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Posts by ndosie

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Absolutely incredible.

NASA Astronaut Reid Wiseman, who commanded Artemis II, took this footage from the far side of the Moon with his iPhone.

Watch with sound on.

3 days ago 15890 4736 308 555
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P085 The development of a UK-wide rheumatology specialist physiotherapy capabilities framework Abstract. Background/Aims Rheumatology physiotherapy is a specialist area requiring specific skills and knowledge. At all levels of practice, physiotherapi

Development of the earlier rheumatology physiotherapy framework took a pragmatic, iterative consensus approach (survey + expert feedback and refinement).

The newer OT framework, using a structured 5-stage model, reflects methodological progression in this space.

doi.org/10.1093/rheu...

2 weeks ago 0 0 0 0
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Development of the UK Rheumatology Occupational Therapy Capabilities Framework: a national consensus initiative AbstractObjectives. To describe the development and national consensus process underpinning the Rheumatology Occupational Therapy Capabilities Framework. T

How do you develop a national capability framework for a specialist workforce?

The UK Rheumatology Occupational Therapy Capabilities Framework development used a 5-stage approach from scoping → endorsement.

A useful model for wider health workforce development.

doi.org/10.1093/rap/...

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Thanks @wandamocats.bsky.social we will do 👍

4 weeks ago 1 0 1 0
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Unmet needs in patients with RA judged in remission by the rheumatologist: a semi-structured interview study AbstractObjectives. To map unmet care needs in patients with RA who are in remission, investigate perceptions on the cause and impact of such needs and exp

Despite clinical remission, many #rheumatoid arthritis patients still endure severe #fatigue, pain and anxiety

Patients feel doctors have 'tunnel vision' when they focus solely on active inflammation

Multidisciplinary care is clearly needed, but access barriers persist

🇧🇪 doi.org/10.1093/rap/...

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World book day

World book day

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The NIHR INSIGHT Programme for South West Central offers funded MRes studentships

✔ Tuition fees covered + stipend
✔ Full-time or part-time
✔ Sept 2026 start

Newly qualified healthcare professionals.

⏳Deadline 15 Mar 2026

Please share 🌐https://insight-southwestcentral.net/

1 month ago 0 1 0 0
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📢 EULAR Webinar: Supporting Self-Management in RMDs!

Health professional, researcher, or patient advocate, this webinar is for you.

You will need to register here edu.eular.org/enrol/index....

1 month ago 1 1 1 0
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Paediatric rheumatology care in Europe: setting children and adolescents into focus Despite major scientific advances, delivering high-quality care for children with inflammatory rheumatic and musculoskeletal diseases remains challenging. The field of paediatric rheumatology lies at ...

📢Powerful viewpoint calls for stronger recognition of paediatric rheumatology

The key asks:
✨Formal accreditation across all countries
✨Stronger international advocacy
✨Child‑centred, developmentally appropriate care
✨Better training, research & MDT collaboration

Read more doi.org/10.1016/S266...

1 month ago 1 0 0 0
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Investigating the association between urban rural classification with fragility fractures and bone density in the UK: evidence from a large observational clinical cohort AbstractObjectives. Geographic variation in fracture risk exists across the UK, yet rural/urban differences in fracture risk and bone density have yet to b

Does where you live in the UK affect bone health?

Study of 40,951 patients comparing urban–rural differences

⬇️ Lower osteoporosis prevalence in rural residents
⬇️ Slightly lower abdominal fat in rural groups
➡️ No difference in major osteoporotic fractures

Download the paper doi.org/10.1093/rap/...

2 months ago 0 0 0 0
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How to assess quality of evidence? Term not well defined but usually includes 3 elements: 1. Internal validity (AKA #RiskOfBias), 2. External validity, 3. Reporting quality. @latitudes-network.bsky.social deals with study validity and @equatornetwork.bsky.social aims to improve quality of reporting

1 year ago 3 4 0 0
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Thank you to the reviewers of Rheumatology Advances in Practice 2025 On behalf of the Editorial Team, I would like to extend my sincere thanks to all reviewers who generously contributed their time and expertise to Rheumatol

Are you on our 2025 Reviewer Recognition List?

Here is the full list of experts who generously dedicated their time, insight, and mentorship in 2025.

Your contribution strengthens the science, @rheumjnl.bsky.social and the wider rheumatology community.

Find your name here: doi.org/10.1093/rap/...

2 months ago 0 0 0 0
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Gout, TikTok and misleading information: a content analysis AbstractObjectives. This study aims to explore what types of gout content are presented on the social media platform TikTok and assess their association wi

Gout content on TikTok has >400M views, but is it accurate? 🧐

➡️ Influencers push herbal cures and diet changes
➡️ Genetics and urate-lowering therapy info invisible.

Download the full paper on @rheumjnl.bsky.social
doi.org/10.1093/rap/...

