Tomorrow is our latest IN conversation over on Facebook at 12pm. This month we will be discussing Pain. To take part head over to our Facebook Group at 12pm, and join in the text based chat - www.facebook.com/groups/72740...
We will be keeping our Annual Survey open until the end of the month, so there is still time to let us know what you think about the charity. Remember if you don’t tell us about it, we don’t know. All feedback gratefully received - bit.ly/INUKsurvey2026
Just a quick reminder to our #MMN Community that we are meeting tonight at 7pm on Zoom for an MMN Online Get Together, Just pop over to www.inflammatoryneuropathies.uk/get-togethers, scroll down to Online Get Togethers & click on the third pink box at 7pm. Look forward to seeing you on there later
Sam wanted to do something in his honour, and what a thing. Well done Sam, we are sure your dad is very very proud. You can support Sam at www.justgiving.com/page/110km-f...
Now here is someone doing something incredible for us. Sam Doughty is running a 110km (that’s 68 miles!!) ultra marathon for Inflammatory Neuropathies UK. Sam’s dad had Guillain-Barré Syndrome in 2024, and throughout his recovery has shown strength determination, and drive.
Living with #GBS, #CIDP, #MMN, and other conditions also means you may need additional specialist equipment.
If the financial burden of #InflammatoryNeuropathies is impacting you, then reach out. We can offer practical advice and in some cases we can help with a Personal Grant.
We know that when #GuillainBarréSyndrome hits it is unexpected. The physical and emotional impact is awful, but often the financial hit can be equally bad with additional travel expenses to visit loved ones in hospital.
This is something that we see lots of discussion around, so it’s a great opportunity to share your experiences, ask questions, and hear from others in the community. As usual it will be over on our Facebook group (www.facebook.com/groups/72740...). Everyone welcome
Our next IN conversation session is coming up next Friday (17th April) at 12pm. This time it will be a lovely topic for a lunchtime chat, as we will be talking all about pain.
It’s one of our big events this weekend, and we have three wonderful Inflammatory Neuropathies UK fundraising champions running the #BrightonMarathon for us tomorrow. Join us in cheering on Gemma, Alex, and Edward.
You can read more on Claire’s work in our September 2025 newsletter, and we will be bringing you more from Claire in the coming months.
Back in 2025 we agreed to fund part of Claire Bergstrom Johnson’s work at Oxford University. Claire is involved in researching how certain antibodies can damage nerve function, and we were delighted to support this work which will hopefully lead to better treatments and therapies.
If you are finding it difficult to cope with fatigue, you can find information on our website - inflammatoryneuropathies.uk - or feel free to reach out to the charity tomorrow – hello@inflammatoryneuropathies.uk or 01529 469910
We hear a lot about #fatigue from people impacted by #GBS #CIDP#MMN and other #InflammatoryNeuropathies. It is part of living with one of these conditions, and it can be debilitating. While your condition may be invisible to others, you may need to take some extra time to restore your batteries.
Dorothy McGhie is a true @Inflamneurouk fundraising champion. She is once again supporting us by holding a Coffee Morning and raffle on Thursday 9th April. We are told there will be cake 😋. If you can’t join her then you can donate at www.justgiving.com/page/dorothy...
This is your charity, and we need your input to make sure we do the things you want us to do. The more people complete the survey, the better the information we have. It really does only take a few minutes to fill in, so please take the time to share your views. bit.ly/INUKsurvey2026
Have you got a 10k run in you? Time is running out to register to take on the #Birmingham10k. And you could do it for Inflammatory Neuropathies UK. Email hello@inflammatoryneuropathies.uk to claim your free place
And if this inspires you, then why not think about doing your own IN the water challenge in May. Head over to www.inflammatoryneuropathies.uk/in-the-water for more information
Our incredible chair will be getting IN the water for Inflammatory Neuropathies UK in May. Carol will be swim/walking 10,000m. That’s an incredible challenge to be taking on to support our community. If you are able to then please consider sponsoring her at www.justgiving.com/page/carol-h...
As it’s a Bank Holiday on Friday 3rd and Monday 6th the Inflammatory Neuropathies UK office will be closed.
We won’t be able to take calls or pick up emails but if you leave a message on the voicemail or send an email we will get back to you as soon as possible on Tuesday.
Just call 01529 469910 or email hello@inflammatoryneuropathies.uk and ask about Peer Support from Inflammatory Neuropathies UK.
We have amazing volunteers available and waiting to speak to you. So if you are newly diagnosed, have questions about your condition, or just want to have a chat with someone who understands, then get in touch with Claire in the office who will happily match you up with the right person. 2/3
We know that one of the biggest things for people impacted by #GBS, #CIDP, #MMN, and other #InflammatoryNeuropathies is speaking with someone who has been through what they are going through. These conditions are rare, and hearing from someone else who understands is vital. 1/3
Our MMN Online Get Together is back on Tuesday 14th April at 7pm. To join us go to www.inflammatoryneuropathies.uk/get-togethers at the right date and time, click the MMN pink box, and get logged on.
Who will be joining us on the 14th?
We know that people impacted by GBS, CIDP, MMN, and other Inflammatory Neuropathies are more likely to be in emotional distress than other people, so if you are feeling worried then reach out and get some support. More information can be found at www.inflammatoryneuropathies.uk/health
It’s Sunday, the weather isn’t the best, so why not take a few minutes to complete our annual survey. By giving your honest feedback on what we do, you can help us to improve our offer. After all, this is your charity. You can find the survey at forms.cloud.microsoft/e/TGuNxGGWWC
Will you get IN the water for GBS and CIDP Awareness Month? Help us to raise funds and awareness by taking on a water based challenge! Get swimming in a pool, take a dip, or get under a cold shower. Go to bit.ly/INthewater to register