The 20th Annual #AppendixCancer Global Walk is happening June 13-21, and we're looking for businesses and individuals who want to be part of this milestone.
Twenty years of making a difference. Help us make the next twenty even greater!
Register: secure.acpmp.org/event/the-20...
Posts by Appendix Cancer PMP Research Foundation
As a part of #WorldHealthDay, check out this article from
@mdanderson.bsky.social w/ insights from Dr. John Paul Shen
& Dr. Beth Helmink. Their expertise highlights why #appendixcancer is so difficult to diagnose and why continued education and research matter.
www.mdanderson.org/cancerwise/3...
Image of a group of people walking in amber t-shirts for the appendic cancer walk. Amber block with words Appendix Cancer Global Walk and 20 years of making difference. 20th Anniversary Walk in amber text block.
20 Years of Making a Difference: Join the 2026 #AppendixCancer Global Walk.
Walk where you are or join a State Walk event! June 13-21, 2026.
Register today: secure.acpmp.org/appendixcancerwalk2026
Join our upcoming webinar with Dr. Laura Lambert & team at NYU Langone Health reviewing #NCCN updates relevant to #AppendixCancer.
Evidence-based guidance supports informed care decisions.
Register today: events.zoom.us/ev/ApL5GXBWt...
#RareDisease #CancerGuidelines
The first dedicated #AppendixCancer Patient-Powered Registry is advancing research through real-world data.
Participation helps researchers better understand diagnosis, treatment, and survivorship.
Learn more: acpmpregistry.iamrare.org
On @rarediseaseday.bsky.social , weβre proud to spotlight a new #CME course developed in partnership w/ @medicalcollegeofwi.bsky.social: The Neoplastic Appendix: When to Watch, When to Act, When to Refer.
Learn more & Register here: ocpe.mcw.edu/node/229093...
#AppendixCancer #AppendicealCancer
Have you been diagnosed with cancer in the past 2 years & met with a surgeon about possible surgery?
Researchers at UAB are conducting a brief, anonymous survey about how patients experience conversations around cancer surgery.
uab.co1.qualtrics.com/jfe/form/SV_...
#appendixcancer #cancerresearch
Honored to be a sponsor yet again for the 2026
@socsurgonc.bsky.social ACT Conference! ACPMP funded the $100K Lisa Kurtz Luciano CIA grant, awarded to Dr. Beth Helmink & $25K YIA awarded to Dr. Jeremy Sharib.
Congrats also to ACPMP-funded travel award recipients at #ACT2026! #AppendixCancer
ACPMP is proud to yet again fund two 2026
@socsurgonc.bsky.social research grants focused solely on #appendixcancer & PMP.
Congrats to Beth Helmink, MD, PhD recipient of the $100K Lisa Kurtz Luciano Appendix Cancer and PMP CIA grant, and Jeremy Sharib, MD, recipient of the $25K YIA grant!
Join us on Thursday, January 29th, at 7 PM for upcoming webinar: HIPEC vs. PIPAC: Exploring a New Clinical Trial for #AppendixCancer Patients Not Eligible for Cytoreductive Surgery, led by Dr. Wagner & Dr. Altpeter of Allegheny Health Network.
Register Today: acpmp.org/hipecvspipac
We are proud to announce Michael Foote, MD of @mskcancercenter.bsky.social as the first-ever recipient of our $150K ACPMP Changemaker Research Grant for his research project, βTargeting the Surface Proteome of Appendiceal Cancer Peritoneal Metastasis.β
This research is made possible by our donors!ποΈ
Why are more young adults getting appendix cancer? Check out @mdanderson.bsky.social Cancerwise podcast
featuring Drs. Beth Helmink and JP Shen as they offer a clear overview of #appendixcancer and current approaches to care.
π· Watch the episode here: youtu.be/ot5dbXsKIvg
π Day 5 of 12 Days of Impact: Expanding Awareness at Medical Conferences
In 2025, ACPMP exhibited at leading medical conferences to raise awareness about #appendixcancer, correct misconceptions, and engage directly with clinicians and researchers.
π Day 4 of 12 Days of Impact: Patient Stories
Weβre honored to be a trusted source of support and information for those affected by #appendixcancer. Your support makes this possible! π acpmp.org
π Day 3 of 12 Days of Impact: Research in 2025
In 2025, your support powered major investments in appendix cancer research.
