clean them linens as you leave, no shoes in my house, come home at a reasonable time b4 i put on my pjs and take my night meds 😆

im such a tita tho fr, i evolved into a full blown tita

i had my first covid safe sleepover this weekend with an ading (inherited younger sis) and it was so nice. I always wanted my home to be a place for people to come to when they needed a safe space to unwind or get replenished 💙

Well I guess I'm seated regardless... LMAO.

a brown woman with black curly hair smiles. she's wearing a 70's style patterned long sleeve collard shirt that has black, beige, and tan swirls. the frame of the picture is a VCR with the date NOV 28 1990

a brown woman with black curly hair smiles. she's wearing a 70's style patterned long sleeve collard shirt that has black, beige, and tan swirls. she's sitting in a wheelchair with her arm up. the frame of the picture is a VCR with the date NOV 28 1990

a brown woman with black curly hair poses. she's wearing a 70's style patterned long sleeve collard shirt that has black, beige, and tan swirls. she's sitting in a wheelchair. the frame of the picture is a VCR with the date NOV 28 1990

Are yall ready for a 90's R&B summer cuz I am 😭 im SEATED for Kehlani's album release

thank you friend. my dream goal is to be able to transfer myself from wheelchair to a lower or higher surface, and the big big dream is to be able to get up and walk to the toilet and use the toilet. 😭

that video i posted on FB I did about 12 takes of that, in a row

my MCAS is really running the show, and my neuropathy and GI stuff so i'd say MCAS & dysautonomia stuff is ramped up but the ME seems to be subsiding which is honestly really really such a reprieve and speaks to how BADLY it impacts QOL

i think for me too! I would honestly say my ME is at like moderate rn. My PEM is DEF still there but it's really not nearly as bad. My other shit is significantly worse than my ME which is something I could not say for YEARS

i know! maybe its a fluke but we will see 👀

of course it was only in my chair and was mostly arm and back movements but still A LOT of movement

anyways. i danced for an hour and a half yesterday learning Kehlani's out the window choreo and I'm still alive enough today to eat by the pool so obvi something in me is getting better, praise the most highhhhh

It shouldnt have taken all of this!!

i literally sobbed and prayed outside with my parents. this new gi doctor i saw at UCI was so comprehensive & scheduled an endoscopy, colonoscopy, and GES for May. some of my labs just came back that shows my calprotectin is off the charts. Im just so freaking frustrated. SO MAD. I'm on Dr #53

i've seen 2 GI doctors since I got COVID in 2022. The first said I was bulimic & said to meditate (I hadn't eaten in 2 weeks at that point btw bc of GP). The next GI doctor, i spent $1500 to see at UCLA in feb. I asked her to do a colonoscopy & some basic labs and she refused bc "its constipation"

reminding myself there is no linear path to progress or success. everyones journey will look different. im proud of myself for surviving these past few years, and so thankful for those who have kept me alive!

Two women smiling and posing together for a picture wearing doctoral regalia, long blue gowns and caps.

It's my PhD Anniversary!

Much love and gratitude to my big sister/mentor/inherited-second-mother @safiyanoble.bsky.social

It has been the hardest 4 years of my entire life, but so glad that I'm having some improvement and was able to start work this year for the first time since graduating

Also my legs hurt so bad now lol but ill take it

Praise God

My feet touched the ground today.

The last time they did was February 2023. That was the last time I took my last steps.

Today, I had enough strength to sit at the edge of my bed without support, bring my legs across, and plant them on the ground for a few seconds. Then bring them back up.

Drawn image of the U.S. Capitol dome, with the words underneath: Long COVID patients have waited too long for TESTS, TRIALS & TREATMENTS. #FundLongCOVID

📣U.S. Action Item: #pwLC #POTS #pwME #NEISVoid we need your help! Will you contact your Senators & ask them to sign on to the FY27 Senate “Dear Colleague” Letter for over $210 million to #FundLongCOVID in 2027 Appropriations using our EASY low-spoons call/email tool?🧵

Block the EA Deal EA’s $55 billion buyout will give foreign investors and Private Equity massive control over gaming and turn the worst anti-consumer practices, like loot boxes and aggressive microtransactions, into ov...

actionnetwork.org/petitions/bl...

just got off the phone with an immunologist -_- she told me that bc i have gastroparesis i shouldve never been started on cromolyn -_-

dawg, no wonder my stomach been so messed up

calling a 4 year old brody are bruh is so funny 2 me

watching my older brother parent is so funnnnnny, who made us the new parents? he just said to my niece "dang brody is u dyslexic" lmao she's 4

me telling my father about my work on SVSH 🥳

me telling my father that my work about SVSH is based on my experience with SVSH 🙉

REGISTERED SUPPORT / OPPOSITION: Support ASUC Sexual Violence Commission Cal State Student Association California Women's Law Center Courage California Electronic Frontier Foundation Equal Rights Advocates Kapor Center Advocacy Sexual Violence Prevention Association Survivors + Allies Techtonic Justice The Survivors Pro Bono University of California Student Association Valor US Vera Institute of Justice Opposition None on file.

Thank you to all of the orgs who helped to support our bill 🥳
ahed.assembly.ca.gov/system/files...

our bill has 14 organizational letters of support going in to assembly higher ed committee tmrw. i'm so grateful for all the orgs who supported us and we worked really hard for each of those, so i'm congratulating myself too haha. no opposition right now so hopefully things go well.

luckily my slp works w/ a lot of trans patients who i think go through something similar. not the same but similar sort of dissociation sometimes

tbh i cried for 10 min in the last session and crashed from that too haha, it's just hard to be in your body with this disease you know? like for the past four ish years now i've tried to NOT be connected to my body cuz it's too traumatic/painful. but with vocal therapy you have to be

the breathing work is the toughest. just bc we don't use our diaphragm you know? it is ROUGHHHHHHHH