The Hits and Misses of living with stage 4 prostate cancer (and a few of the things you gained but wished you hadn’t) I’ve not blogged about living with stage 4 prostate cancer for a while but I do think people need to understand the consequences of late diagnosis in order that they are aware that they need to be …

I’ve written a blog about the hits and misses of living with incurable prostate cancer as well as highlighting some of the things I’ve gained but wish I hadn’t.

Why did I write it? Because I want people to read it and make sure they don’t end up like me

runningintocancer.co.uk/2026/01/22/t...

AS results from a diagnosis because of screening though and it’s the most important part of reducing harms

Agreed. Using data for black men from the USA where there’s a totally different health care system is nonsense

I don’t believe that the other screening programmes have AS as an option

I actually think it’s quite real and I literally interact with 100’s of men regularly. I do think better comms could help deal with it though. Telling people about the results of the PROTECT trial for example

I’m sure that’s right. There’s already a shortage of radiographers. That’s why I don’t think we’ll get population screening without significant investment but they should have planning first screening for the last decade and haven’t

We won’t get population screening without massive investment. Testing millions of men regularly and then potentially further tests/treatment is just not possible with the current infrastructure

It’s not that easy though. Things have improved as far as overtreatment is concerned but inevitably some men who are told they have cancer, albeit very low grade that may never harm them, will find AS unacceptable and want radical treatment or suffer real stress and anxiety. It’s very nuanced!

The decision to screen men with BRCA without a plan to identify those men is also joke

Informed choice is fatally flawed

Agree re quack meds. Abiraterone is definitely not one of those. It’s very unfortunate that the current informed choice to getting tested is fatally flawed and leads to too many stage 4 dx’s particularly amongst those from poorer socioeconomic backgrounds and ethnic minorities

I know the debate intimately. I’ve responded to the NSC consultation as one of the UK’s leading patient advocates and Trustee of Tackle. It is indeed a very nuanced debate but one that, without fail, never ever considers the harm of late diagnosis. It’s not death alone that needs consideration!

I know lots of people on it. No one seems to experience problems that are any worse than HT. My friend Kev has been on it as long as I have and run 4 Marathon De Sables in 10 years and doing his 5th this year. Significant side effects are quite rare

I’ve been on it 8.5 years and had no worse side effects than I get from Prostap

I was diagnosed stage 4 so too late for surgery. All I’ve had is hormone therapy (Prostap) and Abi. I swerved chemo

I’ve been on Abi for 8.5 years. In that time I’ve run London marathon, completed a 100km ultra marathon, run at least 5km per day for a full year. Like all drugs it has side effects but the positive is I’m still alive when I was given 2 years to live

Review of 2025 HEALTH UPDATE 2025 was a strange year from a health perspective as it was plagued by minor illnesses and viruses that, individually, were something and nothing but cumulatively were a pain. The mos…

I started my blog was because I wanted my Grandchildren to know who and what "grumps" was when I've gone.

I decided to chronicle the key aspects of my life in Reviews of the previous year and 2025 was epic in many ways so here's my review of 2025.

runningintocancer.co.uk/2026/01/07/r...

My live interview on Granada News last night is about 10 minutes into this

www.itv.com/watch/news/w...

Sorry to hear of your loss Simon. Condolences to the family

🚨The latest National Prostate Cancer Audit Newsletter is OUT, you can read it here www.natcan.org.uk/news/npca-ne...

Packed full of news, information and links! Please share it widely.

@natcan-news.bsky.social @hqip.bsky.social

I feel very blessed Simon

Back at The Christie Hospital today for my latest prostate cancer test results.

After having been given 2 years to live 8.5 years ago my PSA is still undetectable and cancer completely stable.

We live to fight another day. KOKO my friends.

To Screen or not to screen I’m very much in favour of screening for prostate cancer, as you’d expect given that I was diagnosed with the incurable variety at age 60 and given a worst-case prognosis of two years. Being told t…

#ProstateCancer screening debate is raging. I’ve tried to capture the nuances of the debate in this blog. I accept that I’m biased towards screening but I’ve tried to reflect both sides. runningintocancer.co.uk/2025/11/02/t...

Final few tickets available for the Paint Altrincham Blue comedy night supporting @ProstateUK and @TackleProstate. Early bird tickets sold out. Buy yours from Eventbrite using this link www.eventbrite.co.uk/e/pab-comedy...

She is awful

Well Ethan bagged a PB at Wilmslow parkrun of 25:25 as a young 12 year old so I’m now living vicariously through him 😂😂😂🏃🏻‍♂️‍➡️🏃🏻‍♂️‍➡️🏃🏻‍♂️‍➡️

Thanks. Feedback was good so I did my work okay I think

Delighted with my presentation at #ESMO25 for @Medscape. It’s such a privilege to be given the patient voice and make the voices of the thousands of men that @TackleProstate support, heard. Now though I found a beer garden! Won’t be here long cos it’s freezing!

Every single right wing account on Twitter (so that’s 90% of accounts on there) was appalled by the decision to ban! Personally I think it was sensible to protect Villa fans and Birmingham residents given the reputation of their fans!

Tackle Prostate Cancer - We stand alongside everyone affected by prostate cancer. Considering both sides of the discussion when it comes to a national screening for prostate cancer, but why early diagnosis is important.

Delighted with this article published by Tackle Prostate Cancer about the harms of late diagnosis of prostate cancer tackleprostate.org/harms-of-lat...