We had a patient who became severely classically Cushingoid during the RCTs
Posts by Neil Turner
It is the wound in Time. The century’s tides, chanting their bitter psalms, cannot heal it. Not the war to end all wars; death’s birthing place; the earth nursing its ticking metal eggs, hatching new carnage. But how could you know, brave as belief as you boarded the boats, singing? The end of God in the poisonous, shrapnelled air. Poetry gargling its own blood. We sense it was love you gave your world for; the town squares silent, awaiting their cenotaphs. What happened next? War. And after that? War. And now? War. War. History might as well be water, chastising this shore; for we learn nothing from your endless sacrifice. Your faces drowning in the pages of the sea. Carol Ann Duffy, ‘The Wound in Time’ (2018)
War. And after that? War. And now? War. War.
History might as well be water, chastising this shore.
-Carol Ann Duffy, The Wound in Time, written on the occasion of the centenary of the first World War.
#everynightapoem
Alport Research Hub Symposium 2026 on Friday 3 July at the Institute of Child Health, London. An interactive event dedicated to sharing the latest scientific advances and clinical trials in Alport syndrome and the achievements of the Alport Research Hub.
Register now: https://bit.ly/46NOBeW
At the end of his career, Stanford University took away Addis's laboratory, perhaps on account of his leftist political views. He supported the loyalists in the Spanish Revolution, and was chairman of the San Francisco chapter of the Spanish Refugee Appeal, an organization that aided refugees from Franco's Spain. Addis toured the Soviet Union in 1935 and came away impressed by the communist country's medical accomplishments. He was friends with Harry Bridges and other leftwingers. Addis was chairman of the San Francisco chapter of Physician's Forum, an organization that supported national health insurance. Shortly before his death, he was expelled from the American Medical Association for refusing to pay his annual membership fee, which he did to protest the AMA's lack of support for President Truman's national health insurance plan.
His Stanford colleague Frank W. Weymouth wrote about him: Injustice or oppression in the next street ... or any spot inhabited by men was a personal affront to Thomas Addis and his name, from its early alphabetical place, was conspicuous on lists of sponsors of scores of organizations fighting for democracy and against fascism. He worked on more committees than could reasonably have been expected of so busy a man. ... Tom Addis was happy to have a hand in bringing to the organization of society some of the logic of science and to further that understanding and to promote that democracy which are the only enduring foundations of human dignity.[5]
Just on Tom Addis
Stanford and the AMA behaved badly - as most large organizations usually do.
From en.m.wikipedia.org/wiki/Thomas_... with lessons for today.
#MedSky #HistoryofMedicine
The front cover of the special centenary edition comic by Beano. Showing the Bash Street Kids bursting out of the front of the National Library of Scotland.
🎉 It’s our official birthday on Thursday 7 August!
On the day, visit us at George IV Bridge, Edinburgh or Kelvin Hall, Glasgow to get your own copy of a special edition centenary comic created by Beano, especially for this occasion!
#Beano #NLS100 #LoveLibraries #LibrariesAloud
Around 100 people seated in a circle, 3 rows deep, introducing themselves & outlining what they're hoping to learn today.
An exciting day ahead at the @alportuk.bsky.social Alport Syndrome patient day in Nottingham.
Here to learn from people how this kidney/ear/eye syndrome affects them & their families.
🧪🫘👂🏼👁️🧬
The Alport Workshop in Beijing in September is looking tremendous! Agenda to be added soon, but register now at tinyurl.com/5674vckz @alportuk.bsky.social @dannygale.bsky.social @rheaultm.bsky.social @rachellennon.bsky.social
Now in 2025, it seems the #NephJC changeover period is over. Almost all the top online voices in nephrology are using #Bluesky as their platform of choice to discuss the latest #science.
13 Blackfriars St, Edinburgh—currently eight flats (after modernisation); probably more in the 1870s, when it was built as working-class housing to replace the "rotten, ruinous old buildings" and the "congeries of dark and wretched lanes" of the area.
Former residents include:
📢 Save the Date!
The 2025 International Workshop on Alport Syndrome is in Beijing, China!
📅 Sept 4 – Patient Workshop
📅 Sept 5-7 – Scientific Workshop
Connect, learn, and advance treatments! More details soon.
🔗 www.alportsyndromealliance.org
#AlportSyndrome #GlobalWorkshop #SaveTheDate
Packet of biscuits labelled Tesco Scottish Empire Biscuits, baked int eh Kingdom of Fife
From the Scottish Empire
Quiz: Young man with 1 week of fever, headaches, nonproductive cough, 1 day of dyspnea. Within 36 hours, he had 1 episode of hemoptysis and worsening hypoxia requiring mechanical ventilation.
https://bit.ly/4ka9Ts3 (FREE)
A long straight dusty dirt road in the Australian outback
On the long flats north of the river
An elder in a leather jacket
Is hitchhiking to his daughter’s funeral
(Les Murray)
www.scottishmedicalhumanities.org/human/a-coun...
Two wonderful 50 year flashbacks to the early days of dialysis and transplantation (19974) vimeo.com/ukkidneyhist...
Mine similar, so I’ve relabeled it an editing day.
I did not know that, and I should.
Good to see Daniel Clowes tucked in there near the bottom.
Congratulations to the Parker solar probe for setting a new record for 'worst job avoiding the sun' xkcd.com/3029/
Great case, but we now know you that some have the mutation with renal manifestations but minimal or no systemic features.
Hoping this is 1/12 great works of art??
Great time to revisit the outstanding Alport workshop in Cyprus in March youtu.be/HnwKsDMms8A
Thankyou @AJKDonline for the opportunity to share my story “In a Few Words” @AJKDblog and providing a platform to advocate for kidney community in generating solutions to alleviate care giver fatigue for patients with ESRD.
@ajkd.bsky.social @nkf-professionals.bsky.social
I think it's still early enough to do the greatest hits, so here's an updated version for 2024.
Sorry if I satirized your life's work. Original by @xkcd.com.
#Nephsky
The Grinch who stole Chr…eatinine Clearance 🎄 #NephSky