Dear stranger What I want you to know

open.substack.com/pub/thetudor...

#DisabledBlogger #Disabled #Neurodivergent #Letter

Dear stranger What I want you to know

open.substack.com/pub/thetudor...

#DisabledBlogger #Disabled #Neurodivergent #Letter

Oliver Waite (he/him) (@thetudorsmakemetic) • Threads, Say more 87 Followers • 39 Threads • Asexual non binary trans man. Wheelchair user. AAC & eye gaze user. AuDHD, Tourette’s, schizophrenia etc. wheelchair rugby league player. Poet. See the latest...

I’m using blue sky much less nowadays.

I am however, starting to use ‘Threads’ come and find me on Threads.
I’m there as ‘the tudors make me tic’

www.threads.com/@thetudorsma...

I’m wanting to share more threads on here similar to ones I did on Twitter.

Let me know what you’d be interested in reading about.

- neurodivergence
- SMI
- wheelchair life
- AAC
- trans (including non binary)
- asexual
- wheelchair rugby league

And topics within these areas too.

“Being schizophrenic doesn't make me evil.
Yet the way you treat me is medieval.
Delusions, paranoia and voices.
You see these are not my choices.
And this is why my life is a state of upheaval.”

By Oliver Waite

#Poem #Poetry #Poet #Disabled #Neurodivergent #Schizophrenia #MentalHealth

Good news and crap news from NHS stuff yesterday.

AAC specialists are getting me a lot of new equipment including a new AAC device I’ll use with eye gaze. Great staff there too.

Then my GP text to say my ADHD referral was rejected due to my mental health history. So I’m too mental for them.

“The voices in my head
They really want me dead
They battle and shout
Just want to get out
And I’m just full of dread.”

A short poem I wrote.

#Poem #Poet #Poetry #Schizophrenia #Schizophrenic #HearingVoices

Recently my complex PTSD has been triggered quite badly.
Which has then kicked off my schizophrenia and OCD.
So my voices are bad, paranoid and feeling scared are bad. And my brain is full of ahhhhhhhhh.

I have been on testosterone 14 years today. That is bonkers.
I remember my first injection like it was yesterday.
And now 14 years on and an injection every 3 weeks of T.

#TransMan #Transition #LGBTQIA #NonBinary #Transgender #Testosterone

On the right is an eye gaze on a mount showing a large keyboard layout. On the left is a picture of a curling match projected onto a wall.

Journaling using eye gaze device.

But also the curling is on so this is my setup!

50 press ups a day are apparently going to cure my Tourette’s.

Says some randomer on Facebook.

Best get down and do some press ups.
/sarcasm.

#Tourettes #Ableism #Tics

I made a video of me reading this poem.

#Poet #Poetry #Schizophrenia #AACuser #LGBTQIA

One of three poems I had in a museum two years ago.

“The schizophrenic queer

The pride parade goes on without me.
My crazy brain cannot attend.
Hallucinations spiral.
The schizophrenic queer.
Pride is a protest.
But no access.
Do I fit.
Crazy.
Pride.”

#Poet #Poetry #Schizophrenia #Pride

Any recommendations for journaling apps/programmes for windows computer?

#Journaling

Things that DON’T help me as a severely mentally ill person:

- being sectioned
- the crisis team
- the CMHT
- ableism and saneism
- stereotypes and stigma
- the news
- society

#Mentallyill #MentalHealth #Schizophrenia #ComplexPTSD #OCD #Mentalillness

Things that DON’T help me as a severely mentally ill person:

- being sectioned
- the crisis team
- the CMHT
- ableism and saneism
- stereotypes and stigma
- the news
- society

#Mentallyill #MentalHealth #Schizophrenia #ComplexPTSD #OCD #Mentalillness

Things that help me as a severely mentally ill person:

- medication (especially clozapine)
- hearing voices network group
- cats
- some close humans
- playing wheelchair rugby league
- sometimes therapy (sometimes it’s detrimental!)
- diagnoses
- knowing my limits and resting

Nurse at clozapine clinic kept trying to make me tic things she wanted me to ‘say’

Told me she would write them on my ‘pad’ (AAC device) so I’d remember.

She also pulled up one of my push handles on my wheelchair and moved me out of the way. Didn’t ask or say excuse me etc.

🙄😡🙄

Watched the curling this evening. I love the curling 🥌🥌🥌

Love all the other sports too. Some of them are very bonkers!

#NotAloneTalk

Following up from this post.

Instead of saying “x is fully accessible”

Describe what facilities you do have.

So say things like “step free entrance. Accessible toilet. Lifts. BSL interpreters. Touch tours. Sensory/quiet room and etc.”

That says a lot more to me than just ‘fully accessible’

A5: yes I have a lot of echopraxia tics.
And also echopraxia stims (best word to describe them I think) where I’ll copy
Actions (mainly knocking or tapping) from the TV or others around me.

#AutChat

A3: as my echolalia is involuntary Tourette’s tics it doesn’t have a purpose. It just happens randomly as tics do.

But I have a lot of echolalic tics.

Pre full time AAC user I would do echolalia for communication or similar.

#AutChat

A2: as now a days all my echolalia are tics. There are a wide variety of echolalia tics.

It seems common for me if someone sings something I then tic it back.

But yeah for me I have a lot of echolalia. #AutChat

A1 cont: my echolalia tics vary as to whether they ate immediately or a delayed echolalia tics. #AutChat

A1: yes I have a lot of echolalia due to
Tourette’s syndrome.

I’m now a full time AAC user but when I had some voluntary speech and was a part time AAC user I did some echolalia as stimming.

#AutChat

A0: hi I’m Oliver he/him. Multiple disabled and ND.

I have a lot of echolalia due to
Tourette’s.

#AutChat

I used to believe I had schizoaffective bipolar type. I got officially diagnosed with it in 2022.

But now I’ve worked out that it’s actually schizophrenia and ADHD.

Even when I thought it was schizoaffective I identified with the schizophrenia part and not with the bipolar part.

When places say “fully accessible for all”

They’re lying. And it frustrates me.

I’m not even accessible for myself. My access needs clash all the time.

I’m in a current situation with clashing access needs.

No where is fully accessible. That’s just a bullshit saying.

When your access needs are different to others who are using the same aids it gets complicated.

I am an AAC user. I use a manual active user wheelchair. I need a device with eye gaze as an option.

Most eye gaze users have their device mounted to their power chairs. This isn’t an option for me.

A white non binary trans man in a pink suit. Wearing dark glasses. He is wearing a graduation gown and hat. Holding a scroll in his hands.

Last year I graduated with a BA hons in history from the Open University.
I went to the graduation ceremony, and I’m glad that I did go as was debating whether to or not.

A decade long, where 6 years were studying. Other years were spent sectioned and battling the council for care hours.