Advertisement · 728 × 90

Posts by Pride in Patient Engagement in Research

PiPER manager standing beside the opening slide of the presentation "Paying People with Lived Experience to Work as Partners Builds Better Research" at the SOAR Event.

PiPER manager standing beside the opening slide of the presentation "Paying People with Lived Experience to Work as Partners Builds Better Research" at the SOAR Event.

The PiPER Team was pleased to attend and present at @kiteuhn.bsky.social's inaugural SOAR: Showcasing Outstanding Achievement in Research event!

To learn more about PiPER, please check out our website: www.uhnpiper.ca and for UHN staff please visit our new SharePoint site: lnkd.in/e9e6N2Kq

1 week ago 0 0 0 0
Onil Bhattacharyya and Sandra Holdsworth will be presenting "Patient Partners in Learning Health Systems: The Centre for Digital Health Evaluation Experience" March 25th from 12-1 pm EST Zoom Link: https://us02web.zoom.us/s/81234528464?pwd=jec3KCcIUqJObRDPfZMBt60ik7VkCu.1#success

Onil Bhattacharyya and Sandra Holdsworth will be presenting "Patient Partners in Learning Health Systems: The Centre for Digital Health Evaluation Experience" March 25th from 12-1 pm EST Zoom Link: https://us02web.zoom.us/s/81234528464?pwd=jec3KCcIUqJObRDPfZMBt60ik7VkCu.1#success

Our next PiPER Community of Practice is one week away! Join us to learn more about involving people with lived experience in digital health evaluation!

@uhnresearch.ca
@wchospital.bsky.social

1 month ago 1 0 0 0
Post image

PiPER SharePoint is a resource for UHN Research to navigate and implement the engagement of people with lived experience (PLEX; includes patients, family members, and caregivers) as partners in research: universityhealthnetwork.sharepoint.com/teams/uhnpip...

*UHN email address required to access

1 month ago 0 0 0 0
PLEX Engagement in Research Community of Practice Onil Bhattacharyya and Sandra Holdsworth will be presenting "Patient Partners in Learning Health Systems: The Centre for Digital Health Evaluation Experience". March 25th from 12-1 pm

PLEX Engagement in Research Community of Practice Onil Bhattacharyya and Sandra Holdsworth will be presenting "Patient Partners in Learning Health Systems: The Centre for Digital Health Evaluation Experience". March 25th from 12-1 pm

We are excited to announce this month's PiPER Community of Practice! Save the date on *March 25th 2026* from 12-1 pm for a dynamic session entitled "Patient Partners in Learning Health Systems: The Centre for Digital Health Evaluation Experience".

Join at this Zoom link: lnkd.in/eHbU6zE9

1 month ago 2 0 0 1

@uhnresearch.ca @uhn.ca

3 months ago 0 0 0 0
PLEX Engagement in Research Community of Practice James Khan, Cathy Ammendolea, Therese Lane, Nour Ayach, and Sarah Miles will be speaking about "Lessons Learned by a Research Team New to Engaging PLEX in Randomized Controlled Trials. PLEX are People with Lived Experience (Patients, Families, Carers( Jan 28th 2026 12-1 pm EST Zoom Link (above) Contact Us at piper@uhn.ca

PLEX Engagement in Research Community of Practice James Khan, Cathy Ammendolea, Therese Lane, Nour Ayach, and Sarah Miles will be speaking about "Lessons Learned by a Research Team New to Engaging PLEX in Randomized Controlled Trials. PLEX are People with Lived Experience (Patients, Families, Carers( Jan 28th 2026 12-1 pm EST Zoom Link (above) Contact Us at piper@uhn.ca

Save the date on January 28th 2026 from 12-1 pm for a dynamic Community of Practice session titled “Lessons Learned by a Research Team New to Engaging PLEX in Randomized Controlled Trials!

Zoom Link: lnkd.in/eHbU6zE9

3 months ago 4 2 1 1
Post image

The 3rd annual PiPER Research Day on October 8th, 2025, welcomed over 175 attendees to share work under the theme of "Do the Right Thing, Share it With Others, Build a Better Tomorrow". Check out our summary report from the event, showcasing event highlights and key takeaways: bit.ly/4aGsCJJ

3 months ago 0 0 0 0
Advertisement
Post image

Have you had a chance to check out last month's newsletter? kite-uhn-piper.s3.ca-central-1.amazonaws.com/docs/Novembe...

Become a PiPER Member to learn more about upcoming updates, opportunities, and events: www.surveymonkey.com/r/MTZJYTF

4 months ago 0 0 0 0

Kudos to @amaybee.bsky.social, Dawn Barker, Margaret Keatings, and Camille Orridge who were instrumental in co-developing the event and report!

