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Posts by Appendix Cancer PMP Research Foundation

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The 20th Annual #AppendixCancer Global Walk is happening June 13-21, and we're looking for businesses and individuals who want to be part of this milestone.

Twenty years of making a difference. Help us make the next twenty even greater!

Register: secure.acpmp.org/event/the-20...

5 hours ago 0 0 0 0
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3 reasons appendix cancer is hard to diagnose Appendix cancer is now known to be distinct from colorectal cancer. But it can still be difficult to diagnose. Why? Gastrointestinal oncologists John Paul Shen, M.D. and Beth Melmink, M.D., weigh in.

As a part of #WorldHealthDay, check out this article from
@mdanderson.bsky.social w/ insights from Dr. John Paul Shen
& Dr. Beth Helmink. Their expertise highlights why #appendixcancer is so difficult to diagnose and why continued education and research matter.

www.mdanderson.org/cancerwise/3...

2 weeks ago 0 0 0 0
Image of a group of people walking in amber t-shirts for the appendic cancer walk. Amber block with words Appendix Cancer Global Walk and 20 years of making difference. 20th Anniversary Walk in amber text block.

Image of a group of people walking in amber t-shirts for the appendic cancer walk. Amber block with words Appendix Cancer Global Walk and 20 years of making difference. 20th Anniversary Walk in amber text block.

20 Years of Making a Difference: Join the 2026 #AppendixCancer Global Walk.

Walk where you are or join a State Walk event! June 13-21, 2026.

Register today: secure.acpmp.org/appendixcancerwalk2026

2 weeks ago 0 0 0 0
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Join our upcoming webinar with Dr. Laura Lambert & team at NYU Langone Health reviewing #NCCN updates relevant to #AppendixCancer.

Evidence-based guidance supports informed care decisions.

Register today: events.zoom.us/ev/ApL5GXBWt...

#RareDisease #CancerGuidelines

1 month ago 1 0 0 0
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The first dedicated #AppendixCancer Patient-Powered Registry is advancing research through real-world data.

Participation helps researchers better understand diagnosis, treatment, and survivorship.

Learn more: acpmpregistry.iamrare.org

1 month ago 0 0 0 0
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On @rarediseaseday.bsky.social , we’re proud to spotlight a new #CME course developed in partnership w/ @medicalcollegeofwi.bsky.social: The Neoplastic Appendix: When to Watch, When to Act, When to Refer.

Learn more & Register here: ocpe.mcw.edu/node/229093...

#AppendixCancer #AppendicealCancer

1 month ago 0 0 0 0
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Have you been diagnosed with cancer in the past 2 years & met with a surgeon about possible surgery?

Researchers at UAB are conducting a brief, anonymous survey about how patients experience conversations around cancer surgery.
uab.co1.qualtrics.com/jfe/form/SV_...

#appendixcancer #cancerresearch

2 months ago 0 0 0 0
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Honored to be a sponsor yet again for the 2026
@socsurgonc.bsky.social ACT Conference! ACPMP funded the $100K Lisa Kurtz Luciano CIA grant, awarded to Dr. Beth Helmink & $25K YIA awarded to Dr. Jeremy Sharib.

Congrats also to ACPMP-funded travel award recipients at #ACT2026! #AppendixCancer

2 months ago 0 0 0 0
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ACPMP is proud to yet again fund two 2026
@socsurgonc.bsky.social research grants focused solely on #appendixcancer & PMP.

Congrats to Beth Helmink, MD, PhD recipient of the $100K Lisa Kurtz Luciano Appendix Cancer and PMP CIA grant, and Jeremy Sharib, MD, recipient of the $25K YIA grant!

2 months ago 1 2 0 0
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HIPEC vs PIPAC: Exploring a New Clinical Trial for Appendix Cancer Patients

Join us on Thursday, January 29th, at 7 PM for upcoming webinar: HIPEC vs. PIPAC: Exploring a New Clinical Trial for #AppendixCancer Patients Not Eligible for Cytoreductive Surgery, led by Dr. Wagner & Dr. Altpeter of Allegheny Health Network.