2 months ago 1 0 0 0
Schematic overview of the positive perspective paradigm. The positive perspective paradigm postulates that the early stages of a chronic inflammatory disease present an optimal time window where appropriate intervention might positively influence one’s health perspective, in turn contributing to reduced long-term disease impact. Specifically, we propose that such an intervention should involve the prompt control of inflammation with appropriate pharmacotherapy, as well as tailored patient education and psychosocial support with a focus on positive communication from the time of diagnosis. The main hypothesis of the model is that both these types of interventions will lead to less patient-experienced disease impact both directly and through positive effects on patients’ health perspective

Schematic overview of the positive perspective paradigm. The positive perspective paradigm postulates that the early stages of a chronic inflammatory disease present an optimal time window where appropriate intervention might positively influence one’s health perspective, in turn contributing to reduced long-term disease impact. Specifically, we propose that such an intervention should involve the prompt control of inflammation with appropriate pharmacotherapy, as well as tailored patient education and psychosocial support with a focus on positive communication from the time of diagnosis. The main hypothesis of the model is that both these types of interventions will lead to less patient-experienced disease impact both directly and through positive effects on patients’ health perspective

Introducing the Positive Perspective Paradigm in the management of #rheumatoid #arthritis

1️⃣Educate with positive communication (not just warnings
2️⃣Empower by validating lived experience early
3️⃣Enable holistic care to support the mind and the joints

New paper Doumen et al doi.org/10.1016/j.ar...

2 months ago 0 0 0 0
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Understanding the patient experience of newly diagnosed giant cell arteritis AbstractOBJECTIVE. The impact Giant Cell Arteritis (GCA) and its treatment has on an individual’s life is poorly characterised. This research sought to adv

Study of patients newly diagnosed with Giant Cell Arteritis identified 4 themes

1️⃣Uncertainty & fear
2️⃣Loss of autonomy & identity
3️⃣Adapting to physical symptoms
4️⃣Critical role of healthcare interactions

Patients need clear communication and support alongside disease control
doi.org/10.1093/rap/...

2 months ago 0 0 0 0
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Patient perspectives on life impact and unmet needs in giant cell arteritis and polymyalgia rheumatica: insights from social media AbstractObjective. To ascertain the perspectives of caregivers and patients with giant cell arteritis (GCA) and/or polymyalgia rheumatica (PMR) and the imp

Social media listening of people with #PMR and #GCA

➡️61% of treatment-related mentions were negative
➡️72% of GCA-related mentions on steroids were negative
➡️Biologics had more positive feedback than steroids

Download full paper doi.org/10.1093/rap/...
@rheumjnl.bsky.social

2 months ago 2 0 0 0
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Enriching African genome representation through the AGenDA project - Nature The Assessing Genetic Diversity in Africa (AGenDA) project shares their processes, including community engagement, obtaining ethics approvals, navigating legal compliance and developing a common gover...

Hot off the press!🗞️

The AGenDA project shows how to finally enrich African representation in the global genome

Led by African researchers, they targeted under-represented groups, prioritising data sovereignty and local capacity building

Blueprint for decolonising research doi.org/10.1038/s415...

3 months ago 1 0 0 0

Great point @rheumnow.bsky.social the data suggests it is largely the 'severe' phenotype. It seems steroids remain a crutch for difficult-to-treat #RA..

3 months ago 1 0 0 0
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Living with palindromic rheumatism: a qualitative interview study AbstractObjectives. Palindromic rheumatism (PR) is an unpredictable and under-researched inflammatory condition, and patients with PR are at risk of develo

Palindromic rheumatism is unpredictable and under-researched

New study by Chapman et al captures valuable patient insights

➡️ Unpredictable flares & psychological distress
➡️ Frequent diagnostic delays
➡️ Lack of info on progression to RA

@rheumjnl.bsky.social #palindromic doi.org/10.1093/rap/...

3 months ago 4 3 0 0
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Development of a clinical tool to identify patients with early inflammatory arthritis at high risk of employment loss: analysis from the National Early Inflammatory Arthritis Audit AbstractObjectives. Work disability is an early consequence of inflammatory arthritis. Preventive interventions exist but access is limited, highlighting t

For people with #inflammatory #arthritis, staying in work matters.

Employment loss is driven by:
➡️manual work
➡️age
➡️musculoskeletal symptoms
➡️mental health

A simple risk tool can help direct scarce occupational health support to those who need it most.

Open access doi.org/10.1093/rap/...

3 months ago 0 0 0 0
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Understanding physical activity participation in people living with rheumatoid arthritis AbstractObjective. We examined self-reported physical activity (PA) levels (metabolic equivalents expended (METs)/week and muscle strengthening/resistance

We are good at promoting "movement" in Rheumatoid Arthritis, but are we neglecting "strength"?