4 months ago 0 0 0 0
Engaging people with lived experience can occur at the end of a research project during the sharing phase. Here are some key considerations identified by our symposium participants: Value contributions (e.g., co-authorship and team celebrations) Ask for feedback on project outputs Use creative ways to share project outputs (e.g., graphic novel, photo collage)

Engaging people with lived experience can occur at the end of a research project during the sharing phase. Here are some key considerations identified by our symposium participants: Value contributions (e.g., co-authorship and team celebrations) Ask for feedback on project outputs Use creative ways to share project outputs (e.g., graphic novel, photo collage)

Ready to share outputs co-created with people with lived experience on a research project?

Check Out Our Full Report: lnkd.in/e_vcyK-n

Share the report considerations that resonate with you—and add your own ideas for the doing phase of research!

@wchospital.bsky.social

@uhnresearch.ca

4 months ago 4 0 1 0
Post image

Registration is open for the first OSSU World Café Conversation! We will explore what “meaningful engagement” means, who defines it, and how to move beyond tokenism toward real co-production. Dec 10 at 12 p.m. EST. Register: us06web.zoom.us/meeting/regi...

#HealthResearch #PatientEngagement

4 months ago 1 0 0 0

Kudos to @amaybee.bsky.social, Dawn Barker, Margaret Keatings, and Camille Orridge who were instrumental in co-developing the event and report!

4 months ago 2 1 0 0
Engaging people with lived experience can occur during the doing phase of a research project. Here are some key considerations identified by our symposium participants: Make a concerted effort to meaningfully engage those often not engaged Provide several ways to engage (e.g., in-person, virtual, emails) Leverage the knowledge and skills that have people with lived experience have beyond their lived experience

Engaging people with lived experience can occur during the doing phase of a research project. Here are some key considerations identified by our symposium participants: Make a concerted effort to meaningfully engage those often not engaged Provide several ways to engage (e.g., in-person, virtual, emails) Leverage the knowledge and skills that have people with lived experience have beyond their lived experience

Collaborating with people with lived experience on a research project?

Check Out Our Full Report: www.womensacademics.ca/wp-content/u...

Share the report considerations that resonate with you—and add your own ideas for the doing phase of research!

@wchospital.bsky.social

@uhnresearch.ca

4 months ago 3 0 1 0
Post image

The PiPER team is thrilled to announce the 2025 PiPER Grant awardees (Community, Partnership, and Innovation streams). The full list of awardees can be found on the “Our Resources” tab on the PiPER website. kite-uhn.com/piper

4 months ago 0 0 0 0
PLEX Engagement in Research Nov 26th from 12:00 - 1:00 pm EST Arani Hiritharan, Corinne Rose, and Justin Hayes-Lemke will be speaking about “Collaboration not Consultation: Learning from the Digital Action Youth Advisory at Youth Wellness Hubs Ontario” Zoom Link: https://lnkd.in/eiuE82FR

PLEX Engagement in Research Nov 26th from 12:00 - 1:00 pm EST Arani Hiritharan, Corinne Rose, and Justin Hayes-Lemke will be speaking about “Collaboration not Consultation: Learning from the Digital Action Youth Advisory at Youth Wellness Hubs Ontario” Zoom Link: https://lnkd.in/eiuE82FR

Our next Community of Practice session is on Nov 26th from 12-1 pm!

Arani Hiritharan, Corinne Rose, and Justin Hayes-Lemke will be speaking about “Collaboration not Consultation: Learning from the Digital Action Youth Advisory at Youth Wellness Hubs Ontario”

Zoom Link: lnkd.in/eiuE82FR

5 months ago 1 1 0 0
Advertisement

Kudos to @amaybee.bsky.social, Dawn Barker, Margaret Keatings, and Camille Orridge who were instrumental in co-developing the event and report!

4 months ago 1 0 0 0
Engaging people with lived experience can begin as early as the planning phase of a research project. Here are some key considerations identified by our symposium participants: Recognize and address power imbalances at the start of a project Use and share existing engagement resources and toolkits Build in time for personal introductions and connecting at meetings Full summary report link: https://www.womensacademics.ca/wp-content/uploads/2025/10/Final-WCH-x-PiPER-Report_09_17_2025.pdf

Engaging people with lived experience can begin as early as the planning phase of a research project. Here are some key considerations identified by our symposium participants: Recognize and address power imbalances at the start of a project Use and share existing engagement resources and toolkits Build in time for personal introductions and connecting at meetings Full summary report link: https://www.womensacademics.ca/wp-content/uploads/2025/10/Final-WCH-x-PiPER-Report_09_17_2025.pdf

Preparing to involve people with lived experience in your research?

