so much, Melissa! I hope to be able to help make people’s lives a bit easier and to create a space where we can lift each other up. Stay tuned…

GAAD Thursday, May 15, 2025, help us celebrate the 14th Global Accessibility Awareness Day (GAAD)! The purpose of GAAD is to get everyone talking, thinking and learning about digital access and inclusion, ...

Global Accessibility Awareness Day-let’s celebrate.
Thursday, May 15! The purpose of GAAD is to get everyone talking, thinking and learning about digital access and inclusion, and the more than One Billion people with disabilities/impairments.
Spread the word.
#Disability
accessibility.day

Enforcing the Americans With Disabilities Act (Printer-friendly PDF version | 369 KB) (Large Print PDF version | 352 KB) (Spanish version) The Americans with Disabilities Act (ADA) is divided into five sections, which are known as titles. These

The Americans with Disabilities Act (ADA) is divided into five sections. These describe the rights of people with disabilities and the responsibilities of governments, businesses, and organizations covered by the law.
Please review them here:
adata.org/enforcing-th...
#Disability

What Are the Stages of Grief? There’s no way around it: Grief is never easy. A clinical psychologist explains the five stages of grief, including what they are, how they manifest and when to seek support from a therapist who can help you cope.

Grief is a natural response to any kind of loss. People experience it in different ways, but typically, it includes a variety of intense emotions, like sadness, anger, irritability and guilt.

Learn more about each stage + ways to cope: cle.clinic/42GOa4D

Congressional Republicans’ Health Care Plans Will Rip Away Coverage and Increase Costs Republican plans to slash Medicaid funding and let the enhanced Affordable Care Act premium tax credits expire will increase insurance costs for millions of Americans.

Medicaid expansion and the tax credits people get to buy marketplace insurance on their own are BOTH in GOP crosshairs. We could see a double-whammy of millions losing coverage and millions more seeing their premiums spike by thousands. CAP's latest here:

www.americanprogress.org/article/cong...

Medicaid Cuts Would Threaten Rural Hospitals 190 rural hospitals in 34 Medicaid expansion states are at immediate risk of closure. Slashing Medicaid could push them over the edge.

Many rural hospitals are already at financial risk. Medicaid cuts could push 190 rural hospitals in 34 expansion states over the edge, forcing closures and harming communities. Read the latest with @kierrajones.bsky.social and @andreaducas.bsky.social www.americanprogress.org/article/medi...

An informational image featuring a quote about the implications of proposed budget cuts on Meals on Wheels programs, attributed to senior advocacy campaigns. The text cites several news sources including The Guardian and mentions concerns about the impact on senior citizens in the United States.

Our @nicolejorwic.bsky.social is right—we must #ProtectMedicaid and other essential programs so that older adults can lead safe, independent, and healthy lives in their own homes and communities.
www.theguardian.com/environment/...