Here's what the 6 month enrollment moratorium for Durable Medical Equipment (DME) means for people who are reliant on having access to it. (Moratorium announced 25 Feb by Oz and Vance.)

Wait….amazing!!!

Disability and Young Voters: Access, Legislation and Mobilizing Young Voters - A National Civic Learning Discussion | Emerging America Register for the Webinar For teachers, student leaders, school administrators and community leaders.

Interesting webinar alert: 4/22 at 7pm ET!

Emerging America is hosting a webinar that will cover the history of voting/the disability community, efforts to overcome barriers, info about youth voting, & resources to develop a program to support disabled students to register/vote.

Register here:

Casey, a white woman wearing a patterned dress and sunglasses on her head, smiling beside Kenya, a multiracial woman wearing a black shirt, necklaces, and glasses, on a rooftop. The orange sunset is behind them.

Had the best time at the National Academy of Social Insurance happy hour last night. I love connecting with folks passionate about equitable disability policy, economic justice, and access to health care.

Got to enjoy the sunset with @kenyamariepm.bsky.social!

I'm working on a story for @thesicktimes.org about RECOVER clinical trial results that have been shared so far (from the VITAL, NEURO, and AUTONOMIC studies), and am looking for people in the #LongCOVID and IACC communities to share what they think of the findings. DM or email me!

Stock photo of a person wearing rubber gloves and a labcoat looking at something under a microscope

Senators Markey @markey.senate.gov, Kaine @kaine.senate.gov, and Duckworth @duckworth.senate.gov are once again championing a FY27 "Dear Colleague" letter calling for over $210 MILLION in appropriations for research funding at NIH, ARPA-H, and AHRQ clinics #LongCOVID & related conditions. 2/X

Drawn image of the U.S. Capitol dome, with the words underneath: Long COVID patients have waited too long for TESTS, TRIALS & TREATMENTS. #FundLongCOVID

📣U.S. Action Item: #pwLC #POTS #pwME #NEISVoid we need your help! Will you contact your Senators & ask them to sign on to the FY27 Senate “Dear Colleague” Letter for over $210 million to #FundLongCOVID in 2027 Appropriations using our EASY low-spoons call/email tool?🧵

I was fortunate to meet Dr. Kait Brennan yesterday, whose Washington Update series I find immensely helpful re: education policy, interagency agreements, and budget analysis.

Check it out here: tedcec.org/blog/categor...

I hope folks check this out, we all really deserve credible info on this score.

The Sick Times: COVID-19 spreads year round. Here’s how to track it. · Zoom · Luma While cold and flu season may have passed, we at The Sick Times know that COVID-19 spreads year-round. We are preparing for a potential summer wave, spurred by…

Helpful webinar alert! On April 28th from 6-7pm ET, @thesicktimes.org will share how to find data on COVID-19 and other pathogens in your area, and interpret those data to inform safety measures for you and your community.

Register and more details here: luma.com/5mthaudg?mc_...

Graham Platner claims he's changed. Why is he still using the r-word? The left have their own ableism problems to grapple with, not just Republicans.

Using the r-word is just bad. Democrats should have higher standards for themselves than Trump when it comes to using a slur that MANY disabled people find offensive. Looking at you, Graham Platner. New from me at @motherjones.com. www.motherjones.com/politics/202...

Thank you Paul & @incldisability.bsky.social 🩷

CW for the article: human and pet death

Paul shares, "These intertwined stories across decades are being shared in hopes of illuminating key commonalities and uniquenesses in the experience of disability across species, as well as the impacts of disability on shaping the behaviors of other members of a family, human and nonhuman."

Paul’s article weaves the concepts of disability, accommodations, caregiving for pets and people, communication, and sharing a home with pets so beautifully that it made me cry the first time I read it.

It’s authored by Dr. Paul Jaeger and titled, “Three Blind Cats and One Visually Impaired Human in the Family: Compassion, Communication, Caregiving, and Culture in a Household with Multiple Species Sharing the Same Disability” (doesn’t that make you want to dive in?).

On this beautiful DC day, today’s #scholarcrip is my favorite journal article I have ever read.

graphic that features black and white photos of a rabbit, a duck, a pig, a sheep, a cow, and a chicken. Text says "April 10th id national farm animals day".