Check Out Our Full Report: lnkd.in/e_vcyK-n

Share the report considerations that resonate with you—and add your own ideas for the planning phase of research!

@wchospital.bsky.social @uhnresearch.ca

4 months ago 1 0 1 0
Post image

@uhn.ca's Patient Engagement in Research (@piper-uhn.bsky.social) team recently hosted its 3rd annual Research Day. Over 200 attendees explored how partnering with people with lived experience (PLEX) makes research more relevant & impactful. Read more: www.uhnresearch.ca/news/piper-r...

5 months ago 7 1 1 0

Congratulations Gabriela and team! Looking forward to seeing this project take flight! 🎊

5 months ago 1 0 0 0
PLEX Engagement in Research Nov 26th from 12:00 - 1:00 pm EST Arani Hiritharan, Corinne Rose, and Justin Hayes-Lemke will be speaking about “Collaboration not Consultation: Learning from the Digital Action Youth Advisory at Youth Wellness Hubs Ontario” Zoom Link: https://lnkd.in/eiuE82FR

PLEX Engagement in Research Nov 26th from 12:00 - 1:00 pm EST Arani Hiritharan, Corinne Rose, and Justin Hayes-Lemke will be speaking about “Collaboration not Consultation: Learning from the Digital Action Youth Advisory at Youth Wellness Hubs Ontario” Zoom Link: https://lnkd.in/eiuE82FR

Our next Community of Practice session is on Nov 26th from 12-1 pm!

Arani Hiritharan, Corinne Rose, and Justin Hayes-Lemke will be speaking about “Collaboration not Consultation: Learning from the Digital Action Youth Advisory at Youth Wellness Hubs Ontario”

Zoom Link: lnkd.in/eiuE82FR

5 months ago 1 1 0 0
Redefining Patient Engagement: Shaping Research Together Symposium - May 8 2025 Report Link: https://www.womensacademics.ca/wp-content/uploads/2025/10/Final-WCH-x-PiPER-Report_09_17_2025.pdf

Redefining Patient Engagement: Shaping Research Together Symposium - May 8 2025 Report Link: https://www.womensacademics.ca/wp-content/uploads/2025/10/Final-WCH-x-PiPER-Report_09_17_2025.pdf

On May 8th 2025, Women's College Hospital and Pride in Patient Engagement in Research (PiPER) at UHN co-hosted a hybrid event called Redefining Patient Engagement: Shaping Research Together Symposium. Check out the report and share your thoughts!

Report Link: tinyurl.com/mu27d4d3

5 months ago 2 0 0 0
We're always looking for ways to improve and expand our PiPER Community of Practice! Your feedback is invaluable in helping us create a space that supports learning, collaboration, and innovation in involving people with lived experience in research. Whether you're a long-time member or just getting started, we want to hear from you! Survey Link: https://www.surveymonkey.com/r/8GXCQZP

We're always looking for ways to improve and expand our PiPER Community of Practice! Your feedback is invaluable in helping us create a space that supports learning, collaboration, and innovation in involving people with lived experience in research. Whether you're a long-time member or just getting started, we want to hear from you! Survey Link: https://www.surveymonkey.com/r/8GXCQZP

We're always looking for ways to improve and expand our PiPER Community of Practice! Your feedback is invaluable in helping us create a space that supports learning, collaboration, and innovation in involving people with lived experience in research.

Survey Link: www.surveymonkey.com/r/8GXCQZP

5 months ago 0 1 0 0
Post image

Our Keynote Panel - moderated by Angela M. Cheung with panelists Alexandra Rendely, Rebecca Lewkowicz, and Susie Goulding explored "The Important Role of People with Lived Experience in Long-COVID Care and Research".

#PiPERResearchDay2025

6 months ago 1 1 0 0
Post image

Check out the live illustration from ThinkLink Graphics — capturing the key insights and moments from today’s event in real time. Stay tuned for more visual highlights!

#PiPERResearchDay2025

6 months ago 1 0 0 0
Post image

We’re honoured to welcome our Keynote Speaker, Dr. Mahadeo Sukhai — a trailblazer in advancing accessibility and inclusion across the sciences and healthcare. Dr. Sukhai’s is presenting on “Anti-Ableism in Patient Engagement and Research: A Personal and Professional Journey". #PiPERResearchDay2025

6 months ago 1 0 0 0
Advertisement
PiPER Research Day 2025 Program Booklet.pdf

🚀 Today is PiPER Research Day 2025!

