Interview with Julie Rehmeyer about her NY Times' Modern Love piece YouTube video by David M Tuller

Big thanks to David Tuller for this interview about my Modern Love piece about Beth Mazur. www.youtube.com/watch?v=DXeR...

The essay itself is here: www.nytimes.com/2026/04/03/s...

“I feel like I don’t really exist,” she said, her voice small. Her cognitive dysfunction didn’t show—from the outside, her brilliance still blazed—but that invisibility deepened her frustration.

Beautiful and true, essay by @julierehmeyer.bsky.social

Gift link: www.nytimes.com/2026/04/03/s... #ME

»Darf ich mein Leben bei dir beenden?«

Die Myalgische Enzephalomyelitis (ME) hatte Beth Mazur »ihre Karriere, ihre Kinderwünsche, das Snowboarden und oft sogar die Kraft zum Aufstehen geraubt. Aber der schlimmste Verlust war ihr brillanter Verstand als Technologieexpertin. 🧵

Me too, me too. Love to you.

May I End My Life With You?

Over two years ago, the magnificent Beth Mazur ended her life while visiting me. I miss her. www.nytimes.com/2026/04/03/s...

6. Through the Shadowlands: A Science Writer’s Odyssey Into an Illness Science Doesn’t Understand, Julie Rehmeyer. @julierehmeyer.bsky.social and I have many of the same health problems, ...

The Weighing | Julie Rehmeyer | Substack Reflections on survival, energy, and education in a disordered world. Click to read The Weighing, by Julie Rehmeyer, a Substack publication with thousands of subscribers.

Thanks for the recommendation! I’m at jrehmeyer.substack.com.

Congratulations! And what a beautiful thread.

Small Is Beautiful — But It’s Not Enough Why our environmental intuitions must evolve for the climate crisis

New essay: The environmental story that shaped so many of us — small is beautiful — now collides with the scale the climate crisis actually demands.
I wrote about why we need to update our instincts for the world we’re living in now, not the world of 1973. jrehmeyer.substack.com/p/small-is-b...

Alice Wong taught us that disabled people don’t just leave memories behind—they leave infrastructure. Lineages of care. Methods of collectivity, survival. She named the connective tissue that holds our communities together, even across death, even across the losses that come too fast and too often.

Deliciousness, Born from the Fire of Chronic Illness Rachel Riggs's beautiful new cookbook

Rachel Riggs has a gorgeous, delicious new cookbook out — and I got to have a really interesting conversation with her about it. It'll help you make wonderful food even when one friend is gluten free and one is dairy free and one doesn't eat nightshades... jrehmeyer.substack.com/p/deliciousn...

A moving tribute to Walker, who died of ME way way too young.

I'm carrying you with me as I make these phone calls.

They're making calls to Georgia, Pennsylvania, North Carolina, New Jersey, New York, Virginia and New Mexico today. These are all key races.

Pitch in ASAP at environmentalvoter.org

It's not too late to pitch in! They give you a quick training, and the calls are easy to do (even from bed). Also, you can do it in short bursts to pace yourself if you need to. I find it kind of addictive, honestly. I get a rush when it seems like someone really may vote because of my call.

Because turnout is likely to be low, in Georgia turning out just a few environmental voters can have a BIG impact.

Also, if someone votes once, it's much more likely they'll keep doing it, so this work changes the electorate over time.

I've mostly been making calls for the Georgia Public Service Commissioner election, which is soooooo important and sooooo under the radar. Few people even know what the PSC does and why it matters! But it's critical to cost of living, to climate change, to the economy...

In less than an hour, I've reached several people who didn't know where their polling place was and were happy to get help to find out. I can't say for sure that such folks will follow through and vote, but chances are a heck of a lot higher now!

It's election day! I voted by mail a week ago, so I'm celebrating by making calls with @environmentalvoter.bsky.social, the Environmental Voter Project, reaching out to folks who care about the environment but often don't vote. I'm amazed by the impact I can see from it. 1/

🔗 environmentalvoter.org/get-involved

ME friends: If you want a way of resisting our terrible national situation, phone banking with the Environmental Project is a great way to go! You can do it in small increments. It's easy, they train you, and it's effective. See details below on how it works.

Aw, this makes me so happy to hear!

Julie's essay is worth your time. Promise.

If you have even an hour, you can log in and make calls from home. Volunteer here: environmentalvoter.org

One voter who thought he couldn’t vote said to me:
“Thank you for spending your Sunday evening doing something really worthwhile.”

It’s not too late to help with this Tuesday’s elections—EVP has phone-bank shifts for key races in Georgia, New York, and New Jersey.

Others I called might not have needed that info right away, but maybe the reminder mattered.

I’ll be honest: calling strangers isn’t easy. When people hung up, I felt bad for bugging them. But it’s worth briefly bugging some folks if it means someone gets the information they need to cast a ballot.

In my hour of calls, I reached two registered voters who were convinced they couldn’t vote.

Both were so grateful when I explained that yes, they can—and gave them their polling info.

EVP finds registered voters who care about the environment but don’t always turn out—and helps them navigate the voting process.

They don’t tell anyone who to vote for, just when, where, and how.

I just spent an hour volunteering with the Environmental Voter Project (EVP). It’s one of the most effective, nonpartisan ways I know to pitch in during these dire days.

www.environmentalvoter.org

In my hour of calls, I reached two registered voters who were convinced they couldn’t vote.
Both were so grateful when I explained that yes, they can—and gave them their polling info.