Register Today: acpmp.org/hipecvspipac

3 months ago 0 0 0 0
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We are proud to announce Michael Foote, MD of @mskcancercenter.bsky.social as the first-ever recipient of our $150K ACPMP Changemaker Research Grant for his research project, β€œTargeting the Surface Proteome of Appendiceal Cancer Peritoneal Metastasis.”

This research is made possible by our donors!πŸŽ—οΈ

3 months ago 0 0 0 0
Why are more young adults getting appendix cancer?
Why are more young adults getting appendix cancer? YouTube video by MD Anderson Cancer Center

Why are more young adults getting appendix cancer? Check out @mdanderson.bsky.social Cancerwise podcast
featuring Drs. Beth Helmink and JP Shen as they offer a clear overview of #appendixcancer and current approaches to care.

πŸ“· Watch the episode here: youtu.be/ot5dbXsKIvg

4 months ago 1 0 0 0
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🌟 Day 5 of 12 Days of Impact: Expanding Awareness at Medical Conferences

In 2025, ACPMP exhibited at leading medical conferences to raise awareness about #appendixcancer, correct misconceptions, and engage directly with clinicians and researchers.

4 months ago 0 0 0 0
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🌟 Day 4 of 12 Days of Impact: Patient Stories

We’re honored to be a trusted source of support and information for those affected by #appendixcancer. Your support makes this possible! πŸ’› acpmp.org

4 months ago 0 0 0 0
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🌟 Day 3 of 12 Days of Impact: Research in 2025

In 2025, your support powered major investments in appendix cancer research.

Your generosity makes this progress possible. Thank you for fueling #appendixcancer research. πŸ’›

4 months ago 0 0 0 0
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🌟 Day 2 of 12 Days of Impact: #AppendixCancer Awareness Month

A huge thank you to our volunteers, supporters, and partners for your dedication this past August!

4 months ago 0 0 0 0
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Join us for 12 Days of Impact! 🌟

Each day, we'll share stories and milestones made possible by your support.

#Appendixcancer affects 2-9 people per million annually, but it is serious and on the rise. Let's raise awareness, inspire hope and advance research.

4 months ago 1 0 0 0
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30 for 30: 'Boo-Yah: A Portrait of Stuart Scott' trailer - ESPN Video Catch the historic 30 for 30 premiere: 'Boo-Yah: A Portrait of Stuart Scott' on Dec 10 on ESPN.

Remembering Stuart Scott today. His #appendixcancer journey touched so many and brought rare visibility to this disease. @espn.com honors his legacy Wed, Dec 10 at 9 PM ET with the 30x30 film Boo-Yah: A Portrait of #StuartScott.

Preview: www.espn.com/video/clip?i...

4 months ago 0 0 0 0
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Congratulations to the Top 3 Winners of the @givingtuesday.bsky.social 2025 Shades of Amber: Creative Contest for a Cure!

Thank you to every artist who shared their amber-inspired work and to everyone who voted in support of #appendixcancer awareness.

learn more: acpmp.org/event/shades...

4 months ago 0 0 0 0
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"I want to help spread awareness, share knowledge & offer support. ACPMP has given me a platform not only to learn for myself, but to help others navigate this journey."- Melissa

This #GivingTuesday, your support helps more patients find hope when they need it most. secure.acpmp.org/campaign/726...

4 months ago 0 0 0 0
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NCCN Guidelines for Appendiceal Cancer: Defining a New Standard of Care 2025 - OncoDaily NCCN Guidelines for Appendiceal Cancer: Defining a New Standard of Care 2025 / appendiceal cancer, cancer, Cancer Management, NCCN, NCCN guidelines, NCCN

A major milestone for the #appendixcancer community!

The #NCCN has released dedicated Guidelines for Appendiceal Cancer, officially recognizing this #raredisease as distinct from colorectal cancer.

Read more about this important step forward: oncodaily.com/insight/nccn...