Your generosity makes this progress possible. Thank you for fueling #appendixcancer research. π
π Day 2 of 12 Days of Impact: #AppendixCancer Awareness Month
A huge thank you to our volunteers, supporters, and partners for your dedication this past August!
Join us for 12 Days of Impact! π
Each day, we'll share stories and milestones made possible by your support.
#Appendixcancer affects 2-9 people per million annually, but it is serious and on the rise. Let's raise awareness, inspire hope and advance research.
Remembering Stuart Scott today. His #appendixcancer journey touched so many and brought rare visibility to this disease. @espn.com honors his legacy Wed, Dec 10 at 9 PM ET with the 30x30 film Boo-Yah: A Portrait of #StuartScott.
Preview: www.espn.com/video/clip?i...
Congratulations to the Top 3 Winners of the @givingtuesday.bsky.social 2025 Shades of Amber: Creative Contest for a Cure!
Thank you to every artist who shared their amber-inspired work and to everyone who voted in support of #appendixcancer awareness.
learn more: acpmp.org/event/shades...
"I want to help spread awareness, share knowledge & offer support. ACPMP has given me a platform not only to learn for myself, but to help others navigate this journey."- Melissa
This #GivingTuesday, your support helps more patients find hope when they need it most. secure.acpmp.org/campaign/726...
A major milestone for the #appendixcancer community!
The #NCCN has released dedicated Guidelines for Appendiceal Cancer, officially recognizing this #raredisease as distinct from colorectal cancer.
Read more about this important step forward: oncodaily.com/insight/nccn...
@oncodaily.bsky.social
Missed the live sessions from the 2025 #AppendixCancer Symposium? Recordings are now available!
Catch fundamentals education, research updates, and expert sessions at your own pace.
Watch the recordings: youtube.com/playlist?lis...
@yaleschoolofmed.bsky.social @huntsmancancer.bsky.social
The voice of patients unites at #PSOGI2025!
On Oct 30 in Barcelona, patient advocates from πͺπΈπ¬π§π«π·πΊπΈ will present the 1st Patient Manifesto on Peritoneal Malignancies, highlighting shared needs, challenges & hopes.
#PatientVoice #RareCancer #AppendixCancer
@pmpsurvivor.bsky.social @mesouk.bsky.social
Learn why cancer immunotherapies sometimes failβand how a new study out of @osucccjames.bsky.social could lead to improved treatments.
The voice of patients unites at #PSOGI2025 πͺπΈ
On Oct 30 in Barcelona, the first International Patient Manifesto on Peritoneal Malignancies will be presented - a global, patient-led initiative co-developed by 7 orgs from 5 countries, including ACPMP.
@pmpsurvivor.bsky.social @mesouk.bsky.social
Blue background with yellow, white, and light blue stripes with words "What to Expect at the 2025 Virtual Appendix Cancer Multi-Regional Symposium"
New to the Appendix Cancer Symposium? Hereβs what to expect:
β‘οΈ Expert presentations on diagnosis, treatment & research
β‘οΈ Mock Tumor Board discussion of real patient cases
β‘οΈ Live Q&As throughout the day
β‘οΈ Regional breakout sessions focused on practical needs
events.zoom.us/ev/AlbNeGm7q...
In this insightful Q&A, Dr. Kiran Turaga discusses the increasing incidence of #appendixcancer cases & the progress being made in research & treatment.
Dr. Turaga will also be joining us as a moderator for our Appendix Cancer Symposium on Oct 17!
Read more: www.yalemedicine.org/news/from-sy...
Whatβs next for PIPAC in the U.S.? π
Dr. Mustafa Raoof of City of Hope, Duarte Cancer Center, will share the latest updates and future directions at the 2025 #AppendixCancer Multi-Regional Symposium.
Save Your Spot: events.zoom.us/ev/AlbNeGm7q...
#PIPAC #CityofHope
The AROD Strong Kickball Tournament, Walk, and BBQ raised more than $7,300 to honor Anthony "AROD"βs memory and support appendix cancer research, education, and awareness. Thank you to everyone who joined, played, and supported this amazing day. π #AppendixCancer #ARODStrong
π #AppendixCancer Awareness Month 2025 = Global Impact.
β¨ 143 landmarks lit in 4 countries
β¨ 58 new recurring donors
β¨ 332 news outlets + 101 radio stations
β¨ 8M reached in our first global ad campaign
Thank you for standing with us. Watch the full recap!
#AmberforAppendixCancer