🏃‍♀️ 67% of patients meet aerobic activity guidelines.
🏋️‍♀️ Only 29% meet muscle strengthening targets.

The missing link? Confidence and clinician support.

Download the full paper doi.org/10.1093/rap/...

3 months ago 0 0 0 0
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Infographic titled "2025 in review(s)" from Springer Nature. Statistics show 4 manuscripts reviewed, 3 resulting publications, 35 authors benefited, 2 journals reviewed for, and a 10-day average to complete a report. Top journals listed are BMC Rheumatology and Arthritis Research & Therapy.

Infographic titled "2025 in review(s)" from Springer Nature. Statistics show 4 manuscripts reviewed, 3 resulting publications, 35 authors benefited, 2 journals reviewed for, and a 10-day average to complete a report. Top journals listed are BMC Rheumatology and Arthritis Research & Therapy.

Glad to have supported 35 authors in the BMC Rheumatology and Arthritis Research & Therapy this year.

Next time you get an invite to #review, ask the editor if you can mentor a PhD student through the process. This helps reduce the reviewer 2 syndrome.

@springernature.com #AcademicSky #PeerReview

3 months ago 2 0 0 0
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Acceptability and Barriers to Implementation of the EULAR Recommendations for the Role of the Nurse in the Management of Chronic Inflammatory Arthritis: A Mixed‐Methods Study With Nurses and Rheumatol... Aim EULAR recommendations for the role of nurses in managing chronic inflammatory arthritis were updated in 2018. This study aimed to: (i) assess the level of agreement and implementation of these r.....

Fusama et al assessed the implementation of @eular.org recommendations for the role of the #nurse in Japan 🇯🇵

High agreement by both nurses and rheumatologists, but the classic implementation barriers remain
⏳ Lack of time
🧠 Knowledge gaps
🛑 Issues with role expansion

🔗 doi.org/10.1111/1756...

4 months ago 2 0 0 0

I am sure they got the right answer. Not just safe, but recommended.

Always best to start gradually, ideally under the guidance of a physiotherapist or specialist familiar with systemic sclerosis, to ensure they account for factors like skin tightness, fatigue, or cardiopulmonary involvement.

5 months ago 1 0 1 0
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High-intensity interval and resistance training programme improves pain and fatigue outcomes in people with systemic sclerosis: a European multicentre randomised controlled trial Background Pain and fatigue are among the most debilitating symptoms of systemic sclerosis (SSc), severely impairing quality of life (QoL). Pharmacological management is often inadequate, and evidence...

Pain and fatigue are among the most disabling symptoms in systemic #sclerosis.

New randomised controlled trila shows that a 12-week personalised, supervised exercise programme can ease pain, fatigue, and other symptoms of systemic sclerosis.

rmdopen.bmj.com/content/11/4...

5 months ago 2 0 1 0
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Position statement on artificial intelligence (AI) use in evidence synthesis across Cochrane, the Campbell Collaboration, JBI and the Collaboration for Environmental Evidence 2025 | Cochrane Library

New Joint Statement on artificial intelligence #AI in evidence synthesis. From Cochrane, Campbell Collaboration, JBI & CEE

🧠 Human accountability remains paramount
🤖 AI tools require expert oversight
📊 Transparency & methodological rigour are non-negotiable

More: doi.org/10.1002/1465...

5 months ago 4 0 0 0
Mayor of London Sadiq Khan with colleague stood in front of C40 cities info board.

Mayor of London Sadiq Khan with colleague stood in front of C40 cities info board.

When I was first elected, evidence showed it would take 193 years to bring London's air pollution within legal limits.

Due to our policies, we've done it in 9.

In Brazil this week, we showed that cities are giving the world reason to hope when it comes to tackling the climate emergency.

5 months ago 1589 428 39 25
Redirecting

What if the biggest barrier to early #arthritis treatment is not access to care but knowing when to ask for help?

🇩🇰 New Danish study shows how #education relates to how quickly people seek medical help.

We need health education and advocacy built into every health system. 🔗 doi.org/10.1016/j.ar...

5 months ago 0 1 0 0
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Social media landscape: a cross-sectional survey of health professionals - Rheumatology International Social networks are widely used in the healthcare system for education, research, and professional networking. However, its adoption and impact in Central Asia, particularly among medical professional...

How do health professionals in Kazakhstan use social media? 🇰🇿

📱 98% adoption
🎓 82% use it for learning
📹 YouTube & Instagram dominate
😰 75% feel overwhelmed
💡 99% want training on professional social media use

Full paper 👉 doi.org/10.1007/s002...

5 months ago 3 0 0 0
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Another paper from the same group in Bulgaria reporting the role of nurses in self-management for chronic inflammatory arthritis

- Education on self-injection
- Health promotion - healthy lifestyles
- Psychological support

doi.org/10.3390/jcm1...

5 months ago 0 0 0 0