@oncodaily.bsky.social

5 months ago 0 0 0 0
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Missed the live sessions from the 2025 #AppendixCancer Symposium? Recordings are now available!

Catch fundamentals education, research updates, and expert sessions at your own pace.

Watch the recordings: youtube.com/playlist?lis...

@yaleschoolofmed.bsky.social @huntsmancancer.bsky.social

5 months ago 0 1 0 0
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The voice of patients unites at #PSOGI2025!

On Oct 30 in Barcelona, patient advocates from πŸ‡ͺπŸ‡ΈπŸ‡¬πŸ‡§πŸ‡«πŸ‡·πŸ‡ΊπŸ‡Έ will present the 1st Patient Manifesto on Peritoneal Malignancies, highlighting shared needs, challenges & hopes.

#PatientVoice #RareCancer #AppendixCancer
@pmpsurvivor.bsky.social @mesouk.bsky.social

5 months ago 1 0 0 0
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Why cancer immunotherapy fails: Ohio State researchers link it to protein quality control collapse In what experts are calling a paradigm-shifting landmark study, scientists from the OSUCCC – James report key findings about the underlying mechanisms of

Learn why cancer immunotherapies sometimes failβ€”and how a new study out of @osucccjames.bsky.social could lead to improved treatments.

6 months ago 0 0 0 0
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The voice of patients unites at #PSOGI2025 πŸ‡ͺπŸ‡Έ

On Oct 30 in Barcelona, the first International Patient Manifesto on Peritoneal Malignancies will be presented - a global, patient-led initiative co-developed by 7 orgs from 5 countries, including ACPMP.

@pmpsurvivor.bsky.social @mesouk.bsky.social

6 months ago 2 2 0 0
Blue background with yellow, white, and light blue stripes with words "What to Expect at the 2025 Virtual Appendix Cancer Multi-Regional Symposium"

Blue background with yellow, white, and light blue stripes with words "What to Expect at the 2025 Virtual Appendix Cancer Multi-Regional Symposium"

New to the Appendix Cancer Symposium? Here’s what to expect:

➑️ Expert presentations on diagnosis, treatment & research
➑️ Mock Tumor Board discussion of real patient cases
➑️ Live Q&As throughout the day
➑️ Regional breakout sessions focused on practical needs

events.zoom.us/ev/AlbNeGm7q...

6 months ago 1 0 0 0
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From Symptoms to Survival: What to Know About Appendix Cancer Appendix cancer remains rare but incidence is growing, as is knowledge about the likely causes. A Yale Medicine expert offers insights on symptoms that should not be ignored, diagnosis, and therapi...

In this insightful Q&A, Dr. Kiran Turaga discusses the increasing incidence of #appendixcancer cases & the progress being made in research & treatment.

Dr. Turaga will also be joining us as a moderator for our Appendix Cancer Symposium on Oct 17!

Read more: www.yalemedicine.org/news/from-sy...

6 months ago 2 2 0 0
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What’s next for PIPAC in the U.S.? 🌎

Dr. Mustafa Raoof of City of Hope, Duarte Cancer Center, will share the latest updates and future directions at the 2025 #AppendixCancer Multi-Regional Symposium.

Save Your Spot: events.zoom.us/ev/AlbNeGm7q...

#PIPAC #CityofHope

7 months ago 0 0 0 0
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The AROD Strong Kickball Tournament, Walk, and BBQ raised more than $7,300 to honor Anthony "AROD"’s memory and support appendix cancer research, education, and awareness. Thank you to everyone who joined, played, and supported this amazing day. πŸ’› #AppendixCancer #ARODStrong

7 months ago 0 0 0 0
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πŸ’› #AppendixCancer Awareness Month 2025 = Global Impact.

✨ 143 landmarks lit in 4 countries
✨ 58 new recurring donors
✨ 332 news outlets + 101 radio stations
✨ 8M reached in our first global ad campaign

Thank you for standing with us. Watch the full recap!

#AmberforAppendixCancer

7 months ago 0 0 0 0