Today is National Farm Animals Day! We hope that by getting to know and love our residents you might be inspired to think about the lives of animals who are not lucky enough to end up in sanctuary, and maybe consider ways you can reduce animal products in your diet/life. ❤️

Thanks @disabilitylab.bsky.social for amplifying these important stories! 🩷

Instagram Create an account or log in to Instagram - Share what you're into with the people who get you.

And check out Gwendystar Media, a media project where Gwendolyn uses photography, videography, writing, and more to create art and tell community stories: www.instagram.com/gwendystar.m...

How Long COVID Redefined My Creative Practice — Disability Culture Lab As I look back on this past Long COVID Awareness Month, I realize that Long COVID has also opened up a journey of self-exploration, understanding, and joy through art, and prompted me to think about how we can best show up for one another. 

#scholarcrip: Gwendolyn Hill on creativity & Long COVID:

"Being more intentional with my work and how I spend my Crip Time and energy is how I honor my Crip body. I had to learn that my creativity won’t die just because I need rest. In fact, it will flourish if I allow it time to grow.”

A selfie of Leah Lakshmi Piepzna-Samarsinha, wearing a colored KN95. The image has a purple filter over it and the Still Here logo in white in the center.

In this week's Still Here (produced by @melaniemarich.bsky.social), @mileswgriffis.bsky.social and @betsyladyzhets.bsky.social chat with poet, author, and organizer Leah Lakshmi Piepzna-Samarsinha about their new poetry collection, The Way Disabled People Love Each Other. bit.ly/4tJGTM6

Under RFK Jr.’s leadership, ‘MAHA’ obliterates public health Robert F. Kennedy Jr. has made massive cuts to public health and spread dangerous disinformation—all under the guise of “making America healthy again”

"'I think that we can trace this [movement] back to the very founding of the United States and the belief that you are only worth the amount that you are able to produce,' said Ives-Rublee."

Thanks Laura Weiss for interviewing me for her @prismreports.org article.

prismreports.org/2026/04/06/r...

Under RFK Jr.’s leadership, ‘MAHA’ obliterates public health Robert F. Kennedy Jr. has made massive cuts to public health and spread dangerous disinformation—all under the guise of “making America healthy again”

Check out my deep dive on the "Make America Healthy Again" movement for @prismreports.org:
Thank you to @jessicamalaty.bsky.social @seemiaroll.bsky.social @drdemetre.bsky.social for speaking with me about the damage RFK Jr. has wrought in his first year at HHS.
prismreports.org/2026/04/06/r...

Slide depicts a person transplanting small plants into soil using a trowel and the words “Planting Outdoors” with the following bullet points: - wait for an overcast day or plant late afternoon after the hottest part of the day is over, - depending on what containers you used, you may or may not need to take them out, - when using biodegradable containers, you may need to slice lines in the bottom so the roots can get out (peat pot), - plant in the ground and then water in, - now wait for your vegetables to grow!

My disabilities have meant I’ve had to find new hobbies in my 20s. I’ve been fortunate to be able to garden on my DC patio.

My mom invited me to join her garden club to learn about seed starting. It was fun to learn more about growing veggies - my eggplant & peppers have already started sprouting!

This research underscores the importance of #scholarcrip. Let’s show early scholars that we’re here, we’re creating knowledge, and we're prepared to welcome them and mentor them!

In today’s #scholarcrip, Aspen Lillywhite & Gregor Wolbring interview disabled students to understand the reality of disabled undergrads as knowledge producers. Participants felt that disabled undergrads were insufficiently exposed to/supported in the identity of being knowledge producers.

Spent the morning talking eugenics and Project 2025 at the Yale Symposium on Disability and Accessibility.

It’s hard to talk about horrifying things and the horrifying history that created them, but I’m bolstered by people’s interest and action in tackling this work.

One line that particularly stood out to me: “Performing productivity has been isolating, but being honest about my needs has been the balm that restores my soul.” #scholarcrip

“My redefining capacity, reclaiming my right to softness, to pause, to rest came easy due to my exposure to community and thought leaders I admire. Imani Barbarin, Roxane Gay, Audre Lorde, and Bassey Ikpi, have all contributed to my understanding.”