Have you had a chance to explore the program yet? Follow along for highlights, key takeaways, and moments from our presenters throughout the day. drive.google.com/file/d/1vPaU...

Don’t forget to tag us and share your experience using #PiPERResearchDay2025!

6 months ago 0 0 0 0
Post image

🚨 Only 2 DAYS to go! 🚨

PiPER Research Day 2025 is almost here—happening this October 8th at the beautiful Guild Inn Estate.

🗺️ Make sure you're ready! Check out the venue details and directions. Learn more here: site.pheedloop.com/event/PiPER2...

6 months ago 2 0 0 0
Post image

PiPER Research Day 2025 is just around the corner!
We're excited to share the venue map to help you plan your day. There will be quiet spaces and accessible washrooms. Fuel your day with continental breakfast, buffet lunch and burgers and bar during networking hour.

Can't wait to see you there!

6 months ago 0 0 0 0
**PiPER | Pride in Patient Engagement in Research** **RESEARCH DAY PROGRAM** **OCTOBER 8, 2025** *PLEX = People with lived experience* **9:00 - 9:30 AM** | Registration | Breakfast & Networking **9:30 - 10:00 AM** | Welcome & Opening Remarks **10:00 - 11:00 AM** | Keynote: Accessibility & PLEX Engagement **11:00 - 11:30 AM** | Morning Break | Posters & Art Exhibit Viewing **11:30 AM - 12:15 PM** | PLEX Storysharing - Oral Presentations: PLEX Engagement in Research Showcase | Oral Presentations: Do the Right Thing **12:15 - 1:45 PM** | Lunch & Networking | Posters & Art Exhibit Viewing **1:45 - 2:45 PM** | Panel: The Important Role of PLEX in Long-COVID Care and Research **2:45 - 3:15 PM** | Panel: When Challenges Become Opportunities: Insights from Researchers **3:15 - 3:45 PM** | Afternoon Break | Posters & Art Exhibit Viewing **3:45 - 4:45 PM** | Interactive Panels: Build a Better Tomorrow Oral Presentations: Build a Better Tomorrow Workshop: The Future of PLEX Engagement **4:45 - 5:00 PM** | Closing Remarks **5:00 - 6:00 PM** | Networking Event: To be confirmed

**PiPER | Pride in Patient Engagement in Research** **RESEARCH DAY PROGRAM** **OCTOBER 8, 2025** *PLEX = People with lived experience* **9:00 - 9:30 AM** | Registration | Breakfast & Networking **9:30 - 10:00 AM** | Welcome & Opening Remarks **10:00 - 11:00 AM** | Keynote: Accessibility & PLEX Engagement **11:00 - 11:30 AM** | Morning Break | Posters & Art Exhibit Viewing **11:30 AM - 12:15 PM** | PLEX Storysharing - Oral Presentations: PLEX Engagement in Research Showcase | Oral Presentations: Do the Right Thing **12:15 - 1:45 PM** | Lunch & Networking | Posters & Art Exhibit Viewing **1:45 - 2:45 PM** | Panel: The Important Role of PLEX in Long-COVID Care and Research **2:45 - 3:15 PM** | Panel: When Challenges Become Opportunities: Insights from Researchers **3:15 - 3:45 PM** | Afternoon Break | Posters & Art Exhibit Viewing **3:45 - 4:45 PM** | Interactive Panels: Build a Better Tomorrow Oral Presentations: Build a Better Tomorrow Workshop: The Future of PLEX Engagement **4:45 - 5:00 PM** | Closing Remarks **5:00 - 6:00 PM** | Networking Event: To be confirmed

Check out the PiPER Research Day 2025 program below!

✅ Build meaningful relationships and exchange insights
✅ Share success stories and lived experiences
✅ Promote best practices in PLEX engagement in research

🕰️ Registration Closes Sep 30th!

🎟️Register here to join us: lnkd.in/eQeu4u-u

6 months ago 1 1 0 0
Did You Know? Over 7.8 Million Canadians over the age of 15 provide informal care (i.e., unpaid) to family members of friends with a: Chronic condition Physical or mental disability Complications related to aging 39% of Ontarians are facing financial hardship caused by caregiving duties.

Did You Know? Over 7.8 Million Canadians over the age of 15 provide informal care (i.e., unpaid) to family members of friends with a: Chronic condition Physical or mental disability Complications related to aging 39% of Ontarians are facing financial hardship caused by caregiving duties.

Join us today at 12:00 pm EST to learn more about how we can best support caregivers!

Zoom Link: lnkd.in/eiuE82FR

6 months ago 3 1 0 0